Despite some recognition that Aboriginal women who have experienced breast cancer may have unique health needs, little research has documented the experiences of Aboriginal women from their perspective. Our main objective was to explore and to begin to make visible Aboriginal women's experiences with breast cancer using the qualitative research technique, photovoice. The research was based in Saskatchewan, Canada and participants were Aboriginal women who had completed breast cancer treatment. Although Aboriginal women cannot be viewed as a homogeneous group, participants indicated two areas of priority for health-care: (i) Aboriginal identity and traditional beliefs, although expressed in diverse ways, are an important dimension of breast cancer experiences and have relevance for health-care; and (ii) there is a need for multidimensional support which addresses larger issues of racism, power and socioeconomic inequality. We draw upon a critical and feminist conception of visuality to interrogate and disrupt the dominant visual terrain (both real and metaphorical) where Aboriginal women are either invisible or visible in disempowering ways. Aboriginal women who have experienced breast cancer must be made visible within health-care in a way that recognizes their experiences situated within the structural context of marginalization through colonial oppression.
There is a substantive body of research focusing on women's experiences of intimate partner violence (IPV), but a lack of qualitative studies focusing on men's experiences as victims of IPV. This article addresses this gap in the literature by paying particular attention to hegemonic masculinities and men's perceptions of IPV. Men ( N = 9) participated in in-depth interviews. Interview data were rigorously subjected to thematic analysis, which revealed five key themes in the men's narratives: fear of IPV, maintaining power and control, victimization as a forbidden narrative, critical understanding of IPV, and breaking the silence. Although the men share similar stories of victimization as women, the way this is influenced by their gendered histories is different. While some men reveal a willingness to disclose their victimization and share similar fear to women victims, others reframe their victim status in a way that sustains their own power and control. The men also draw attention to the contextual realities that frame abuse, including histories of violence against the women who used violence and the realities of communities suffering intergenerational affects of colonized histories. The findings reinforce the importance of in-depth qualitative work toward revealing the context of violence, understanding the impact of fear, victimization, and power/control on men's mental health as well as the outcome of legal and support services and lack thereof. A critical discussion regarding the gendered context of violence, power within relationships, and addressing men's need for support without redefining victimization or taking away from policies and support for women's ongoing victimization concludes the work.
Widespread silence around cancer reflects both the limited access First Nations people have to formal, supportive programs and services, as well as the creative ways they provide emotional, social, and financial support within their informal networks. Beyond the support of their communities, they also required institutional provision of care that is culturally safe, addressing the colonial impacts on cancer communication and the disproportionate burdens of disease in First Nations communities.
In Canada, Aboriginal peoples often experience a multitude of inequalities when compared with the general population, particularly in relation to health (e.g., increased incidence of diabetes). These inequalities are rooted in a negative history of colonization. Decolonizing methodologies recognize these realities and aim to shift the focus from communities being researched to being collaborative partners in the research process. This article describes a qualitative community-based participatory research project focused on health and body image with First Nations girls in a Tribal Council region in Western Canada. We discuss our project design and the incorporation of creative methods (e.g., photovoice) to foster integration and collaboration as related to decolonizing methodology principles. This article is both descriptive and reflective as it summarizes our project and discusses lessons learned from the process, integrating evaluations from the participating girls as well as our reflections as researchers.
Keywords:Aboriginal peoples, adolescents, youth, health and well-being, photography, photovoice, community-based participatory research Acknowledgements: We especially wish to acknowledge our participants for sharing their knowledge with us. Community partners Janice Kennedy, Jessica Rae Atcheynum, Kimberly Burnouf, Kellie Wuttunee; community research assistants Tanya Delmore, Lillian Blackstar, Sonya Whitecalf; Elder Melvina Thomas; and Iskwewak Miwayawak project co-ordinator Carolyn Brooks for their assistance in carrying out this project.
Little is known about First Nations, Inuit, and Métis (FNIM) women's experiences with cancer, including how they relate to cultural and social factors such as geography, history, racism, identity, traditional values/practices, and spirituality. Research into FNIM women's strengths and challenges in relation to cancer is much needed. Our team, in partnership with Saint Elizabeth Health, is documenting the experiences and needs of 60 FNIM cancer survivors across Canada, using sharing sessions, photography (photovoice), journaling, and film. We will evaluate the impact of photography and journaling on the participants to assist with the future development of supportive programs and health-care delivery. This innovative research will result in a video, which will address gaps in knowledge and care. The video will then be screened in several communities and will be publicly available. In future projects, the findings and video will be used in supportive programs for cancer survivors and in educational initiatives for health professionals.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.