The International Spinal Cord Injury Pain Basic Data Set (version 2.0)

Abstract

Objectives: To revise the International Spinal Cord Injury Pain Basic Data Set (ISCIPBDS) based on new developments in the field and on suggestions from the spinal cord injury (SCI) and pain clinical and research community. Setting: International. Methods: The ISCIPBDS working group evaluated suggestions regarding the utility of the ISCIPBDS and made modifications in response to these and to significant developments in the field. The revised ISCIPBDS (version 2. shorten it in order to increase its clinical utility. In addition, there has been a significant update of the SCI pain taxonomy. 2,3 For these reasons, the ISCIPBDS working group decided to review and update the current version.Both the original and the revised ISCIPBDS (version 2.0) are intended to be collected by health-care professionals familiar with SCI, and to be used at the initial evaluation as well as at regular follow-up sessions. Data should be collected by interview and each question read to the patient or research participant as worded.The overall purpose of the ISCIPBDS (version 2.0) is unchanged and consistent with the purpose and vision of the International Spinal Cord Injury Data Sets. 4 The ISCIPBDS should be used together with the International SCI Core Data Set, 5 which includes information on date of birth and injury, gender, the cause of the SCI and neurological status including positive and negative sensory signs.

Characteristics of neuropathic pain and its relationship with quality of life in 72 patients with spinal cord injury

“…Neuropathic pain was classified as at-level, below-level or other pain according to the recent updated SCI pain classification; 4,15 briefly, at-level pain was defined as a dermatomal or segmental distribution at the level of injury. Leg pain in patients with an injury at the cauda equina level was classified as at-level neuropathic pain.…”

International Spinal Cord Injury Upper Extremity Basic Data Set

“…The International SCI Pain Basic Data Set provides a more detailed assessment of pain if required. 4,5 Upper extremity/hand reconstructive surgery. This variable documents if reconstructive surgery has been performed specifically for the improvement of arm and/or hand function.…”

“…1 The International SCI Upper Extremity Basic Data Set is to be used in connection with the International SCI Core Data Set, 2 the International SCI Musculoskeletal Basic Data Set 3 and the International SCI Pain Basic Data Set. 4,5 The International SCI Core Data Set includes information on dates of birth and injury, gender, aetiology of spinal cord lesion and neurological status. It also captures information about the presence of vertebral injury, past surgical interventions, associated injuries, discharge destination and the need for mechanical ventilation.…”

The CanPain SCI Clinical Practice Guidelines for Rehabilitation Management of Neuropathic Pain after Spinal Cord: screening and diagnosis recommendations

“…22 Comprehensive assessment of pain after SCI involves a thorough history and physical examination, and appropriate investigations to identify the (putative) aetiology of pain, the pain subtype classification and the main factors (such as psychosocial and environmental), modulating the pain experience. 23 Although pain descriptors have relatively low specificity for diagnosing pain type, a dull aching pain in an area with preserved sensation is likely nociceptive, whereas a burning pain in an area without sensation is likely neuropathic. Psychosocial and environmental contributing factors, which include mood, cognitions, beliefs, social support, relationships, ergonomics and other factors, also need to be assessed, as effective pain management includes addressing both the pain itself and the contributing factors.…”