Strategies for Alleviating the Burden Experienced by Informal Caregivers of Persons With Severe Mental Disorders in Transitional Countries: Protocol for a Scoping Review

Silaule, Olindah; Adams, Fasloen; Nkosi, Nokuthula Gloria

doi:10.2196/44268

Cited by 2 publications

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References 44 publications

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“…This scoping review followed the Joanna Briggs Institute methodology specific to scoping reviews [30]. An a priori protocol for this review has been published [31].…”

Section: Review Methodologymentioning

confidence: 99%

Strategies to Alleviate the Burden Experienced by Informal Caregivers of Persons With Severe Mental Disorders in Low- and Middle-Income Countries: Scoping Review

Silaule,

Casteleijn,

Adams

et al. 2024

Interact J Med Res

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Background There is considerable evidence of the burden of care encountered by informal caregivers of persons with severe and enduring mental health conditions in low- and middle-income countries. Previous studies have highlighted the need to support these informal caregivers as key players in the care of these patients. To date, limited evidence exists on the extent and types of strategies for supporting these informal caregivers in low- and middle-income countries. Objective This scoping review aims to identify and describe the extent and type of evidence on the existing strategies for alleviating the burden of care among informal caregivers of persons with severe and enduring mental health conditions in low- and middle-income countries. Methods A systematic literature search was completed following the Joanna Briggs Institute methodology for scoping reviews. The participants, concept, and context framework was used to guide the search for literature sources across 5 databases: PubMed, MEDLINE, CINAHL, and PsycINFO for published literature and ProQuest for unpublished literature. This review included studies that reported on strategies for alleviating the burden of care among informal caregivers of persons with severe and enduring mental health conditions, with a focus on studies that evaluated or recommended caregiver interventions and support strategies in low- and middle-income countries. The search was limited to studies conducted between 2001 and 2021, and only papers written in English were considered for inclusion. Using the Covidence software (Veritas Health Innovation), 2 reviewers independently screened the papers, applied the inclusion and exclusion criteria, and met biweekly to discuss and resolve conflicts. The relevant studies and reported outcomes were summarized, organized, and analyzed descriptively using numeric summary analysis and deductive content analysis. Results Of the 18,342 studies identified, 44 (0.24%) met the inclusion criteria. The included studies were from 16 low- and middle-income countries in Asia, Africa, Europe, and South and North America. Most studies (21/44, 48%) were randomized controlled trials conducted in Asian countries. The identified strategies were grouped into 2 categories: implemented and recommended intervention strategies. Identified strategies included community-based interventions, psychoeducation interventions, support groups, cognitive behavioral therapy, spirituality-based interventions, and smartphone-based interventions. In addition, mindfulness and empowerment, collaborative interventions, standard care, financial and social support, counseling, occupation-based interventions, policy and legislature, and access to mental health care were identified. Psychoeducation and support group interventions were identified as common strategies for alleviating the burden of care among informal caregivers of persons with severe and enduring mental health conditions. Conclusions This review provides evidence on the types of implemented and recommended strategies for alleviating the burden of care among informal caregivers in low- and middle-income countries. Although psychoeducational interventions were the most preferred strategy for alleviating burden, their benefits were short-lived when compared with peer-led support groups. International Registered Report Identifier (IRRID) RR2-10.2196/44268

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“…This scoping review followed the Joanna Briggs Institute methodology specific to scoping reviews [30]. An a priori protocol for this review has been published [31].…”

Section: Review Methodologymentioning

confidence: 99%

Strategies to Alleviate the Burden Experienced by Informal Caregivers of Persons With Severe Mental Disorders in Low- and Middle-Income Countries: Scoping Review

Silaule,

Casteleijn,

Adams

et al. 2024

Interact J Med Res

Self Cite

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Strategies to Alleviate the Burden Experienced by Informal Caregivers of Persons With Severe Mental Disorders in Low- and Middle-Income Countries: Scoping Review (Preprint)

Silaule¹,

Casteleijn²,

Adams³

et al. 2023

Preprint

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BACKGROUND Informal caregivers of persons with severe mental disorders encounter many profound difficulties and often lack the necessary support strategies to enable them to cope with their caregiving role. OBJECTIVE The aim of this scoping review was to identify and describe the extent of and type of evidence on the existing strategies for alleviating caregiver burden of informal caregivers of persons with severe mental disorders in developing countries. METHODS The Joanna Briggs Institute methodology for scoping reviews was followed using the participants, concept, and context framework to guide the search of five databases. Two reviewers independently screened the papers and applied the inclusion and exclusion criteria. Studies were only included if they outlined interventions and support strategies for alleviating informal caregiver burden in developing countries. Data were synthesised to categorize types of intervention strategies and reported outcomes. RESULTS When the search was completed, 44 papers met the inclusion criteria. The identified intervention strategies include community-based interventions, psychoeducation interventions, support groups, cognitive behavioural therapy, spirituality-based interventions, smart phone-based interventions, mindfulness and empowerment, collaborative interventions, standard care, financial and social support, counselling, occupation-based interventions, policy and legislature, and access to mental health. CONCLUSIONS Most of the implemented and recommended intervention strategies were from Asian countries. More evidence is required to implement and evaluate the effectiveness of these strategies in other developing countries. CLINICALTRIAL N/A

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Strategies for Alleviating the Burden Experienced by Informal Caregivers of Persons With Severe Mental Disorders in Transitional Countries: Protocol for a Scoping Review

Cited by 2 publications

References 44 publications

Strategies to Alleviate the Burden Experienced by Informal Caregivers of Persons With Severe Mental Disorders in Low- and Middle-Income Countries: Scoping Review

Strategies to Alleviate the Burden Experienced by Informal Caregivers of Persons With Severe Mental Disorders in Low- and Middle-Income Countries: Scoping Review

Strategies to Alleviate the Burden Experienced by Informal Caregivers of Persons With Severe Mental Disorders in Low- and Middle-Income Countries: Scoping Review (Preprint)

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