To estimate productivity losses amongst people with impaired vision in Portugal and to investigate explanatory factors associated with non-participation in the labour market. Methods A total of 546 visually impaired individuals participated in face-to-face interviews. Participants were asked about their workforce participation to determine productivity (employment status questionnaire), their health-related quality of life-HRQoL (EQ-5D) and their visual acuity and visual ability (Activity Inventory). Productivity losses included absenteeism and reduction in workforce participation. Logistic regression was used to determine independent factors associated with participation in the labour market. Results From the 546 participants, 50% were retired, 47% were of working age and 3% were students. The employment rate was 28% and the unemployment rate was 21% for the working age sample. For those of working age, productivity losses were estimated at €1.51 million per year, mean of €5496 per participant. The largest contributor to productivity losses was reduced workforce participation, estimated from 159 early retired or unemployed participants. After controlling for visual acuity and ability, younger individuals, with more years of education, without comorbidities and high HRQoL had higher probability of being employed. Conclusions Our findings show a high unemployment rate and high productivity losses amongst people with impaired vision. The probability of being employed was associated with education, HRQoL and comorbidities. We speculate that promoting education and health through effective visual rehabilitation programs may help to increase participation in the labour market. These findings can inform decisions to intervene to reduce the burden of vision loss.
BackgroundThe characteristics of the target group and the design of an epidemiologic study, in particular the recruiting methods, can influence participation. People with vision impairment have unique characteristics because those invited are often elderly and totally or partially dependent on help to complete daily activities such as travelling to study sites. Therefore, participation of people with impaired vision in studies is less predictable than predicting participation for the general population.MethodsParticipants were recruited in the context of a study of prevalence and costs of visual impairment in Portugal (PCVIP-study). Participants were recruited from 4 Portuguese public hospitals. Inclusion criteria were: acuity in the better eye from 0.5 decimal (0.30logMAR) or worse and/or visual field of less than 20 degrees. Recruitment involved sending invitation letters and follow-up phone calls. A multiple logistic regression model was used to assess determinants of participation. The J48 classifier, chi-square and Fisher’s exact tests were applied to investigate the possible differences between subjects in our sample.ResultsIndividual cases were divided into 3 groups: immediate, late and non-participants. A participation rate of 20% was obtained (15% immediate, 5% late). Factors positively associated with participation included years of education, annual hospital attendance, and intermediate visual acuity. Females and greater distance to the hospital were inversely associated with participation.ConclusionIn our study, a letter followed by a phone call was efficient to recruit a significant number of participants from a larger group of people with impaired vision. However, the improvement in participation observed after the phone call might not be cost-effective. People with low levels of education and women were more difficult to recruit. These findings need to be considered to avoid studies whose results are biased by gender or socio-economic inequalities of their participants. Young subjects and those at intermediate stages of vision impairment, or equivalent conditions, may need more persuasion than other profiles.Electronic supplementary materialThe online version of this article (10.1186/s12886-018-0889-9) contains supplementary material, which is available to authorized users.
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Debido a la avanzada edad de la población, esta necesita, cada vez más, la figura de un cuidador principal que controle y se responsabilice de sus cuidados. Nuestro objetivo es evaluar la efectividad de la educación sanitaria a los pacientes y sus cuidadores principales en la disminución de fósforo sérico. Se realiza un estudio de 20 meses de duración con una muestra de 70 pacientes divididos en dos grupos; un grupo control que no recibe educación adicional y un grupo estudio que recibe la educación específica para el control del fósforo y su dieta; en este grupo se identifican los pacientes dependientes que requerirán de un cuidador principal, quien también recibirá educación. Para la identificación del grado de dependencia del paciente se utiliza el Test Delta. El 52.9% de nuestros pacientes son independientes; el 48.2%, presentan dependencia leve, y el 4.3%, una dependencia moderada. El análisis de los resultados pone de manifiesto una disminución significativa del nivel de fósforo sérico en el grupo estudio, consiguiendo que, el 21% de estos pacientes cuyo nivel de fósforo se encontraba por encima de 5.5 mg/dl, lo redujera hasta los niveles normales recomendados (3-5.5 mg/dl). Concluimos que la implicación del personal de enfermería tanto en la educación continua del paciente y de sus cuidadores es necesaria y fundamental para conseguir unos resultados clínicos adecuados.
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