Introduction: The family lives sociocultural transformations requesting more of the man in the children's daily cares with deficiency because commonly the mothers wrap up in the tasks causing an overload in the daily tasks. Objective: To verify the paternal participation in the daily care to the child with microcephaly, to trace the paternal socio-demographic profile, to know the main activities performed by the fathers and to analyze their perception in the participation of the children daily cares. Method: This is a quantitative and qualitative study, held in 3 Specialized Centers in Rehabilitation in the city of Maceio, AL, Brazil, with 23 fathers of children with microcephaly, in the period of September of 2017 to February of 2018. For the quantitative component, a specific questionnaire and analysis through descriptive statistics, arithmetic average and percentage were used. In the qualitative component, a semi-structured interview was used that was analyzed through the Analysis of Content.Results: Most of the fathers live with the child, 70% make available 2 hours of time for the son's daily care, and there was a larger paternal engagement in the activities of playing on 74% and social participation on 91%. In the qualitative component, 4 parents participated in the interview, and three thematic categories emerged: Paternal perception and self-assessment regarding the participation in the daily care of the child with microcephaly; Factors associated with paternal engagement in the daily care; and Identification of the activities performed by the fathers in the care to the child with microcephaly. Conclusion: The fathers engaged in daily care to assist the mothers and not as the protagonist. It stands out the need for strategies that favor such participation in the dimensions of the care to the child with a disability.
O estudo objetivou caracterizar o desempenho motor grosso e as oportunidades de estimulação motora presentes no ambiente domiciliar de lactentes com microcefalia por Zika vírus (ZIKV), comparando-os com lactentes sem microcefalia de instituições públicas de saúde do Nordeste do Brasil, além de verificar o impacto da microcefalia e fatores associados nos desfechos avaliados. Estudo caso-controle que foram utilizados dados de nascimento dos lactentes, gestacionais e sociodemográficos maternos, e dos testes: Gross Motor Function Measure (GMFM), Affordances in the Home Environment for Motor Development (AHEMD), e Sistema de Classificação da Função Motora Grossa (GMFCS). Para analisar o impacto da microcefalia nos testes associada a fatores sociodemográficos ou clínicos utilizou-se a regressão linear múltipla. Participaram 40 lactentes com microcefalia por ZIKV, com média de idade de 15,3 (3,1) meses; e 40 lactentes sem acometimento, com média de idade de 14,8 (4,4) meses. 85% dos lactentes com microcefalia por ZIKV classificou no nível V do GMFCS. Diferenças significativas (p<0,001) foram evidenciadas para todas as dimensões do GMFM, para variedade de estimulação, brinquedo motricidade fina e pontuação total do AHEMD, com valores sempre menores nos lactentes com microcefalia por ZIKV. Microcefalia associada a variáveis dos lactentes, maternas e da residência são fatores que podem explicar a pontuação no GMFM (p<0,001). Os resultados reforçam a necessidade de uma assistência integral, centrada na família, uma vez que a resolutividade dos impactos do ZIKV sobre o desenvolvimento motor e o cuidado prestado pelas famílias é uma questão de saúde pública importante.
Resumo Analisou-se a construção de um mobiliário adaptado, a partir da parceria entre setores da saúde e educação, para apoiar a escolarização de uma estudante com paralisia cerebral. A confecção do recurso pautou-se na necessidade de ajustar a postura da estudante, que possui um grave quadro motor, para sua participação independente e autônoma em atividades de roda, no chão. A criação do recurso implicou em recorrentes ajustes, oficinas e elaboração de materiais instrucionais. De modo particular, favoreceu a participação da estudante nas atividades em roda, colocando-a na mesma posição que seus pares e proporcionando maior interação em sala de aula. Abstract We sought to analyze the construction of adapted furniture, based on the association between health and education sectors, to support the schooling of a student with cerebral palsy. The preparation of the resource was based on the need to adjust the position of the student, who has a serious motor picture, for independent and autonomous participation in wheel activities, on the ground. The creation of the resource involved in recurrent adjustments, workshops and the preparation of instructional materials. In a particular way, it favored the participation of the student in the activities in wheel, leaving her in the same position as her peers and providing more interaction in the classroom.Keywords: Special Education; Assistive Technology; Cerebral Palsy.
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