A rede social de cuidados de uma criança com necessidade especial de saúdeThe social care network of a child with special health needs Descritores: Saúde da Criança; Enfermagem Pediátrica; Doença Crônica; Cuidado da Criança. Red social de cuidados de un niño con necesidades especiales de salud ABSTRACTThe objective of this qualitative study was to describe the social care network of a child with special health needs. The study participants were the child's grandparents, randomly selected from a prior study's database. The SensitiveCreative Method was developed by means of the Talking Map Creativity and Sensitivity Dynamics, and then submitted to Discourse Analysis, according to the French School. The results showed that the child's relatives have a fragmented but solidary social network comprised of secondary-level and tertiary-level heath services; that the technologydependent child is ignored by the Unified Health System, as they are invisible in the primary health care network. It is concluded that the child's relatives find support on services that provide care to the child, and the familiar network is limited to the closest relatives. Nursing should promote the creation of networks and improve accessibility to health care for these children.Descriptors: Child Health; Pediatric Nursing; Chronic Disease; Child Care. RESUMENInvestigación cualitativa objetivando describir la red social de cuidados de un niño con necesidades especiales de salud.Participaron de la investigación los abuelos de un niño, sorteados del banco de datos de otra investigación. Se desarrolló el Método Creativo Sensible mediante la Dinámica de Creatividad y Sensibilidad Mapa Hablante, sometida luego a Análisis de Discurso según corriente francesa. Los resultados expresaron que los familiares del niño tienen una red social fragmentada y solitaria, constituida por servicios de salud secundarios y terciarios; que el niño dependiente de tecnologías es marginado del Sistema Único de Salud, permaneciendo invisible para la red primaria. Se concluye en que los familiares se apoyan en los servicios que prestan cuidados al niño, que la red familiar está restringida a los familiares más próximos. Se sugiere que la Enfermería posibilite la formación de redes sociales y el acceso a la atención de salud de dichos niños.Descriptores: Salud del Niño; Enfermería Pediátrica; Enfermedad Crónica; Cuidado del Niño.
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