What do people with glaucoma know about their condition? A comparative cross‐sectional incidence and prevalence survey

Danesh‐Meyer, Helen V.; Deva, Narme C; Slight, Carol; Tan, Yu Wee; Tarr, K. H.; Carroll, Stuart C; Gamble, Greg

doi:10.1111/j.1442-9071.2007.01624.x

Cited by 42 publications

(47 citation statements)

References 22 publications

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“…16,26 Our intervention involved a number of elements, but these were centred around a prescriptive assessment of health-care needs and beliefs on which education and ongoing support was based. Although education is frequently highlighted as being important in improving adherence, 7,27 we feel as others do, 6,28 that education alone may not adequately tackle the problem.…”

Section: Discussionmentioning

confidence: 99%

Individualised patient care as an adjunct to standard care for promoting adherence to ocular hypotensive therapy: an exploratory randomised controlled trial

Gray

Fenerty

Harper

et al. 2011

Eye

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Purpose To evaluate the impact of individualised patient care, as an adjunct to standard care, on adherence to ocular hypotensive therapy. Methods A two-arm, single-masked exploratory randomised controlled trial recruited patients newly prescribed ocular hypotensive therapy. The intervention involved an individual assessment of health-care needs and beliefs and a 1-year follow-up period according to need. The primary outcome was refill adherence, measured by collating prescription and dispensing data for 12 months. Secondary outcomes included self-reported adherence, glaucoma knowledge, beliefs about illness and medicines, quality of care, intraocular pressure (IOP) fluctuation, and changes in clinical management assessed at 12 months. The strength of the intervention was measured following withdrawal by reviewing clinical outcomes for a further 12 months. Results In all, 127 patients were recruited (91% response rate). Intervention-arm patients collected significantly more prescriptions than control-arm patients. Self-report adherence was significantly better in the intervention-arm for patients who forgot drops and those who intentionally missed drops. The intervention group demonstrated significantly more glaucoma knowledge, expressed a significantly stronger belief in the necessity of eye drops and believed that they had more personal control over managing their condition. Control-arm patients had more IOP fluctuation and changes in clinical management. However, this finding only reached significance at 24 months. Conclusion Modelling patient care according to health-care needs and beliefs about illness and medicines can have a significant impact on improving adherence to therapy for this patient group, with the potential benefit of improving clinical outcomes.

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Section: Discussionmentioning

confidence: 99%

Individualised patient care as an adjunct to standard care for promoting adherence to ocular hypotensive therapy: an exploratory randomised controlled trial

Gray

Fenerty

Harper

et al. 2011

Eye

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“…3,[6][7][8] With regards to glaucoma related blindness, lack of awareness and knowledge was found to be an important risk factor. 9,10 The studies from many countries reported that the level of the knowledge and awareness about glaucoma was not only found to be low in general population but also in glaucoma patients. 8,9 For this reason United States of America organizes education programs to increase the knowledge and awareness about glaucoma and the compliance of the patients to the screening programs.…”

Section: Introductionmentioning

confidence: 99%

The assessment of the knowledge and awareness about glaucoma in glaucoma patients and general population: a sample from Turkey

Dağtekin¹,

Demirtaş

Soysal

et al. 2017

Int J Res Med Sci

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Background: The study aimed to evaluate the level of knowledge and awareness of glaucoma and their possible determinants in a group of people diagnosed with glaucoma and in a population based group without glaucoma.Methods: The study included people with an age range of 40 to 80years; 410 patients without glaucoma who admitted to primary health care service and 113 patients who admitted to hospitals with diagnosis of glaucoma. In addition to Glaucoma Knowledge Level Questionnaire (GKLQ), participants were asked about their socio-demographic characteristics, level of awareness and resources of the information about glaucoma. Multivariate logistic regression and multiple linear regression analyses were used to assess the variants which have impact on the level of the awareness about glaucoma and to evaluate the factors effective on the score of GKLQ, respectively.Results: The ratio of awareness about glaucoma was found to be 64.1% in people without glaucoma. The knowledge and awareness about glaucoma were found to be higher in glaucoma patients compared to healthy people but not at a desired level. The education level was the only factor effecting both awareness and knowledge about glaucoma.Conclusions: As awareness about glaucoma can lead to early detection, the assessment of the knowledge and awareness about glaucoma is very important in terms of disease prevention. Health education and preventive health care services should be programmed including for both glaucoma patients and healthy people based on the level of their education.

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“…The median educational support score for newly prescribed patients was 12 (range [4][5][6][7][8][9][10][11][12][13][14][15][16][17][18]. A sample of the information given is presented in Table 3.…”

Section: Observation Datamentioning

confidence: 99%

“…A lack of glaucoma knowledge is frequently cited as a major cause of poor adherence to ocular hypotensive therapy. [2][3][4][5][6][7] Inconsistencies have been found in the assessment of knowledge; questionnaires range from a small number of general questions to detailed questions about diagnostic procedures, 8 which can cause difficulties in identifying specifics gaps in knowledge that potentially affect adherence.…”

Section: Introductionmentioning

confidence: 99%

Preliminary survey of educational support for patients prescribed ocular hypotensive therapy

Gray

Fenerty

Harper

et al. 2010

Eye

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What do people with glaucoma know about their condition? A comparative cross‐sectional incidence and prevalence survey

Abstract: Patients with established glaucoma have only slightly greater knowledge than newly diagnosed patients, with both patient groups harbouring significant misconceptions regarding glaucoma. Educational programmes and material should be tailored to address these misconceptions.

Cited by 42 publications

References 22 publications

Individualised patient care as an adjunct to standard care for promoting adherence to ocular hypotensive therapy: an exploratory randomised controlled trial

Individualised patient care as an adjunct to standard care for promoting adherence to ocular hypotensive therapy: an exploratory randomised controlled trial

The assessment of the knowledge and awareness about glaucoma in glaucoma patients and general population: a sample from Turkey

Preliminary survey of educational support for patients prescribed ocular hypotensive therapy

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