Predicting participation of people with impaired vision in epidemiological studies

Ramos, Pedro Lima; Santana, Rui; Moreno, Laura Hernández; Marques, Ana Patrícia; Freitas, Cristina; Rocha‐Sousa, Amândio; Macedo, António Filipe

doi:10.1186/s12886-018-0889-9

Cited by 8 publications

(8 citation statements)

References 31 publications

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“…Participants were recruited from four public hospitals with ophthalmology departments in northern Portugal between July 2014 and January 2016. Outpatients at the departments with the latest recorded visual acuity of 0.30 logMAR (6/12) or worse in the better seeing eye were invited to take part in the study [ 40 ]. Approximately 3000 patients were invited by letter by their hospital.…”

Section: Methodsmentioning

confidence: 99%

Predictors of problems reported on the EQ-5D-3L dimensions among people with impaired vision in northern Portugal

Macedo

Hellström

Massof

et al. 2022

Health Qual Life Outcomes

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Background The EQ-5D index often fails to detect the effect of ophthalmic diseases and sight loss. Investigating predictors of individual EQ-5D health dimensions might reveal the underlying reasons. The aim of this study was to investigate predictors of health dimension ratings obtained with the EQ-5D-3L from participants with impaired vision representing a spectrum of eye diseases. Methods Observational cross-sectional study with participants recruited at four public hospitals in Portugal. Outpatients with visual acuity of 0.30 logMAR(6/12) or worse in the better-seeing eye were invited to participate. Participants completed two instruments: the EQ-5D-3L (measures participants’ perceived health-related quality-of-life) and the Massof Activity Inventory (measures visual ability–ability to perform vision-related activities). This study used logistic regression models to identify factors associated with responses to the EQ-5D-3L. Results The study included 492 participants, mean age 63.4 years (range = 18–93), 50% females. The most common diagnosis was diabetic retinopathy (37%). The mean visual acuity in the better seeing eye was 0.65 logMAR (SD = 0.48) and the mean visual ability was 0.62 logits (SD = 2.04), the correlation between the two was r = − 0.511 (p < 0.001). Mobility and self-care were the health dimensions with the fewest problems (1% reported extreme problems), anxiety and depression the dimension with the most problems (24% reported extreme problems). ROC curve analysis showed that the EQ-5D index was a poor predictor of cases of vision impairment whilst visual ability given was a good predictor of cases of vision impairment. Visual ability was an independent predictor of the response for all dimensions, higher ability was always associated with a reduced odds of reporting problems. The odds of reporting problems were increased for females in 3 out of 5 dimensions. Comorbidities, visual acuity and age-category were predictors of the odds of reporting problems for one dimension each. Conclusions The odds of reporting problems for the five health dimensions of the EQ-5D-3L were strongly influenced by the ability to perform vision-related activities (visual ability). The EQ-5D index showed poor performance at detecting vision impairment. These findings are informative and relevant for the clinic and for research evaluating the impact of eye diseases and disease treatments in ophthalmology.

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Section: Methodsmentioning

confidence: 99%

Predictors of problems reported on the EQ-5D-3L dimensions among people with impaired vision in northern Portugal

Macedo

Hellström

Massof

et al. 2022

Health Qual Life Outcomes

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“…The third list L3 was obtained from the PCVIP-study, a hospital-based study whose aim was to determine prevalence, causes and costs of VI in Portugal [33][34][35].The study gathered demographic, clinical, and socioeconomic information of people with VI.…”

Section: Methodsmentioning

confidence: 99%

“…The third list L3 was obtained from the PCVIP-study, a hospital-based study whose aim was to determine prevalence, causes and costs of VI in Portugal [35][36][37].The study gathered demographic, clinical, and socioeconomic information of people with VI. Participants were selected among patients attending ophthalmologists' appointments at four Portuguese public hospitals: Hospital de Braga, Hospital Senhora da Oliveira-Guimarães, Hospital de Santa Maria Maior-Barcelos and Centro Hospitalar e Universitário de São João -Porto.…”

