The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities

Lloyd, Jenny; Coulson, Neil

doi:10.1177/1744629514528829

Cited by 20 publications

(30 citation statements)

References 37 publications

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“…For example, 1 study [81] surveyed 324 social care staff, reporting that 89% had received little training in cancer care, whilst 83% noted their knowledge of the signs, symptoms, and risks of cancer was limited. This was supported by previous work suggesting limited knowledge and training of health staff, including GPs, nurses, and radiographers [61,62,[86][87][88]. As bowel cancer is seen as a condition that can be identified earlier, improvements at local and national levels are needed in order to provide information and follow-up of PWIDs [76,78].…”

Section: Discussionmentioning

confidence: 58%

Colorectal Cancer in People with Intellectual Disabilities

Willis

Samalin

Satge³

2018

Oncology

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People with intellectual disabilities (PWIDs) are now living longer; thus, the incidence of cancer within this population is increasing. Available data indicate an excess of digestive tract cancers in PWIDs, but colorectal cancer has rarely been specifically studied and has not been extensively reviewed. This is despite risk factors such as being overweight, obesity, and lack of exercise being more frequent in PWIDs. In this article, we examine the literature on the frequency, screening, and treatment of colorectal cancer in PWIDs by as sessing 4 databases, Medline, EBSCO-CINHL, ASSIA, and PsychLIT, from 1970 to February 2017. Findings indicate that the frequency trends slightly higher than that found in the general population. Screening presents a unique opportunity to discover early colorectal cancer, but is underused in PWIDs compared to the general population. Furthermore, the clinical presentation is frequently masked, particularly by challenging behaviours, and colorectal cancer is therefore often diagnosed late, making treatment difficult due to the advanced stage of these tumours. To improve the care of PWIDs, we need more resources to support them and their caregivers, and to increase awareness of the risk factors and signs and symptoms of colorectal cancer.

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Section: Discussionmentioning

confidence: 58%

Colorectal Cancer in People with Intellectual Disabilities

Willis

Samalin

Satge³

2018

Oncology

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“…While the term “advocate” is widely used in standards for practice and codes of conduct, it is not necessarily well understood by nurses or even clearly defined in the literature (Blackmore, ; Llewellyn & Northway, ). Nevertheless, the role of the specialist ID nurse in addressing inequity and to advocate for partnerships between ID nurses and other specialities has been well recognised (Lloyd & Coulson, ; Morton‐Nance & Schafer, ; While & Clark, ). Developing decision‐making guidelines for ID nurses when they are unable to ascertain a person's preferences may assist in supporting them in the role of advocate.…”

Section: Resultsmentioning

confidence: 99%

An exploration of the practice, policy and legislative issues of the specialist area of nursing people with intellectual disability: A scoping review

et al. 2018

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The specialist field of intellectual disability nursing has been subjected to a number of changes since the move towards deinstitutionalisation from the 1970s. Government policies sought to change the nature of the disability workforce from what was labelled as a medicalised approach, towards a more socially oriented model of support. Decades on however, many nurses who specialise in the care of people with intellectual disability are still employed. In Australia, the advent of the National Disability Insurance Scheme offers an apt moment to reflect upon these decades of specialised nursing care as the context of this nursing care will continue to evolve. A review of the published literature was conducted to explore what has shaped the field in the past and how this might inform the future of this speciality area under new policy and service contexts. People with intellectual disability have specific health and support needs that require a specialised workforce. Specialist nurses continue to be needed for people with intellectual disability.

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“…Staff demeanour is important for ensuring trust is developed so the WwLD, “…feel comfortable about what is going on.” (WwLD) . Additionally, encouragement was another attribute highlighted to help show WwLD that the staff have confidence in the women overcoming their apprehensions to complete screening, and feel supported throughout the process, for example; “… ‘we can do this'…” (paid care worker) …”

Section: Meta‐aggregation Findingsmentioning

confidence: 99%

“…“I suppose there's a lack of understanding you know about what the procedure is, why you have the procedure and an understanding of cancers […] and I suppose the ability to understand the consequences of actions” (paid care worker) . This quote from a paid care worker highlights an assumption that the WwLD do not have the knowledge and understanding of cancer screening, including how important it is and the potential consequences of not attending.…”

Section: Meta‐aggregation Findingsmentioning

confidence: 99%

“…Family carers reported that some GPs held the misunderstanding that if a WwLD has not been sexually active, then cervical screening is not required due to a lower level of risk. This reflects the limited understanding of the needs of WwLD attributed to a lack of “experience or skill or confidence” (paid care worker) . This can impact upon the ability to implement reasonable adjustments or make an informed decision that is suitable for WwLD.…”

Section: Meta‐aggregation Findingsmentioning

confidence: 99%

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Attitudes and perceptions of people with a learning disability, family carers, and paid care workers towards cancer screening programmes in the United Kingdom: A qualitative systematic review and meta‐aggregation

et al. 2019

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Objective Evidence suggests that people with a learning disability (PwLD) are less likely to attend cancer screening than the general population in the United Kingdom. The aim of this systematic review was to identify and synthesise qualitative studies reporting the attitudes and opinions of PwLD, family carers, and paid care workers towards national cancer screening programmes. Methods Five electronic and two grey literature databases were searched. Fourteen thousand eight hundred forty‐six papers were reviewed against predetermined inclusion criteria. Included papers were critically appraised. Findings were synthesised using meta‐aggregation. Results Eleven papers met the inclusion criteria, all related to cervical and breast screening. No papers were related to colorectal cancer screening. Findings were clustered into four synthesised findings: (1) supporting women with a learning disability (WwLD) to attend screening, (2) WwLD's awareness of screening and their psychophysical experiences, 3) professional practice barriers including the need for multidisciplinary working and an understanding of the needs of WwLD, and (4) approaches to improve the uptake of cervical and breast cancer screening. The synthesis highlights the significance of WwLD having support to understand the importance of screening to be able to make an informed choice about attending. Conclusions WwLD may not attend cancer screening due to fear, concerns over pain, and the potential influence of family carers and paid care workers. The review identified practical mechanisms which could help WwLD attend screening. Future research should focus on identifying potential barriers and facilitators as a proactive measure to promote colorectal cancer screening.

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The role of learning disability nurses in promoting cervical screening uptake in women with intellectual disabilities

Cited by 20 publications

References 37 publications

Colorectal Cancer in People with Intellectual Disabilities

Colorectal Cancer in People with Intellectual Disabilities

An exploration of the practice, policy and legislative issues of the specialist area of nursing people with intellectual disability: A scoping review

Attitudes and perceptions of people with a learning disability, family carers, and paid care workers towards cancer screening programmes in the United Kingdom: A qualitative systematic review and meta‐aggregation

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