Criança com anomalia congênita: estudo bibliográfico de publicações na área de enfermagem pediátrica

Abstract

OBJETIVO: conhecer o que tem sido publicado na área de enfermagem sobre a criança com anomalia congênita. MÉTODOS: foi realizada uma revisão bibliográfica em bases de dados indexadas no período de 1995 a 2005. RESULTADOS: os dados foram categorizados em cinco áreas temáticas: exposição da população a fatores de risco para ocorrência de anomalia congênita; uso de tecnologia para o cuidado à criança com anomalia congênita; avaliação de programas de assistência à criança com anomalia congênita e sua família; capacitação do enfermeiro para cuidar da criança com anomalia congênita; e vivências do profissional enfermeiro, da criança e da família com a anomalia congênita. CONCLUSÃO: o enfermeiro tem buscado fundamentação teórica e prática para cuidar da criança com anomalia congênita, mas existem lacunas no conhecimento em relação às propostas de intervenções de enfermagem na família da criança com anomalia congênita.

Comunicando à mãe o nascimento do filho com deficiência

“…Many professionals can give real and simple information and at the same time, give parents some support and hope about the future (18) .…”

Policies for the inclusion of disabled people: limits and possibilities

“…The critical analysis of the texts took into consideration the fact that the ideas exposed by the authors should answer the following guiding question: Did the PNIPPD generate the targeted impact, capable of guaranteeing that these subjects will actually occupy their social position? Thus, the sample was composed by texts that had as their theme the social inclusion of people with disabilities (2)(3)(4)(5)(6)(7)(8)(9)(10)(11)(12)(13)(14)(15)(16)(17) , the specific legislation for the social inclusion of these subjects (1) , and health care (4,(15)(16) . The articles' focus should be on the respect given to the universality and equity of actions in the Single Health System (14) .…”

“…In terms of health practices, authors agree that the nurses should have an active role in the rehabilitation team, developing health education activities to help rehabilitees to assume self-care and develop a critical transitive consciousness to facilitate social inclusion (3) . Other authors state the relevance of nursing research to focus on people with disabilities and their relatives as well as on the form that these professionals prepare themselves for delivering scientifically-evidenced health care (4) . Based on the ideas presented above, it is understood that the public policy of social inclusion of people with disabilities is an instrument with long-term effects, involving many actors in the decision-making process, and requires implementation, execution, and evaluation.…”

Suffering eases over time: the experience of families in the care of children with congenital anomalies

“…In recent years nurses have searched for a theoretical basis to better deliver care to children with congenital anomalies and their families through studies that focus on understanding the meaning of this experience so as to devise strategies of care delivery to meet their needs (1) .…”