Understanding the conflicting demands of family caregivers caring for depressed family members

Yamashita, Naomi; Kuzuoka, Hideaki; Hirata, Keiji; Kudo, Takashi

doi:10.1145/2470654.2481365

Cited by 48 publications

(24 citation statements)

References 33 publications

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“…Recently, there has been a growing interest in better understanding the practices and social roles of caregivers in a wide range of health contexts, from taking care of depressed family members at home [51] to supporting families during hospital stays [23,31], to the everyday lives of parents with teenagers with chronic illnesses [20] or high-risk infants [28]. Understanding the personal needs of caregivers has also been of growing concern [37] as their work is often invisible [8,43] and unsupported [41].…”

Section: Theorizing Care Work In Cscwmentioning

confidence: 99%

Caring through Data

Kaziunas

Ackerman

Lindtner

et al. 2017

Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing

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Designing systems to support the social context of personal data is a topic of importance in CSCW, particularly in the area of health and wellness. The relational complexities and psychological consequences of living with health data, however, are still emerging. Drawing on a 12+ month ethnography and corroborating survey data, we detail the experiences of parents using Nightscout-an open source, DIY system for remotely monitoring blood glucose datawith their children who have type one diabetes. Managing diabetes with Nightscout is a deeply relational and (at times) contested activity for parent-caregivers, whose practices reveal the tensions and vulnerabilities of caregiving work enacted through data. As engagement with personal data becomes an increasingly powerful way people experience life, our findings call for alternative data narratives that reflect a multiplicity of emotional concerns and social arrangements. We propose the analytic lens of caring-through-data as a way forward.

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Section: Theorizing Care Work In Cscwmentioning

confidence: 99%

Caring through Data

Kaziunas

Ackerman

Lindtner

et al. 2017

Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing

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“…Furthermore, a number of studies in the CSCW/HCI literature have looked at the needs of parents in a variety of healthcare contexts as a space for technological support [6,12,19,20,23]. Although such studies have examined technologies to augment or facilitate consumer health, there are only a handful of caregiver-oriented ethnographic studies, especially of pediatric patients.…”

Section: Health Management In Cscwmentioning

confidence: 99%

Transition and Reflection in the Use of Health Information

Kaziunas

Büyüktür

Jones

et al. 2015

Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work &Amp; Social Computing

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The impact of health information on caregivers is of increasing interest to HCI/CSCW in designing systems to support the social and emotional dimensions of managing health. Drawing on an interview study, as well as corroborating data including a multi-year ethnography, we detail the practices of caregivers (particularly parents) in a bone marrow transplant (BMT) center. We examine the interconnections between information and emotion work performed by caregivers through a liminal lens, highlighting the BMT experience as a time of transition and reflection in which caregivers must quickly adapt to the new social world of the hospital and learn to manage a wide range of patient needs. The transition from parent to 'caregiver' is challenging, placing additional emotional burdens on the intensive information work for managing BMT. As a time of reflection, the BMT experience also provides an occasion for generative thinking and alternative approaches to health management. Our study findings call for health systems that reflect a design paradigm focused on 'transforming lives' rather than 'transferring information.' Author

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“…13]? In addition, what opportunities are provided by technology to promote the wellbeing and improve resilience skills of the carers, who often experience social and emotional stress as part of their care provision [16]?…”

Section: Skills and Techniques For Socially Constructing Wellbeingmentioning

confidence: 99%

Developing Skills for Social and Emotional Wellbeing

Slovák

Wadley

Coyle

et al. 2015

Proceedings of the 33rd Annual ACM Conference Extended Abstracts on Human Factors in Computing Systems

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Positive social and emotional wellbeing are essential for peoples' general health and quality of life. This workshop will bring together an inter-disciplinary community of wellbeing researchers, designers and practitioners to explore how digital technology can increase wellbeing by enabling users to develop new skills, build on existing personal strengths or social support, and promote self-efficacy more generally. We will jointly reach a better understanding of the opportunities that technology can bring for skills development across a broad range of contexts. Our aim is to consider how digital technology can support wellbeing skills for the general public and also for specific, at-need groups including the care givers of people coping with irreversible loss of mental or physical capacity and psycho-education for people experiencing mental health difficulties.

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Understanding the conflicting demands of family caregivers caring for depressed family members

Cited by 48 publications

References 33 publications

Caring through Data

Caring through Data

Transition and Reflection in the Use of Health Information

Developing Skills for Social and Emotional Wellbeing

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