If patients think that their pain is not being believed this is clearly a barrier to an effective consultation. Communication with chronic pain patients may improve if the frustration of living with an invisible, debilitating condition that is hard to diagnose and treat is explicitly (and perhaps repeatedly) acknowledged by the health professional.
We compared the illness narratives of 9 male and 9 female United Kingdom stroke survivors
using Frank’s typologies of illness narratives. Most respondents presented a single
dominant narrative genre (“quest memoir,” “restitution,” “chaos,” or a new “despair”
genre); none presented quest manifesto or automythology narratives of social action or
self-reinvention. We found no gender differences apparent in which genres respondents
presented. Stroke severity and the degree of anticipated or actual recovery largely
influenced which genre predominated in individual accounts. Contrary to some sociological
understandings of gender and health, gender appeared to be less influential on stroke
survivors’ illness accounts than aspects of the illness, such as its severity.
Chronic pain (CP) and rheumatoid arthritis (RA) pose particular challenges for the individual. Although biomedicine inevitably plays a role in the reduction or control of some symptoms for people living with chronic pain, directed self-management is also increasingly recognized as an important tool. Self-management can address pain-associated symptoms of CP and RA, and often has broader aims, such as promoting positive well-being. Forty-six interviews with people experiencing CP and 46 interviews with those living with RA-associated pain were analyzed. Our analysis uncovered three broad strategies adopted by participants: body management, mind-management and mind-body management. The analysis demonstrated that for those living with pain, a sense of well-being is achieved not through pain control alone, but also through various mind/body techniques for managing pain, accepting new limits, and adjusting the way people relate to themselves. These self-management strategies are an important adjunct to biomedical care for those experiencing chronic pain.
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