Network and Social Support in Children With Chronic Diseases: Understanding the Child's Perception

Silva, Maria Elizabete de Amorim; Moura, Flávia Moura de; Albuquerque, Tarciane Marinho; Reichert, Altamira Pereira da Silva; Collet, Neusa

doi:10.1590/0104-07072017006980015

Cited by 31 publications

(41 citation statements)

References 18 publications

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“…Another damaging factor is social isolation. Families with tracheostomized children tend to be socially isolated because of their many daily activities, concerns about the child's risk of pathogen exposure, and embarrassment in performing care procedures on the tracheostomized child in public (3)(4)(5) .…”

Section: Introductionmentioning

confidence: 99%

Social support of families with tracheostomized children

Lemos

Mendes-Castillo

2019

Rev. Bras. Enferm.

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Objective:To understand the social support of families with tracheostomized children. Method: Qualitative study using the Model of Dimensions of Social Support together with the Family System-Illness model as theoretical frameworks, based on the hybrid model of thematic analysis. Nine families with tracheostomized children were interviewed in an outpatient pediatric otorhinolaryngology department of a public hospital in the inner state of São Paulo. Results: The experience of social support to each phase of the family experience was presented in three themes: "Knowing the need for a tracheostomy", "Performing a tracheostomy" and "Living with a tracheostomy". Final considerations: Understanding how the experience of social support occurs can support assessment and intervention strategies, aiming to meet the demands of the family at each phase of its trajectory, collaborating for a continuous and integral nursing care. RESUMOObjetivo: compreender o apoio social de famílias de crianças traqueostomizadas. Método: estudo qualitativo que utilizou como referenciais teóricos o modelo de Apoio Social e suas Dimensões e o modelo Sistema Familiar-Doença, e cuja análise foi pautada pelo modelo Híbrido de Análise Temática. Foram entrevistadas nove famílias de crianças traqueostomizadas em acompanhamento no serviço ambulatorial de otorrinolaringologia pediátrica de um hospital público do interior do estado de São Paulo. Resultados: a experiência de apoio social peculiar a cada fase da experiência da família foi apresentada em três temas: "Saber da necessidade de traqueostomia" "Realizar a traqueostomia" e "Conviver com a traqueostomia". Considerações Finais: compreender como se dá a experiência do apoio social pode subsidiar estratégias de avaliação e intervenção, visando atender às demandas da família em cada fase de sua trajetória, colaborando para uma assistência de Enfermagem contínua e integral. RESUMENObjetivo: Entender el apoyo social de las familias con niños traqueostomizados. Método: Estudio cualitativo en que se utilizó como marco teórico el modelo de apoyo social y sus dimensiones y el modelo sistema familiar-enfermedad, y en el análisis se utilizó el modelo híbrido de análisis temático. Se entrevistó a nueve familias con niños traqueostomizados en seguimiento en el Servicio Ambulatorio de Otorrinolaringología Pediátrica de un hospital público del interior del estado de São Paulo. Resultados: La experiencia de apoyo social específico a cada fase de la experiencia de la familia ocurre de tres maneras: "Saber de la necesidad de la traqueostomía", "Realizar la traqueotomía" y "Convivir con la traqueotomía". Consideraciones finales: El entendimiento sobre cómo ocurre la experiencia del apoyo social puede permitir que se establezcan estrategias de evaluación e intervención, para atender las demandas de la familia en cada fase de su trayectoria y colaborar con una asistencia de enfermería continua e integral.

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Section: Introductionmentioning

confidence: 99%

Social support of families with tracheostomized children

Lemos

Mendes-Castillo

2019

Rev. Bras. Enferm.

