The marginalization of chronically ill adolescents

DiNapoli, Pamela P.; Murphy, Deirdra

doi:10.1016/s0029-6465(02)00012-9

Cited by 29 publications

(20 citation statements)

References 26 publications

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“…Peer relationships are important for social development and self-esteem, especially in adolescents. Adolescents with chronic illnesses may become marginalised by peers, rejected for being different at a time when body image and identity so largely depend on conformity [19]. Chronic illness may complicate the transition to adulthood, characterised by transition from family life to independent living and transition from education to employment and closely related to positive social and emotional development earlier.…”

Section: Discussionmentioning

confidence: 99%

The impact of delayed development on the quality of life of adults with end-stage renal disease since childhood

et al. 2006

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Little is known about the impact of the course of life of children with end-stage renal disease (ESRD) on their quality of life in adulthood. We therefore assessed the course of life of adult patients with onset of ESRD at an age of <15 years between 1972 and 1992 and compared it with that of the general population. Furthermore, we explored how course of life is associated with quality of life (QoL) in young adulthood. A total of 75 young adult patients who had had ESRD since childhood, aged between 20 years and 30 years, completed the RAND-36 Health Survey and a questionnaire, which retrospectively assesses the achievement of development milestones. Patients achieved fewer milestones than peers with respect to autonomy, social, and psycho-sexual development, and displayed less risk behaviour. Patients who achieved fewer social milestones while growing up experienced more emotional problems and less vitality, and they had a lesser overall mental quality of life. Paediatric nephrologists should pay more attention to the development of social and independent functioning of children with ESRD in order to prepare them for active participation in society in adult life.

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Section: Discussionmentioning

confidence: 99%

The impact of delayed development on the quality of life of adults with end-stage renal disease since childhood

et al. 2006

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“…Self-esteem and body image are important issues especially in adolescence. Adolescents with chronic illnesses may become marginalized by peers, rejected for being different at a time when body image and identity so largely depend on conformity [27]. Peer relationships are important for social development and self-esteem especially in adolescents [27].…”

Section: Discussionmentioning

confidence: 99%

“…Adolescents with chronic illnesses may become marginalized by peers, rejected for being different at a time when body image and identity so largely depend on conformity [27]. Peer relationships are important for social development and self-esteem especially in adolescents [27]. Therefore, IBD patients should be encouraged and supported in making and maintaining friendships and in participating in peer activities.…”

Section: Discussionmentioning

confidence: 99%

Evaluation of a psychoeducational intervention for adolescents with inflammatory bowel disease

Grootenhuis

Maurice‐Stam²,

Derkx³

2009

European Journal of Gastroenterology & Hepatology

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“…Many children who are on dialysis enter puberty later than age peers (58). This along with decreased participation in peer and school activities as a result of cognitive limitations (41), illness (30), and potentially a sense of vulnerability regarding their own health may discourage the "normal" risk-taking behavior of adolescence (59) and in turn lead to being labeled as "different" and contribute to a sense of isolation from their peer group (60). Fewer friends along with lower self-esteem (described in hemodialysis patients) (61) are a negative impact on their psychosexual development as evidenced by data showing a later age at having a first girlfriend/ boyfriend, falling in love, and sexual intimacy or intercourse when compared with a reference group (59).…”

Section: Socialization and Sexualitymentioning

confidence: 99%

Selected Primary Care Issues and Comorbidities in Children Who Are on Maintenance Dialysis

White

Trnka

Matsell

2007

Clinical Journal of the American Society of Nephrology

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Ten-year survival of all children who initiate dialysis at any age now approaches 70%, and in the older child this number is closer to 80%. These children will live with chronic kidney disease and its myriad of associated comorbidities during and throughout their childhood. Their care is complex and requires both teamwork and careful attention paid to maintaining lines of communication among patient, family, and both the facility-based nephrology team and caregivers who are outside the hospital setting. Irrespective of their need for dialysis, children with ESRD deserve and require developmentally appropriate care and anticipatory guidance with respect to primary care issues of childhood. The child who is on dialysis often is cared for solely or in large part by a nephrology service, therefore this review discusses issues that are particularly important to pediatric nephrologists in relation to selected primary care issues and comorbidities for the child who is on dialysis, with an emphasis on medical and psychosocial issues, and with particular weight placed on issues that are pertinent to the adolescent dialysis patient.

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The marginalization of chronically ill adolescents

Cited by 29 publications

References 26 publications

The impact of delayed development on the quality of life of adults with end-stage renal disease since childhood

The impact of delayed development on the quality of life of adults with end-stage renal disease since childhood

Evaluation of a psychoeducational intervention for adolescents with inflammatory bowel disease

Selected Primary Care Issues and Comorbidities in Children Who Are on Maintenance Dialysis

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