Inquérito sobre a qualidade de vida relacionada à saúde em crianças e adolescentes portadores de artrites idiopáticas juvenis

Brasil, Tatiana Braga; Ferriani, Virgínia P.; Machado, C. R.

doi:10.1590/s0021-75572003000100011

Cited by 12 publications

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“…[11][12][13] Quality of life of rheumatic patients -Carvalho MF et al The result shown by the CHQ of patients with rheumatic fever revealed median values similar to those found in other studies involving children with chronic diseases such as: attention deficit disorder, asthma, epilepsy, psychiatric diseases, juvenile idiopathic arthritis, among others. 3,5,7,[9][10][11][12] When analyzing the results of healthy Brazilian children on the CHQ, we found that they had lower scores on CHANGE, followed by alterations on BE and PE. 6 Some studies have used other generic questionnaires, such as the Peds QL TM , which was administered to children with chronic diseases and their guardians, and these studies have found discordant results regarding the quality of life of the children investigated.…”

Section: Discussionmentioning

confidence: 86%

“…The scores revealed in these groups are presented in Table 1, as well as the scores resulting from the administration of the questionnaire to healthy children in the study that validated the instrument in Brazil. [5][6][7][8][9][10] The objective of the present study is to assess the quality of life of patients with rheumatic fever receiving outpatient treatment at two public hospitals that are centers of excellence for the treatment of rheumatic fever in the municipality of Rio de Janeiro (RJ).…”

Section: Introductionmentioning

confidence: 99%

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Qualidade de vida de crianças e adolescentes portadores de febre reumática

Carvalho¹,

Bloch²,

Oliveira³

2009

J. Pediatr. (Rio J.)

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Quality of life is a very subjective concept and it can be defined as the perception of the individuals of their own position in life in the context of the culture and value systems of the country where they live in relation to their goals, expectations, standards, and concerns. 1 When trying to identify the aspects of life that are the most deeply affected by the disease and/or treatment, patients with chronic diseases reveal stronger concerns.Rheumatic fever requires long-term prophylactic treatment, including painful administration of intramuscular medication, which can result in frequent psychological disorders and treatment dropout. Another factor that Abstract Objective: To assess the quality of life of patients with rheumatic fever receiving outpatient treatment at two hospitals.Methods: Cross-sectional study using the Child Health Questionnaire (CHQ) administered to the parents of 133 patients with rheumatic fever aged between 5 and 18 years. The scores of the several dimensions of the questionnaire were calculated and compared within the categories of clinical and sociodemographic variables using a nonparametric test.Results: Patients' age ranged from 5 to 18 years old, with a mean age of 12 years and standard deviation of 2.8 years. The most common manifestation of the disease was articular symptoms associated with cardiac problems, present in 74 cases (56.1%). Most patients belonged to low-income families. Subjects had higher scores on the following concepts of the questionnaire: physical functioning, role/social-physical; role/social-emotional/behavioral; bodily pain; and family activities. The items with the lowest scores were: family cohesion; general health; global behavior; and parental impact-emotional. Girls had higher scores on: self-esteem; role/social-emotional/behavioral; and general health. Patients belonging to middle-income families had higher scores on: mental health; physical functioning; role/social-physical; and family activities. Children from the lowest social class had higher scores on bodily pain and psychosocial aspects. Conclusions:The quality of life of patients with rheumatic fever is similar to that of patients with other chronic diseases, showing intermediate scores on the several concepts included both in the physical and the psychosocial domains. Social class was the variable most frequently associated with the CHQ concepts.

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Section: Discussionmentioning

confidence: 86%

Section: Introductionmentioning

confidence: 99%

Qualidade de vida de crianças e adolescentes portadores de febre reumática

Carvalho¹,

Bloch²,

Oliveira³

2009

J. Pediatr. (Rio J.)

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“…O resultado apresentado no CHQ de pacientes com febre reumática mostrou medianas próximas às observadas em outros estudos de crianças com doenças crônicas tais como: distúrbio de déficit de atenção, asma, epilepsia, doenças psiquiátricas, artrite idiopática juvenil e outras 3,5,7,[9][10][11][12] . Ao observarmos os resultados do CHQ em crianças brasileiras saudáveis, verificamos que elas tiveram pior desempenho no item CHANGE, seguida por alteração no BE e PE 6 .…”

Section: Discussionunclassified

“…O CHQ foi construído utilizando algumas doenças crônicas como modelos clínicos, e os escores obtidos nesses grupos são apresentados na Tabela 1, assim como os obtidos com a aplicação do questionário em crianças saudáveis no estudo de validação do instrumento no Brasil [5][6][7][8][9][10] .…”

Section: Introductionunclassified

Quality of life of children and adolescents with rheumatic fever

Carvalho

Bloch²,

Oliveira³

2009

J Pediatr (Rio J)

