Family crisis in the context of bone marrow transplantation: an integrative review

Matsubara, Tatiana Camila; Carvalho, Emı́lia Campos de; Canini, Sílvia Rita Marin da Silva; Sawada, Namiê Okino

doi:10.1590/s0104-11692007000400022

Cited by 8 publications

(7 citation statements)

References 6 publications

(6 reference statements)

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“…Psychological issues among patient families can be developed with bone marrow transplantation [29-31]. However, the long-term, psychological impact of the transplantation on NDS has not been well studied to date [11,12]. Of note, the subject in this study has had emotional distress for more than 20 years since the transplant, suggested by the interpretation of KeyGraph.…”

Section: Discussionmentioning

confidence: 98%

“…A major research method on psycho-social care for patient family is interview-based, qualitative approach and fewer quantative studies [12]. This might be explained by the difficulty to point out key issues from individual experiences of different patient/family.…”

Section: Discussionmentioning

confidence: 99%

“…Donor selection from relatives can occasionally cause psychological conflicts between a donor and other relatives, including non-donor siblings (NDS), which would result in difficult management for continuous medical follow-up. This is a practical concern but has not been well studied in previous reports [11,12]. …”

Section: Introductionmentioning

confidence: 99%

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Data mining of mental health issues of non-bone marrow donor siblings

Takita

Tanaka

Kodama

et al. 2011

J Clin Bioinformatics

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BackgroundAllogenic hematopoietic stem cell transplantation is a curative treatment for patients with advanced hematologic malignancies. However, the long-term mental health issues of siblings who were not selected as donors (non-donor siblings, NDS) in the transplantation have not been well assessed. Data mining is useful in discovering new findings from a large, multidisciplinary data set and the Scenario Map analysis is a novel approach which allows extracting keywords linking different conditions/events from text data of interviews even when the keywords appeared infrequently. The aim of this study is to assess mental health issues on NDSs and to find helpful keywords for the clinical follow-up using a Scenario Map analysis.FindingsA 47-year-old woman whose younger sister had undergone allogenic hematopoietic stem cell transplantation 20 years earlier was interviewed as a NDS. The text data from the interview transcriptions was analyzed using Scenario Mapping. Four clusters of words and six keywords were identified. Upon review of the word clusters and keywords, both the subject and researchers noticed that the subject has had mental health issues since the disease onset to date with being a NDS. The issues have been alleviated by her family.ConclusionsThis single subject study suggested the advantages of data mining in clinical follow-up for mental health issues of patients and/or their families.

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Section: Discussionmentioning

confidence: 98%

Section: Discussionmentioning

confidence: 99%

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Data mining of mental health issues of non-bone marrow donor siblings

Takita

Tanaka

Kodama

et al. 2011

J Clin Bioinformatics

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“…Entretanto, o contrário deve ser avaliado, quando o companheiro ou a pessoa que poderia lhe dar maior apoio não apresenta um comportamento afetuoso e empático, isso pode causar sentimento de solidão e aflição, visto que nesse período o paciente se encontra fragilizado em decorrência da terapêutica. Ademais, a desestruturação familiar também pode ocorrer simultaneamente às complicações pós-TCTH e deverá ser investigada para fornecer dados concretos e subsidiar intervenções de enfermagem que possam auxiliar no enfrentamento da crise (9) .…”

Section: Discussionunclassified

<b>Correlação entre preocupações adicionais e desempenho pessoal com a qualidade de vida na hospitalização para o transplante de células-tronco hematopoiéticas/ Correlation between additional concerns and personal performance with the quality of life in hospitalization for hematopoietic stem cell transplantation<b>

Machado¹,

Marques²,

Lenhani³

et al. 2018

Cienc. Cuid. Saúde

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Objetivou-se correlacionar as preocupações adicionais e o desempenho pessoal com a qualidade de vida geral/global dos pacientes adultos com câncer hematológico, hospitalizados para o transplante de células-tronco hematopoiéticas autólogo e alogênico.Estudo longitudinal, observacional e analítico, realizado em hospital público do sul do Brasil com 55 pacientes. A coleta de dados foi realizada entre setembro de 2013 e novembro de 2015. Foram utilizados os questionários sociodemográfico e clínico, Quality of Life Questionnarie Core-30 e o Functional Assessment of Câncer Therapy – Bone Marrow Transplant. Os dados foram avaliados com o auxílio do software Statística 7.0. A média de idade para o transplante autólogo foi de 45 anos, com predomínio do diagnóstico de mieloma múltiplo; para o alogênico foi de 31 anos com predomínio da leucemia. A qualidade de vida geral/global, o desempenho pessoal e as preocupações adicionais caracterizadas pela imagem corporal, fadiga, sexualidade e apetite apresentaram médias significativamente menores no período de pancitopenia em relação ao basal, com gradativa melhora no período pré-alta hospitalar. Conclui-se que o transplante é uma terapêutica com potencial papel de cura, no entanto, acarreta em impactos negativos nos domínios da qualidade de vida, desempenho pessoal, preocupações adicionais e na experiência de vida dos receptores.

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“…Tais implicações, decorrentes do transplante, atingem tanto o paciente quanto a família, e contam com as intervenções do enfermeiro nessa adaptação para que conquistem um grau desejado de qualidade de vida. A família pode ser considerada aliada na assistência de enfermagem, pois ela pode fornecer a segurança e o apoio psicológico para a readaptação do paciente transplantado ao convívio social ao qual estava habituado (18) . Dessa forma, torna-se imprescindível que essas respostas humanas sejam apreendidas, interpretadas e compreendidas para que o plano de cuidados do profissional atenda às especificidades desse grupo.…”

Section: Discussionunclassified

A Vida Após O Transplante De Medula Óssea: Implicações Para O Cotidiano

Andrade¹,

Castro²,

Santos³

et al. 2012

Cogitare Enferm.

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LIFE AFTER BONE MARROW TRANSPLANT: IMPLICATIONS FOR DAILY ROUTINESABSTRACT: This qualitative study sought to understand the experiences of adults who had submitted to autologous bone marrow transplant and to identify the implications for daily routines in the individuals who had gone through it. Interviews were undertaken, guided by a semi-structured script, with seven adult inpatients who had undergone the transplant, in a country town in the state of Minas Gerais, and who had been discharged between October 2004 and September 2010. Evidence was found for questions relevant to implications for daily routines of the people, with changes in life after the bone marrow transplant. After thematic content analysis, three empirical categories emerged: Withdrawal from work; Sleeplessness: Constant worry about relapses after discharge and Restructuring of one's life after bone marrow transplant -redefining existing. It is concluded that it is necessary to incorporate thoroughly adaptive professional conduct, using different strategies such as creativity, emotion and, above all, scientific knowledge. KEYWORDS: Bone marrow transplant; Adaptation; Routine activities; Emotions.

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Family crisis in the context of bone marrow transplantation: an integrative review

Cited by 8 publications

References 6 publications

Data mining of mental health issues of non-bone marrow donor siblings

Data mining of mental health issues of non-bone marrow donor siblings

A Vida Após O Transplante De Medula Óssea: Implicações Para O Cotidiano

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