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“…In the participants' perception, the term "social network" was identified as social support, or as aspects related to the socioeconomic and environmental context of families of children with chronic diseases. Although some studies do not make a distinction between the concepts of social network and social support, assuming that having social relations is equivalent to obtaining support from the network (12,15) , others presuppose independence between these terms (6)(7)(8) , since the social network may or may not have the necessary support to confront a problem.…”

Section: Discussionmentioning

confidence: 99%

“…From this perspective, the importance of health professionals knowing the type of network and social support that families of children with chronic diseases can count on in their daily relationship with family, neighbors, friends, schoolmates or members of public and private institutions is emphasized (6,9,13,16) . The action of these professionals can contribute to the expansion and strengthening of social support networks, by reducing family isolation, creating new bonds and effective assistance in the care of children with chronic conditions, improving their quality of life at the beginning and throughout the course of the disease (13,(16)(17) .…”

Section: Discussionmentioning

confidence: 99%

“…In relation to the conditions of life of children with chronic diseases, evidence shows that the everyday family can be marked by several alterations, such as: anxiety, concern of parents and relatives, distress, detachment of family members, overload of caregivers, hospitalizations, conflicts, need for home adequacy, decrease of family income, stress, fear, and social isolation, among other issues. These alterations are more accentuated when the family cannot count on a social network for the children's care (6)(7) .…”

Section: Introductionmentioning

confidence: 99%

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Social network of children with cronic disease: knowledge and practice of nursing

2020

Self Cite

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Objectives:To identify the knowledge and practice of primary care nurses about the social network approach for fa milies of children with chronic diseases. Methods: Qualitative research, conducted by means of interviews with 23 family health nurses, from one municipality in Paraíba and one in Rio de Janeiro, from June to July of 2017. The data were interpreted using thematic analysis. Results: Social network meant institutional support offered by services outside the unit, and socioeconomic problems involved the family context. In practice, nurses find it difficult to provide comprehensive care and establish ties with families. When referring to other professionals, a weakness in the counter-referral to the family health unit is found. Final considerations: Some gaps were found regarding the knowledge and practice of nurses regarding the social network approach, which requires professional training to strengthen social relationships and the necessary support for families of children with chronic diseases.

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“…To this end, the adequate support provided by the social network of adolescents' friends acts as an important support to minimize the suffering of these individuals. 21 For the adolescent with CRF, the search for life quality involves overcoming and understanding the situation that encompasses renal disease, since this is a factuality in which the adolescent is inserted, a situation in which he/she has to deal with the new and the unknown.…”

Section: Being Adolescent With Chronic Renal Diseasementioning

confidence: 99%

Being adolescent with chronic renal failure: a view through existential phenomenology

Souza

Melo

2018

Esc. Anna Nery

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Objective: To understand adolescent's experiences with chronic renal failure disease, attended in a pubic teaching hospital at São Paulo state. Method: Phenomenological study, based on the philosophical reference of Martin Heidegger, with six adolescents interviewed by the following question: "What is it like to be an adolescent with chronic renal failure?" Results: Three ontological categories emerged: feeling different; experiencing renal insufficiency through renal replacement therapy; seeking normality. Conclusion:It was evidenced that the experiences of these adolescents were demonstrated by their behaviors of acceptance and denial, both related to chronic renal failure as a peculiar condition of their lives. Implications for practice: It is crucial that nursing directs a more careful look at adolescents with chronic renal failure, going beyond the disease and also considering the particularities of the adolescents necessary to face the adversities that arise from this experience. Heidegger, con seis adolescentes entrevistados por la pregunta: "¿Cómo es ser adolescente con insuficiencia renal crónica?" Principales resultados: Tres categorías ontológicas emergieron: sintiéndose diferente; vivenciando la insuficiencia renal por medio da terapia renal substituta; buscando la normalidad. Conclusión: Se evidenció que las vivencias de estos adolescentes fueron expresadas por comportamientos, tanto de aceptación, como de negación, ambos relacionados a la insuficiencia renal crónica como condición peculiar de sus vidas. Implicaciones para la práctica: Es imprescindible que la enfermería direccione especial atención a los adolescentes con insuficiencia renal crónica, además de la enfermedad, y considerando las particularidades de los individuos.

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Network and Social Support in Children With Chronic Diseases: Understanding the Child's Perception

Cited by 31 publications

References 18 publications

Social support of families with tracheostomized children

Social support of families with tracheostomized children

Social network of children with cronic disease: knowledge and practice of nursing

Being adolescent with chronic renal failure: a view through existential phenomenology

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