Results: The final ISCIPDS:B contains core questions about clinically relevant information concerning SCIrelated pain that can be collected by health-care professionals with expertise in SCI in various clinical settings. The questions concern pain severity, physical and emotional function and include a pain-intensity rating, a pain classification and questions related to the temporal pattern of pain for each specific pain problem. The impact of pain on physical, social and emotional function, and sleep is evaluated for each pain.
Objectives: To revise the International Spinal Cord Injury Pain Basic Data Set (ISCIPBDS) based on new developments in the field and on suggestions from the spinal cord injury (SCI) and pain clinical and research community. Setting: International. Methods: The ISCIPBDS working group evaluated suggestions regarding the utility of the ISCIPBDS and made modifications in response to these and to significant developments in the field. The revised ISCIPBDS (version 2. shorten it in order to increase its clinical utility. In addition, there has been a significant update of the SCI pain taxonomy. 2,3 For these reasons, the ISCIPBDS working group decided to review and update the current version.Both the original and the revised ISCIPBDS (version 2.0) are intended to be collected by health-care professionals familiar with SCI, and to be used at the initial evaluation as well as at regular follow-up sessions. Data should be collected by interview and each question read to the patient or research participant as worded.The overall purpose of the ISCIPBDS (version 2.0) is unchanged and consistent with the purpose and vision of the International Spinal Cord Injury Data Sets. 4 The ISCIPBDS should be used together with the International SCI Core Data Set, 5 which includes information on date of birth and injury, gender, the cause of the SCI and neurological status including positive and negative sensory signs.
Two studies were designed to examine important predictors of pain following spinal cord injury (SCI), and the impact of pain on self-reported quality of life (QOL). Pain was defined as "interference in day-to-day activities secondary to pain". In order to determine risk factors associated with the development of pain interference, Study 1 examined the predictive validity of multiple demographic, medical, and QOL variables at year 1 post-SCI to self-reported pain interference 2 years post-injury. Results showed that middle age (30-59-year-olds), lower self-reported mental health, and pain interference at 1 year post-SCI were the most important unique predictors of pain interference 2 years post-SCI. In Study 2, participants were separated into four groups; (1) those pain-free at years 1 and 2, (2) those pain-free at year 1 and in pain at year 2, (3) those in pain at year 1 and pain-free at year 2, and (4) those in pain at years 1 and 2. Results showed that only those experiencing a change in pain interference status reported a change in QOL. More specifically, those developing pain interference (group 2) from year 1 to year 2 reported decreased life satisfaction, physical health, and mental health, whereas, those with resolving pain interference from year 1 to year 2 reported an increase in these same domains. Unexpectedly, change in pain interference status was unrelated to change in self-reported handicap. Implications and future directions are discussed.
The authors examined the relation of social problem-solving abilities to trajectories of adjustment of family caregivers in the initial year of their caregiving role. Persons who recently assumed the caregiver role for a family member with a recent-onset spinal cord injury completed measures of problem solving, depression, anxiety, and health during the inpatient rehabilitation program and at 3 other times throughout the year. Hierarchical linear modeling showed that negative problem orientation explained significant variation in the rates of change in caregiver depressive behavior, anxiety, and health complaints. Caregivers with a greater negative orientation were at risk to develop psychological and health problems at a significantly higher rate over the year. Implications for psychological interventions and health policy concerning the needs of family caregivers and their care recipients are discussed.
This is the first demonstration that a carefully planned program with time-calorie displacement diet is effective for overweight/obese individuals with SCI to lose weight without compromising total lean mass and overall health. It provides foundation for a future large clinical trial for weight loss of persons with SCI or other spinal cord dysfunction.
Review of the chronic pain literature reveals that there have been few systematic attempts to devise rating scales which reliably and/or validly quantify pain behavior. The UAB Pain Behavior Scale was designed so that it could be administered rapidly by a variety of pain team personnel without sacrificing interrater reliability. The scale is described along with initial reliability and validity data. A summary of its use with chronic pain patients is presented.
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