Introduction: Brazil’s HIV burden has greatly increased over the past decade, especially for socially marginalized and vulnerable groups such as adolescents, women, and men who have sex with men. The reasoning for worsening HIV outcomes is complex, but ongoing economic and political crises have placed extreme operational and financial burdens on both the public health system and HIV-related civil society, affecting both treatment and prevention efforts and delivery. Context: Community-based HIV-related health-promotion activities have continued in Nova Iguaçu, Rio de Janeiro, despite these setbacks. These efforts have been led by a semi-independent community advisory board and engagement group based at the Hospital Geral de Nova Iguaçu with support from researchers based at the Oswaldo Cruz Foundation. Methods: The research team supported, documented, and participated in various activities led by the community advisory board and engagement group from 2017–2018 including meetings, community workshops/lectures, production of health promotion materials, and the dissemination of research findings. Results: The research team utilized the concepts of vernacular knowledge and critical pedagogy to describe and document the ongoing, bottom-up approach, community-led efforts of the community advisory board and engagement group. In particular, we describe the process of stakeholder engagement, popularization of research results, and resource sharing spearheaded by the community advisory board in Nova Iguaçu. Conclusion: The community advisory board demonstrates how community-led efforts are essential to HIV and AIDS response efforts in light of worsening HIV burdens and global shifts towards biomedicalization. Their HIV-related activities rely on existing community networks and resources with secondary support from a research team. This illustrates a key intervention point between traditional research and an empowering community mobilization that can inform similar efforts in other low-resource settings.
O presente trabalho traz o relato de experiência do uso do aplicativo WhatsApp, como espaço para mulheres com diagnóstico de câncer de mama formarem um grupo de apoio. Este grupo é intitulado “Poderosas Amigas da Mama” e surge do convívio de mulheres em reabilitação após mastectomia em um município da baixada fluminense do Estado do Rio de Janeiro. Com abordagem qualitativa, este estudo tem como objetivo investigar sobre a contribuição do aplicativo como uma nova ferramenta de pacientes pós-câncer de mama para o enfrentamento da doença através da troca de experiência, apoio social e fortalecimento de vínculos. A análise dos dados ocorre por meio do registro da observação participante na construção do grupo do WhatsApp e da leitura atenta das conversas que nele ocorreram. Para favorecer a reflexão sobre a importância da palavra e do outro num grupo de apoio, utilizou-se alguns conceitos de Bakhtin visto que para ele o ser humano é considerado um intertexto, na medida em que não existe isoladamente, mas se tece com a experiência do outro.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
hi@scite.ai
10624 S. Eastern Ave., Ste. A-614
Henderson, NV 89052, USA
Copyright © 2024 scite LLC. All rights reserved.
Made with 💙 for researchers
Part of the Research Solutions Family.