A systematic review of parent and family functioning in pediatric solid organ transplant populations

Cousino, Melissa K.; Rea, Kelly E.; Schumacher, K.; Magee, John C.; Fredericks, Emily M.

doi:10.1111/petr.12900

Cited by 119 publications

(77 citation statements)

References 64 publications

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“…Demographic variables, including child age, sex, and race, were unrelated to overall psychosocial distress. Findings are generally consistent with the literature, where null associations between parent and family functioning, child age, and child sex have been reported . Similarly, age at transplant and time since transplant were not associated with psychosocial risk, which is consistent with findings among pediatric liver transplant recipients .…”

Section: Discussionsupporting

confidence: 90%

“…where null associations between parent and family functioning, child age, and child sex have been reported. 11 Similarly, age at transplant and time since transplant were not associated with psychosocial risk, which is consistent with findings among pediatric liver transplant recipients. 24 There were no differences in psychosocial risk among recipients with congenital heart diseases when compared to those with a cardiomyopathy or other acquired heart disease.…”

Section: Patient and Family Psychosocial Risksupporting

confidence: 83%

“…While these early studies underscore the value of assessing psychosocial functioning in pediatric heart transplant recipients and their families given its potential impact on health outcomes, the majority of published work is now quite dated and evaluated small patient samples. A recent systematic review of family functioning in pediatric solid organ transplant populations identified only five studies, all of which were greater than a decade old, that assessed parent psychological and/or family functioning in pediatric heart transplant samples . To our knowledge, no studies to date have screened for sibling emotional and behavioral problems in pediatric heart transplant populations.…”

Section: Introductionmentioning

confidence: 99%

“…A recent systematic review of family functioning in pediatric solid organ transplant populations identified only five studies, all of which were greater than a decade old, that assessed parent psychological and/or family functioning in pediatric heart transplant samples. 11 To our knowledge, no studies to date have screened for sibling emotional and behavioral problems in pediatric heart transplant populations.…”

mentioning

confidence: 99%

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Psychosocial functioning in pediatric heart transplant recipients and their families

Cousino

Schumacher

Rea

et al. 2018

Pediatric Transplantation

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Across pediatric organ transplant populations, patient and family psychosocial functioning is associated with important health-related outcomes. Research has suggested that pediatric heart transplant recipients and their families are at increased risk for adverse psychosocial outcomes; however, recent investigation of psychosocial functioning in this population is lacking. This study aimed to provide a contemporary characterization of psychosocial functioning in pediatric heart transplant recipients and their families. Associations between psychosocial function, demographic variables, and transplant-related variables were investigated. Fifty-six parents/guardians of pediatric heart transplant recipients completed a comprehensive psychosocial screening measure during transplant follow-up clinic visits. Descriptive statistics, correlational analyses, and independent samples t tests were performed. Forty percent of pediatric heart transplant recipients and their families endorsed clinically meaningful levels of total psychosocial risk. One-third of patients presented with clinically significant psychological problems per parent report. Psychosocial risk was unassociated with demographic or transplant-related factors. Despite notable improvements in the survival of pediatric heart transplant recipients over the past decade, patients and families present with sustained psychosocial risks well beyond the immediate post-transplant period, necessitating mental health intervention to mitigate adverse impact on health-related outcomes.

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Section: Discussionsupporting

confidence: 90%

Section: Patient and Family Psychosocial Risksupporting

confidence: 83%

Section: Introductionmentioning

confidence: 99%

mentioning

confidence: 99%

See 2 more Smart Citations

Psychosocial functioning in pediatric heart transplant recipients and their families

Cousino

Schumacher

Rea

et al. 2018

Pediatric Transplantation

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“…Participants’ reflections specifically highlighted the psychosocial impact on families as their child moved through the transplant trajectory. Family functioning is a key predictor for health‐related factors that influence patient wellness in terms of length‐of‐stay in hospital post‐transplant, adherence to treatment, and preparedness for discharge . When this is considered together with the marked emotional turbulence described by participants in our study, there is strong evidence to support the need for consistent involvement from mental health professionals, such as social workers and psychologists, before and after LAD liver transplant.…”

Section: Discussionmentioning

confidence: 66%

The experiences of parents and caregiver(s) whose child received an organ from a living anonymous liver donor

Ghent

Robertson

Young

et al. 2019

Clinical Transplantation

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Background Anonymous living donor transplantation is a potential strategy to address the shortage of available organs for transplant. A living anonymous donor (LAD) is a donor with no biological connection and whose identity is unknown to the recipient. This study captured the lived experiences of pediatric liver transplant recipient families whose child received an organ from a LAD. Methods Qualitative data collection and analysis were guided by a theoretical framework of phenomenology. Data analysis highlighted themes through an inductive process of reviewing transcript paragraphs to code for significant statements that represented key concepts and captured depth of experience. Results A total of nine interviews were conducted with 10 participants. Data analysis yielded themes of emotional turbulence through their transplant journey. Pre‐transplant experiences were characterized by feelings of helplessness and desperation. Receiving a LAD transplant prompted shock, relief, and acceptance of the donation. Post‐transplant experiences were characterized by altered life‐perspectives and varied levels of connectedness to the donor, marked by gratitude and concern for donor well‐being. Conclusion Anonymous donation in liver transplantation is perceived by recipient families as a remarkable gift and a viable donor option. Our preliminary findings can be used to inform strategy development regarding future delivery of care.

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Long‐term risk of a fatty liver in liver donors

Goto

Kawamura

Watanabe

et al. 2023

Annals of Gastroent Surgery

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Aim Approximately 30 years have passed since the first experience of living donor liver transplantation. The time to evaluate the long‐term safety of living donors has been fulfilled. Meanwhile, nonalcoholic fatty liver disease is increasingly common and a critical problem. The aim of this study was to evaluate the safety of living donor, focusing on fatty liver postdonation hepatectomy. Methods Living donors (n = 212, 1997–2019) were evaluated by computed tomography (CT) at >1‐year postdonation. A liver to spleen (L/S) ratio of <1.1 was defined as fatty liver. Results Among 212 living liver donors, 30 (14.2%) detected fatty liver at 5.3 ± 4.2 years postdonation. The cumulative incidence rates of fatty liver were 3.1%, 12.1%, 22.1%, and 27.7% at 2, 5, 10, and 15 years postdonation, respectively. Of 30 subjects who developed fatty liver, 18 (60%) displayed a severe steatosis (L/S ratio <0.9). Five (16.7%) had a prior history of excessive alcohol abuse. More than 30% developed metabolic syndrome including obesity, hyperlipidemia, and diabetes. Although six (20%) had a Fib‐4 index of >1.3, which included a case with a Fib‐4 index of >2.67, no significant increased Fib‐4 index was observed in the subjects with fatty liver as compared to those without fatty liver (p = 0.66). The independent predictive risk factors for developing fatty liver were male sex, pediatric recipient, and higher body mass index (>25) at donation. Conclusion Living donors with risk factors for developing fatty liver should be carefully followed‐up for the prevention and management of metabolic syndrome.

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A systematic review of parent and family functioning in pediatric solid organ transplant populations

Cited by 119 publications

References 64 publications

Psychosocial functioning in pediatric heart transplant recipients and their families

Psychosocial functioning in pediatric heart transplant recipients and their families

The experiences of parents and caregiver(s) whose child received an organ from a living anonymous liver donor

Long‐term risk of a fatty liver in liver donors

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