Discontinuity of outpatient follow-up of risk children: perspective of mothers

Abstract

Objective: to identify aspects that contribute to the discontinuation of outpatient follow-up of newborns from Neonatal Intensive Care Units (NICU) from the perspective of mothers. Method: exploratory, qualitative study, whose theoretical framework was Symbolic Interactionism. Fifteen mothers of children with NICU who discontinued outpatient follow-up in Belo Horizonte-MG were included in a semi-structured interview. Data were analyzed based on the proposal of Hsieh and Shannon. Results: distance from the health service, absence of family support, difficulty in leaving work, maternal health status, organization of the health service itself and deficiency of public transportation were predisposing factors for outpatient abandonment. Mothers understand that their children do not need differentiated care of children at usual risk. Conclusion: service organization, socioeconomic status of the family and social support perceived by mothers were related with the lack of compliance with outpatient follow-up.

Measurement of Family Management in Families of Individuals With Down Syndrome: A Cross-Cultural Investigation

“…The FaMM instrument development study provided strong evidence of the reliability and validity of the FaMM for families in the United States with a child having a chronic physical condition (Knafl et al, 2011), and a more recent analysis provided evidence of the applicability of the FaMM for studying families of individuals with DS (Van Riper et al, 2018). Translation and cultural adaptation of the FaMM into the seven language versions used in this analysis was done using a multistep process based on existing literature concerning translation and cultural adaptation of research measures (e.g., Beaton et al, 2000;Gjersing et al, 2010).…”

“…This analysis was part of a larger cross-sectional, cross-cultural study examining family factors associated with adaptation in families of individuals with DS lead by the first author (Caples et al, 2018;Van Riper et al, 2018). Data for this analysis come from parents' responses to the Dutch, English, Italian, Japanese, Korean, Portuguese, Spanish, or Thai versions of the FaMM.…”

“…Prior studies assessed parents' perceptions of family management using the Family Management Measure (FaMM) (see "Method" section and Table 1) and reported a significant relationship between family management and child and family outcomes across a broad array of chronic conditions, but excluding those associated with intellectual disability (Deatrick et al, 2018;Knafl et al, 2011Knafl et al, , 2013Mendes et al, 2016). Recently, our team evaluated the appropriateness of the FaMM for use with families of individuals with DS (Van Riper et al, 2018). Based on the analysis of FaMM data from parents in the United States (539 parents who had a son or daughter with DS and 571 parents who had a son or daughter with a chronic physical condition), we established the reliability of the measure for use with DS samples and its ability to differentiate family management strengths and areas of difficulty in families with a child with DS versus a chronic physical condition.…”

Transição Nutricional E Epidemiológica Em Comunidades Tradicionais Da Amazônia Brasileira

“…Sendo assim, considerando que as mudanças são inevitáveis e fazem parte do conceito de dinâmica biocultural, os adeptos da visão não-pessimista acreditam que as organizações sociais, a partir da permanente integração de aspectos externos aos internos, têm a capacidade de se reorganizar em uma nova realidade, que por sua vez é resultante do contínuo embate dialético entre a "tradição" e a "modernidade", esta última representada por elementos da economia de mercado e da sociedade de consumo. Assim, a valorização social, econômica e cultural do modo de vida tradicional é fundamental para que a balança pese a seu favor (SILVA, 2019).…”

“…Caracterizada por uma baixa densidade demográfica, esta região abriga em torno de 12,5 % da população nacional, sendo que 70 % dos seus habitantes moram nas capitais e núcleos urbanos dos seus nove Estados (IBGE, 2010). Infelizmente, este complexo ecossistema, fundamental para o equilíbrio ambiental do planeta, vem sendo explorado de maneira predatória, o que compromete seus recursos naturais e a sobrevivência das populações amazônicas, principalmente dos povos indígenas e das comunidades tradicionais, compostas por quilombolas, camponeses, ribeirinhos, pescadores e extrativistas, que são "invisibilizados" frente aos interesses econômicos do grande capital nacional e internacional (SILVA, 2019).…”