Proceedings of the 2017 ACM Conference on Computer Supported Cooperative Work and Social Computing 2017
DOI: 10.1145/2998181.2998303
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Caring through Data

Abstract: Designing systems to support the social context of personal data is a topic of importance in CSCW, particularly in the area of health and wellness. The relational complexities and psychological consequences of living with health data, however, are still emerging. Drawing on a 12+ month ethnography and corroborating survey data, we detail the experiences of parents using Nightscout-an open source, DIY system for remotely monitoring blood glucose datawith their children who have type one diabetes. Managing diabe… Show more

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Cited by 91 publications
(20 citation statements)
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“…This furthers discourse in CSCW on intimate relationships and the impacts of health related technologies [e.g. 30].…”
Section: Discussionmentioning
confidence: 83%
“…This furthers discourse in CSCW on intimate relationships and the impacts of health related technologies [e.g. 30].…”
Section: Discussionmentioning
confidence: 83%
“…Should designers prevent erroneous interpretations of biodata? Biodata is never neutral, and it changes how people relate to their own [91] as well as other's bodies, when seen through the lens of biodata [33]. For example, quantified data on babies health can affect how families relate to their offspring, and misguided trust on data can be an added source of anxiety [89].…”
Section: Evocative Balance As Part Of a Methodology To Co-construct Smentioning
confidence: 99%
“…For example, research in the field of personal informatics in healthcare suggests that people may use technology to tinker with their bodies through codes or algorithms. This may lead to the experience of data as a means of exploration whereby new relationships and obligations emerge (Kaziunas, Ackerman, Lindtner, & Lee, 2017; Mol, 2008).…”
Section: Conclusion: the Need To Explore Appropriation Dynamicsmentioning
confidence: 99%