Human-computer interaction has a long history of working with marginalized people. We sought to understand how HCI researchers navigate work that engages with marginalized people and considerations researchers might work through to expand benefits and mitigate potential harms. In total, 24 HCI researchers, located primarily in the United States, participated in an interview, survey, or both. Through a reflexive thematic analysis, we identified four tensions—exploitation, membership, disclosure, and allyship. We explore the complexity involved in each, demonstrating that an equitable endpoint may not be possible, but this work is still worth pursuing when researchers make certain considerations. We emphasize that researchers who work with marginalized people should account for each tension in their research approaches to move forward. Finally, we propose an allyship-oriented approach to research that draws inspiration from discourse occurring in tangential fields and activist spaces and pushes the field into a new paradigm of research with marginalized people.

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Online dating and hookup platforms have fundamentally changed people’s day-to-day practices of sex and love — but exist in tension with older social and medicolegal norms. This is particularly the case for people with HIV, who are frequently stigmatized, surveilled, ostracized, and incarcerated because of their status. Efforts to make intimate platforms “work” for HIV frequently focus on user-to-user interactions and disclosure of one’s HIV status but elide both the structural forces at work in regulating sex and the involvement of the state in queer lives. In an effort to foreground these forces and this involvement, we analyze the approaches that intimate platforms have taken in designing for HIV disclosure through a content analysis of 50 current platforms. We argue that the implicit reinforcement of stereotypes about who HIV is or is not a concern for, along with the failure to consider state practices when designing for data disclosure, opens up serious risks for HIV-positive and otherwise marginalized people. While we have no panacea for the tension between disclosure and risk, we point to bottom-up, communal, and queer approaches to design as a way of potentially making that tension easier to safely navigate.

Collaborations increasingly draw on personal data. We examine personal-data-supported collaborations in a high stakes, high-performance environment: collegiate sports. We conducted 22 interviews with people from four common roles within collegiate sports teams: athletes, sport coaches, athletic trainers, and strength and conditioning coaches. Using boundary negotiating artifacts as a lens for analysis, we describe an ecology of personal data in collaborations among these four roles. We use this ecology to highlight tensions and foreground issues of power asymmetry in these collaborations. To characterize these power asymmetries in the collaborative use of personal data, we propose an extension of boundary negotiating artifacts: extraction artifacts.

People with multiple chronic conditions (MCC) need support to understand and articulate how their personal values relate to their health and health care. We developed three prototypes for supporting reflection on values and health and tested them in a qualitative study involving 12 people with MCC. We identified benefits and limitations to building on how patients prepare for visits with clinicians; revealed varying levels of comfort with deep, exploratory reflection involving a facilitator; and found that reflection oriented toward the future could elicit hopeful attitudes and plans for change, while reflection on the past elicited strong resistance. We translated these findings into design guidelines for supporting collaborative reflection on values and health. We also discussed these findings in relation to previous literature on designing for reflection in three areas: shifting between self-guided and facilitator-guided reflection, balancing between outcome-oriented and exploratory reflection, and exploring temporality in reflection.

For queer men, sexual imaginaries have come to accomodate hybrid physical and digital location-based cultures (Miles, 2017). In short, what is possible in terms of intimate connections with other queer men has opened up in exciting, sometimes scary, and radical ways. However, this expanded imaginary of what is possible can also lead to an existential questioning of what an individual person wants—simply and nothing more than sex, a fleeting summer fling, a new group of friends, to fall in love? More? Less? A combination of all of these things at different moments in time? In the face of such uncertainty, we argue that queer men develop a range of practices as they negotiate their shifting relationships to sex and romance as mediated through virtual intimacies (McGlotten, 2013). In this study, we explore how queer men learn about, interpret, and reproduce sexual and romantic norms on two dating and hookup platforms, Grindr and Scruff. Our approach builds on Sharif Mowlabowcus’s (2016, pg. 60) notion of cybercarnality concerning the “erotic economy of gay male corporeality” and Pym et al. (2021, pg. 399) study of queer community “imagined as an affective sense of shared ethics” on intimate platforms. Drawing on our digital ethnographic and speculative design data, we develop the concept of _multivalent intimate interests_ to capture the ambivalent socio-cultural context and situated nature of queer men’s sexual and romantic practices.