The Bukhali trial is being implemented with young women (18-28 years) in Soweto, South Africa. A qualitative longitudinal study was conducted to explore Bukhali trial participants’ perceptions of health and their health behaviours over time and in the context of their life circumstances. This article reports an interpretation of interview data from a sub-sample of 11 of 35 participants who participated in four interviews conducted over 12 months. A longitudinal case analysis approach was applied, and four themes were developed: life circumstances, perceptions of health, health behaviours and changes, and experiences of the trial. Participants experienced largely challenging life circumstances characterised by instability and lack of security in terms of employment and education. Their health and health behaviour trajectories also lacked stability and were fragile within the Soweto context. Data were also interpreted through the lens of a concept previously explored in Soweto and introduced in the final interview: ukuphumelela (‘flourishing’). This concept provided a useful framework for understanding the dominance of external or structural (versus internal or personal) factors and social dynamics influencing the health behaviour and life trajectories of participants, particularly in terms of success in the face of difficulty. Participants’ experiences of the trial highlighted the critical role of support provided by and trust established with trial staff. This longitudinal qualitative approach provides unique perspectives about the Bukhali trial over time, the importance of contextualising health behaviour change, and the variable instability impacting the participants, outcomes and implementation of Bukhali in Soweto, a vulnerable setting.
Introduction: Informal caregivers are the backbone of recovery for people with severe mental disorders in South Africa, particularly in rural areas where access to mental health services is limited. While their unique contribution and the subsequent burden arising from occupying the role of informal caregiver are acknowledged, there is limited evidence on the extent of the subjective and objective burdens among informal caregivers of people with severe mental disorders in rural areas. This article reports on a study that aimed to establish the extent of subjective and objective burdens among informal caregivers of people with severe mental disorders in rural South Africa. Methods: A descriptive quantitative cross-sectional design was used. Data were gathered through structured interviews with 170 informal caregivers of people with severe mental disorders attending an outpatient clinic at a rural hospital in South Africa. A structured questionnaire guided the interviews and included demographics and caregiving characteristic information. Montgomery, Gonyea and Hooyman's scale was used to assess objective and subjective burdens. Data was analysed descriptively using Stata v15. Results: The majority of the participants were female informal caregivers (83.5%) between the ages of 45 and 64 years (45.3%), Rural and Remote Health rrh.org.au
Background Caregiver burden is highly prevalent among the informal caregivers of persons with severe mental disorders (SMDs). As such, strategies to support informal caregivers are necessary to enable them to cope with their caregiving role. Currently, there is limited evidence on the extent of existing strategies for supporting informal caregivers of persons with SMDs in transitional countries. Objective This study presents a scoping review protocol to identify and describe the extent and type of evidence on the existing strategies for alleviating caregiver burden among informal caregivers of persons with SMDs in transitional countries. Methods This scoping review will be conducted using the Joanna Briggs Institute’s methodology for scoping reviews. The participants, concept, and context framework will be used to select relevant studies. This review will include studies on strategies for addressing caregiver burden among informal caregivers, with a specific focus on studies outlining caregiver interventions, caregiver support, and policies with strategies for supporting informal caregivers of persons with SMDs. Relevant studies conducted in transitional countries will be considered for inclusion. There will be no restrictions on publication type or design. Published literature will be accessed by searching electronic databases, including PubMed, MEDLINE, CINAHL, and PsycINFO; ProQuest will be used to access gray literature. Additionally, the reference lists of key studies will be reviewed to identify studies for inclusion. The search will be restricted to articles published between 2011 and 2021. Two reviewers will work independently to screen all abstracts and full texts for inclusion in line with the set inclusion criteria. Extracted data will be categorized and described using descriptive qualitative content analysis. Results This protocol will guide a scoping review to identify and describe the extent and type of evidence on the existing strategies for alleviating caregiver burden among informal caregivers of persons with SMDs in transitional countries. The main results of this scoping review will synthesize evidence from peer-reviewed and gray literature sources outlining various services and interventions for supporting informal caregivers of people with SMDs in transitional countries. In addition, existing gaps in the literature will be identified to inform future studies. Conclusions The increase in caregiver burden among informal caregivers in mental health warrants the development and implementation of strategies for alleviating the burden. This scoping review aims to increase awareness on the various services and intervention strategies for alleviating burden among informal caregivers in transitional countries. International Registered Report Identifier (IRRID) RR1-10.2196/44268