Section: Methodsmentioning

confidence: 99%

A cross-sectional study investigating the prevalence and causes of vision impairment in Northwest Portugal using capture-recapture

Ramos

Santana

Marques

et al. 2021

Preprint

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Aim: The aim of this study was to estimate the prevalence and causes of vision impairment (VI) in the Norwest of Portugal. Methods: Information about people with VI was obtained from different sources in the Norwest of Portugal during a period spanning years 2014-2015. Log-linear models were applied to estimate the number of individuals missing from lists of cases obtained from Primary Care Centres, blind association (ACAPO) and from hospitals (the PCVIP-study). Log-linear models were used to estimate the crude prevalence and the category specific prevalence of VI. Causes of VI were obtained from the PCVIP-study. Results: Crude prevalence of VI was 1.97% (95%CI=1.56-2.54), and normalized prevalence was 1% (95%CI=0.78-1.27). The age-specific prevalence was 3.27% (95% CI,=2.36-4.90), older than 64 years, 0.64% (95%CI=0.49-0.88), aged 25-64 years, and 0.07% (95%CI=0.045-0.13), aged less than 25 years. Prevalence amongst females was 1.3x higher than amongst males. The five leading causes of VI were Diabetic Retinopathy, Cataract, Age-related Macular Degeneration, Glaucoma and Disorders of the Globe. Conclusion: The prevalence of VI in Portugal was within the expected range and in line with other European countries. A significant number of cases of VI might be due to preventable cases and, therefore, a reduction of the prevalence of VI in Portugal seems possible. Women and old people were more likely to have VI and, therefore, these groups require extra attention. Future studies are necessary to characterize temporal changes in prevalence of VI in Portugal.

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“…Details of the study can be obtained from our previous publications. [70][71][72][73] At the beginning of 2015, we collected a list of people applying for VI certificates seen at the PCC and at the same time, a list of members of ACAPO for the municipality was provided by the blind association. Despite referral between these three institutions not being a standard part of eye care practice, it is likely that when people ask, for example, for social support at the hospital they are directed to ACAPO and/or to the PCC.…”

Section: Computation Of Prevalencementioning

confidence: 99%

A Review of Capture-recapture Methods and Its Possibilities in Ophthalmology and Vision Sciences

Ramos

Sousa

Santana

et al. 2020

Ophthalmic Epidemiology

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Epidemiological information is expected to be used to develop key aspects of eye care such as to control and minimise the impact of diseases, to allocate resources, to monitor public health actions, to determine the best treatment options and to forecast the consequence of diseases in populations. Epidemiological studies are expected to provide information about the prevalence and/or incidence of eye diseases or conditions. To determine prevalence is necessary to perform a cross-sectional screening of the population at risk to ascertain the number of cases. The aim of this review is to describe and evaluate capture-recapture methods (or models) to ascertaining the number of individuals with a disease (e.g. diabetic retinopathy) or condition (e.g. vision impairment) in the population. The review covers the fundamental aspects of capture-recapture methods that would enable non-experts in epidemiology to use it in ophthalmic studies. The review provides information about theoretical aspects of the method with examples of studies in ophthalmology in which it has been used. We also provide a problem/solution approach for limitations arising from the lists obtained from registers or other reliable sources. We concluded that capture-recapture models can be considered reliable to estimate the total number of cases with eye conditions using incomplete information from registers. Accordingly, the method may be used to maintain updated epidemiological information about eye conditions helping to tackle the lack of surveillance information in many regions of the globe.

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Predicting participation of people with impaired vision in epidemiological studies

Cited by 8 publications

References 31 publications

Predictors of problems reported on the EQ-5D-3L dimensions among people with impaired vision in northern Portugal

Predictors of problems reported on the EQ-5D-3L dimensions among people with impaired vision in northern Portugal

A cross-sectional study investigating the prevalence and causes of vision impairment in Northwest Portugal using capture-recapture

A Review of Capture-recapture Methods and Its Possibilities in Ophthalmology and Vision Sciences

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