Not being able to live like before: the family dynamics during the experience of pediatric liver transplantation

Mendes, Ana Márcia Chiaradia; Bousso, Regina Szylit

doi:10.1590/s0104-11692009000100012

Cited by 13 publications

(10 citation statements)

References 14 publications

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“…The inclusion criteria were also limited to studies including a quantitative measure of parent and/or family functioning. Therefore, notable qualitative studies that have highlighted issues important to understanding parent and family functioning in pediatric SOT, such as work by Mendes and Bousso, Chou and colleagues, and Williams and colleagues, were not included in this review.…”

Section: Discussionmentioning

confidence: 99%

A systematic review of parent and family functioning in pediatric solid organ transplant populations

Cousino

Rea

Schumacher

et al. 2017

Pediatric Transplantation

114

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The process of pediatric solid organ transplantation (SOT) places new and increased stressors on patients and family members. Measures of family functioning may predict psychological and health outcomes for pediatric patients and their families, and provide opportunity for targeted intervention. This systematic review investigated parent and family functioning and factors associated with poorer functioning in the pediatric SOT population. Thirty-seven studies were identified and reviewed. Studies featured a range of organ populations (eg, heart, liver, kidney, lung, intestine) at various stages in the transplant process. Findings highlighted that parents of pediatric SOT populations commonly report increased stress and mental health symptoms, including posttraumatic stress disorder. Pediatric SOT is also associated with increased family stress and burden throughout the transplant process. Measures of parent and family functioning were associated with several important health-related factors, such as medication adherence, readiness for discharge, and number of hospitalizations. Overall, findings suggest that family stress and burden persists post-transplant, and parent and family functioning is associated with health-related factors in SOT, highlighting family-level functioning as an important target for future intervention.

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Section: Discussionmentioning

confidence: 99%

A systematic review of parent and family functioning in pediatric solid organ transplant populations

Cousino

Rea

Schumacher

et al. 2017

Pediatric Transplantation

114

View full text Add to dashboard Cite

show abstract

“…There is continuing parental concern over rejection, side effects of IS, of being overprotective, continuing medical and "social" expenses, and changes to family dynamics. Parents who have devoted their energies into the care of a chronically ill child sometimes interrupting their professional life may find it difficult to adjust to their new role within the family with a "well" child [82]. Anxieties about children going to school and being separated from their parents after many years of dependence can also cause problems [83].…”

Section: Quality Of Lifementioning

confidence: 99%

Pediatric Liver Transplantation

Heaton

2015

Textbook of Pediatric Gastroenterology, Hepatology and Nutrition

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“…A study performed to understand the family dynamics during liver transplantation revealed that the child's transplantation experience is full of uncertainties and vulnerability, and the resources that the family uses to confront their situation in everyday life, creates a great influence on the way family members perceive the child, the disease and the treatment (1) . In this regard, the authors have raised new questions, specifically on how families deal with management and adaptation facing transplantation.…”

Section: Introductionmentioning

confidence: 99%

Estilos de manejo familiar: uma possibilidade de avaliação no transplante hepático pediátrico

et al. 2012

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Objective: To identify the styles of family management during the experience of liver transplantation of a child, according to the Family Management Style Framework. Methods: A descriptive study with a qualitative approach, conducted by means of a secondary analysis of nine semi-structured interviews previously collected with eight families who had a child who experienced a liver transplantation. Results: From the analysis, it was possible to identify five styles of management: adjusted family, family in adaptation, struggling family, family in conflict and family in waiting. Conclusion: The model proved useful in assessing families in the context of pediatric transplant and its use is encouraged in this and other scenarios of chronic disease. Keywords: Family; Transplantation; Pediatric nursing RESUMO Objetivo: Identificar os estilos de manejo familiar durante a experiência do transplante hepático da criança, de acordo com o Family Management Style Framework. Métodos: Estudo descritivo, com abordagem qualitativa, realizado mediante uma análise secundária de nove entrevistas semiestruturadas, previamente coletadas com oito famílias que tiveram uma criança que atravessava a experiência de transplante hepático. Resultados: Pela análise, foi possível identificar cinco estilos de manejo: família ajustada, família em adaptação, família lutando, família em conflito e família em espera. Conclusão: O modelo mostrou-se útil na avaliação de famílias no contexto do transplante pediátrico e seu uso é encorajado neste e em outros cenários de doença crônica. Descritores: Família; Transplante; Enfermagem pediátrica RESUMEN Objetivo: Identificar los estilos de manejo familiar durante la experiencia del transplante hepático del niño, de acuerdo con el Family Management Style Framework. Métodos: Estudio descriptivo, con abordaje cualitativo, realizado mediante un análisis secundario de nueve entrevistas semiestructuradas, previamente recolectadas con ocho familias que tuvieron una niño que atravesaba la experiencia del transplante hepático. Resultados: Por el análisis, fue posible identificar cinco estilos de manejo: familia ajustada, familia en adaptación, familia luchando, familia en conflicto y familia en espera. Conclusión: El modelo se mostró útil en la evaluación de familias en el contexto del transplante pediátrico y su uso es incentivado en éste y en otros escenarios de enfermedad crónica. Descriptores: Familia; Trasplante; Enfermería pediátrica

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Not being able to live like before: the family dynamics during the experience of pediatric liver transplantation

Cited by 13 publications

References 14 publications

A systematic review of parent and family functioning in pediatric solid organ transplant populations

A systematic review of parent and family functioning in pediatric solid organ transplant populations

Pediatric Liver Transplantation

Estilos de manejo familiar: uma possibilidade de avaliação no transplante hepático pediátrico

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