Extent of caregiver burden among informal caregivers of persons with severe mental disorders in rural South Africa

Silaule, Olindah; Nkosi, Nokuthula Gloria; Adams, Fasloen

doi:10.22605/rrh7509

Cited by 5 publications

(2 citation statements)

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“…Participants were purposely selected from the first quantitative study that aimed to establish the extent of caregiver burden among the informal caregivers of persons with SMDs. 37 During the first study, potential participants who expressed interest were recorded. Once this study commenced, participants were contacted telephonically and invited to participate.…”

Section: Research Methods and Designmentioning

confidence: 99%

Health effects of caregiving and coping with severe mental disorders: A caregivers’ experience

Silaule,

Adams,

Nkosi

2024

South African Journal of Psychiatry

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Background: Informal caregivers are an essential health resource in the care of persons with severe mental disorders, particularly in South Africa where access to mental healthcare services is limited.Aim: The study aimed to explore and describe the coping strategies used by informal caregivers and the specific health impacts they face in the context of severe mental disorders in South Africa.Setting: The study was conducted in Bushbuckridge municipality situated in the northeastern parts of Mpumalanga province, South Africa.Methods: A descriptive qualitative methodology was used to conduct semi-structured interviews with 12 purposefully selected participants. Audio-recorded interviews were translated, transcribed and analysed inductively on NVivo12 using reflexive thematic analysis.Results: The themes identified were caregivers’ experience of consequences of caregiving and caregivers’ experience of coping with their caregiving role. Participants experienced negative consequences on their emotional, mental and physical health. The participants use internal and external resources to cope with the challenges they face, and many highlighted using emotion-focused coping strategies.Conclusion: The findings revealed an urgent need to develop support strategies to strengthen informal caregivers’ coping and promote good health particularly in rural South Africa where informal caregivers play a crucial role in the management of severe mental disorders.Contribution: The finding demands that policymakers and healthcare providers prioritise the health and well-being of the informal caregivers. There should be policies targeted specifically at developing and implementing caregiver-orientated healthcare services.

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Section: Research Methods and Designmentioning

confidence: 99%

Health effects of caregiving and coping with severe mental disorders: A caregivers’ experience

Silaule,

Adams,

Nkosi

2024

South African Journal of Psychiatry

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“…Informal caregivers in rural or remote areas face additional objective burdens such as poor access to services, lack of integration of mental health into community health services [29], and poor intersectoral collaboration. They often have to wait long hours before any support arrives, and in many cases, they have to deal with challenges with the limited resources they have available.…”

Section: Support Strategies For Caregiversmentioning

confidence: 99%

Strategies to Alleviate the Burden Experienced by Informal Caregivers of Persons With Severe Mental Disorders in Low- and Middle-Income Countries: Scoping Review

Silaule,

Casteleijn,

Adams

et al. 2024

Interact J Med Res

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Background There is considerable evidence of the burden of care encountered by informal caregivers of persons with severe and enduring mental health conditions in low- and middle-income countries. Previous studies have highlighted the need to support these informal caregivers as key players in the care of these patients. To date, limited evidence exists on the extent and types of strategies for supporting these informal caregivers in low- and middle-income countries. Objective This scoping review aims to identify and describe the extent and type of evidence on the existing strategies for alleviating the burden of care among informal caregivers of persons with severe and enduring mental health conditions in low- and middle-income countries. Methods A systematic literature search was completed following the Joanna Briggs Institute methodology for scoping reviews. The participants, concept, and context framework was used to guide the search for literature sources across 5 databases: PubMed, MEDLINE, CINAHL, and PsycINFO for published literature and ProQuest for unpublished literature. This review included studies that reported on strategies for alleviating the burden of care among informal caregivers of persons with severe and enduring mental health conditions, with a focus on studies that evaluated or recommended caregiver interventions and support strategies in low- and middle-income countries. The search was limited to studies conducted between 2001 and 2021, and only papers written in English were considered for inclusion. Using the Covidence software (Veritas Health Innovation), 2 reviewers independently screened the papers, applied the inclusion and exclusion criteria, and met biweekly to discuss and resolve conflicts. The relevant studies and reported outcomes were summarized, organized, and analyzed descriptively using numeric summary analysis and deductive content analysis. Results Of the 18,342 studies identified, 44 (0.24%) met the inclusion criteria. The included studies were from 16 low- and middle-income countries in Asia, Africa, Europe, and South and North America. Most studies (21/44, 48%) were randomized controlled trials conducted in Asian countries. The identified strategies were grouped into 2 categories: implemented and recommended intervention strategies. Identified strategies included community-based interventions, psychoeducation interventions, support groups, cognitive behavioral therapy, spirituality-based interventions, and smartphone-based interventions. In addition, mindfulness and empowerment, collaborative interventions, standard care, financial and social support, counseling, occupation-based interventions, policy and legislature, and access to mental health care were identified. Psychoeducation and support group interventions were identified as common strategies for alleviating the burden of care among informal caregivers of persons with severe and enduring mental health conditions. Conclusions This review provides evidence on the types of implemented and recommended strategies for alleviating the burden of care among informal caregivers in low- and middle-income countries. Although psychoeducational interventions were the most preferred strategy for alleviating burden, their benefits were short-lived when compared with peer-led support groups. International Registered Report Identifier (IRRID) RR2-10.2196/44268

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The Realities of Caring for a Person with a Mental Disorder in Rural and Remote Capricorn District of South Africa: A Qualitative Study

Nkomo,

Kekana

2024

Community Ment Health J

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In rural African communities, family caregivers shoulder the responsibility of caring for loved ones with mental disorders, often without professional support. This qualitative explorative study, conducted in Limpopo Province, South Africa, aimed to explore the realities of caring for a family member with a mental disorder in rural and remote Capricorn District, in order to uncover insights that can inform support systems, the academic community, interventions, and policies. Non-probability purposive sampling was used to ensure the reproducibility and validity of the results by focusing on participants who are actively involved in caregiving, living in the rural and remote of Capricorn District, in order to provide a comprehensive understanding of their experiences, and this resulted in 15 participants (13 females, 2 males). Data saturation determined the sample size, with data collected through in-depth interviews and analyzed using Tesch’s open-coding method. The findings revealed that cultural and spiritual beliefs strengthen caregivers, who exhibit resilience and resourcefulness, yet face financial strain, career setbacks, social isolation, and health declines. The study underscores the critical role of healthcare professionals in recognizing and addressing the challenges faced by family caregivers, while also advocating for the academic community to prioritize the development and dissemination of educational programs focused on safe and ethical coping strategies for caregivers and for policymakers to develop comprehensive mental health services that are accessible and culturally sensitive to rural and remote communities. This is essential because the well-being of caregivers directly influences the rehabilitation and community integration outcomes for individuals with mental disorders.

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Extent of caregiver burden among informal caregivers of persons with severe mental disorders in rural South Africa

Cited by 5 publications

References 0 publications

Health effects of caregiving and coping with severe mental disorders: A caregivers’ experience

Health effects of caregiving and coping with severe mental disorders: A caregivers’ experience

Strategies to Alleviate the Burden Experienced by Informal Caregivers of Persons With Severe Mental Disorders in Low- and Middle-Income Countries: Scoping Review

The Realities of Caring for a Person with a Mental Disorder in Rural and Remote Capricorn District of South Africa: A Qualitative Study

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