BACKGROUND Caregiver burden is highly prevalent among the informal caregivers of persons with severe mental disorders. As such, strategies to support informal caregivers are necessary to enable them to cope with their caregiving role. Currently, there is limited evidence on the extent of existing strategies for supporting informal caregivers of persons with severe mental disorders in developing countries. OBJECTIVE This study presents a scoping review protocol to identify and describe the extent and type of evidence on the existing strategies for alleviating caregiver burden among informal caregivers of persons with severe mental disorders in developing countries. METHODS This scoping review will be conducted using the Joanna Briggs Institute methodology for scoping reviews. The participants, concept, and context (PCC) framework will be used to select relevant studies. This review will include studies on strategies for addressing the caregiver burden among informal caregivers with a specific focus on studies outlining caregiver interventions, caregiver support, and policies with strategies for supporting informal caregivers of persons with severe mental disorders. Relevant studies conducted in developing countries will be considered for inclusion. There will be no restrictions on publication type and design. Published literature will be accessed by searching electronic databases, including PubMed, MEDLINE, CINAHL and PsycINFO; ProQuest will be used to access the grey literature. Additionally, the reference lists of key studies will be reviewed to identify studies for inclusion. The search will be restricted to articles published between 2011 and 2021. Two reviewers will work independently to screen all abstracts and full texts for inclusion in line with set inclusion criteria. Extracted data will be categorized and described using descriptive qualitative content analysis. RESULTS This protocol will guide a scoping review to identify and describe the extent and type of evidence on the existing strategies for alleviating caregiver burden among informal caregivers of persons with severe mental disorders in developing countries. The main results of this scoping review will synthesize evidence from peer-reviewed and grey literature sources outlining various services and interventions for supporting informal caregivers of people with severe mental disorders in developing countries. In addition, existing gaps in the literature will be identified to inform future studies. CONCLUSIONS There is an increasing call for the development and implementation of strategies for alleviating caregiver burden amongst informal caregivers in mental health. The results of this review will be used to inform the development of strategies for supporting the informal caregivers of persons with severe mental disorders in rural South Africa. CLINICALTRIAL The scoping review was not registered on PROSPERO in accordance with their guidelines.
IntroductionChildren with developmental disability (DD) may depend on their family caregivers to fulfil their complex health needs. Family caregivers are generally described as persons providing unpaid for services for the child with DD at home who need to be supported in a manner that supports and promotes his/her well-being. This review aims to identify and map the range of interventions available for caregivers of children between the ages of 5–16 with DD.Methods and analysisThe methodological framework for conducting scoping review as published by Arksey and O’Malley and the Joanna Briggs Institute’s guidelines will used in this study. Primary research articles will be obtained through a systematic search of CINAHL, Psych INFO, PubMed, ERIC and COCHRANE Library. Further grey literature will be obtained from Google Scholar search. Study selection process will be done by two independent researchers based on a predetermined inclusion criteria. Review findings comprising interventions, intervention components and outcomes will be presented using tables and narrative text.DiscussionThe proposed scoping review will give an extensive review of interventions aimed at improving the well-being of caregivers of children with DD. This scoping review would provide recommendations on interventions that have significantly improved the well-being caregivers of children with DD. Additionally, the review would guide future work on intervention development and primary research in this field.RegistrationThis scoping review protocol has been registered with the Open Science Framework (https://osf.io/tkbrh).
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
hi@scite.ai
10624 S. Eastern Ave., Ste. A-614
Henderson, NV 89052, USA
Copyright © 2024 scite LLC. All rights reserved.
Made with 💙 for researchers
Part of the Research Solutions Family.