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Objective: To assess the quality of life of patients with rheumatic fever receiving outpatient treatment at two hospitals.Methods: Cross-sectional study using the Child Health Questionnaire (CHQ) administered to the parents of 133 patients with rheumatic fever aged between 5 and 18 years. The scores of the several dimensions of the questionnaire were calculated and compared within the categories of clinical and sociodemographic variables using a nonparametric test. Results:Patients' age ranged from 5 to 18 years old, with a mean age of 12 years and standard deviation of 2.8 years. The most common manifestation of the disease was articular symptoms associated with cardiac problems, present in 74 cases (56.1%). Most patients belonged to low-income families. Subjects had higher scores on the following concepts of the questionnaire: physical functioning, role/social-physical; role/social-emotional/behavioral; bodily pain; and family activities. The items with the lowest scores were: family cohesion; general health; global behavior; and parental impact-emotional. Girls had higher scores on: self-esteem; role/social-emotional/behavioral; and general health. Patients belonging to middle-income families had higher scores on: mental health; physical functioning; role/social-physical; and family activities. Children from the lowest social class had higher scores on bodily pain and psychosocial aspects. Conclusions:The quality of life of patients with rheumatic fever is similar to that of patients with other chronic diseases, showing intermediate scores on the several concepts included both in the physical and the psychosocial domains. Social class was the variable most frequently associated with the CHQ concepts. J Pediatr (Rio J) IntroduçãoA definição de qualidade de vida é muito subjetiva e pode ser descrita como a percepção do indivíduo da sua própria posição na vida, no contexto da sua cultura e dos valores do país onde vive, dependendo dos seus objetivos, expectativas, padrões e preocupações 1 . Constata-se uma preocupação maior em portadores de doenças crônicas, quando se deseja identificar quais são os aspectos da vida que estão sendo mais afetados pela doença e/ou tratamento.A febre reumática é uma doença que necessita de tratamento profilático prolongado, com aplicação dolorosa de medicação intramuscular, o que pode ocasionar distúrbios psicológicos frequentes e abandono de tratamento. Outro

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“…Calidad de Vida infantil ha sido definida como un concepto subjetivo y multimensional que incluye la capacidad funcional y la interacción social del niño y su familia (BRASIL, FERRIANI, MACHADO, 2003). Otros autores, coinciden en su multidimensionalidad y señalan que abarca varios dominios centrales, como condiciones materiales, condición física y habilidades funcionales, interacción social y bienestar emocional (WHITE-KONING M, et al, 2005).…”

Section: Indroducciónunclassified

La calidad de vida infantil y sus dimensiones: percepción de escolares

2015

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ResumenEl estudio pretende evaluar la Calidad de Vida (CV) percibida de escolares, identificar la relevancia de sus dimensiones desde la óptica de niños de escuela pública y particular en Fortaleza-CE, y determinar si la dimensión Rendimiento Escolar se relacionaba con la CV. Participaron 90 niños, entre ocho y once años, que realizaron dos tareas: contestar al cuestionario AUQEI (Manificat & Dazord, 1997) y efectuar el ordenamiento de dimensiones de CV. También fue correlacionado el rendimiento escolar com la puntuación final del AUQEI. Fue comprovado que la CV de los niños fue satisfactoria aunque con diferencia significativa a favor de los niños de la escuela particular, las dimensiones más relevantes para todos los escolares fueron: Rendimiento, Bienestar Físico y Emocional y Relaciones Interpersonales, con diferencias al analizar las preferencias por tipo de escuela; no hubo relación entre Rendimiento escolar y el puntaje final de CV.Palabras clave: Calidad de vida. Niño. Escuela. IndroducciónCalidad de Vida (CV) es una noción eminentemente humana y abarca varios significados que reflejan conocimientos, experiencias y valores de individuos y colectividades. Tales significados reflejan el momento histórico, la clase social y la cultura a que pertenecen los individuos (MINAYO et. al, 2000;DANTAS, SAWADA, MALERBO, 2003). Schalock y Verdugo (2003) acentúan que los conceptos y modelos de CV cambian potencialmente de país para país e incluso de región para región dentro de un mismo país.Desde una perspectiva histórica, los estudios sobre CV infantil son menos numerosos que en adultos (EISER, MORSE, 2001) y han sido realizados predominantemente en el campo de la Calidad de Vida relacionada a la Salud (CVS), investigando niños con

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Inquérito sobre a qualidade de vida relacionada à saúde em crianças e adolescentes portadores de artrites idiopáticas juvenis

Abstract: The responsiveness of two health related quality of life tools indicates their relative sensitivity for assessing clinical improvement during active treatment in Juvenile Idiopathic Arthritis patients.\par

Cited by 12 publications

References 12 publications

Qualidade de vida de crianças e adolescentes portadores de febre reumática

Qualidade de vida de crianças e adolescentes portadores de febre reumática

Quality of life of children and adolescents with rheumatic fever

La calidad de vida infantil y sus dimensiones: percepción de escolares

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