The experience of people with mental disorders in social function adaptation after suffering from pasung

Helena, Rasmawati Novy; Daulima, Novy Helena Catharina; Wardani, Ice Yulia

doi:10.1016/s1130-8621(18)30169-4

Cited by 9 publications

(21 citation statements)

References 12 publications

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“…However, it is not possible to state a direct correlation with having a mental illness and marriage breakdown from this data [41]. Nevertheless, one study [49] described that many people who experienced pasung had been left by their spouse or partner because of having a mental disorder and experiencing personal hardship.…”

Section: Narrative Synthesis Using the Socio-ecological Model Individmentioning

confidence: 88%

“…As a result of the prolonged duration of pasung, some people were severely negatively impacted, both physically and mentally. A few studies mentioned the impact of pasung [7,10,29,37,49], but no studies precisely measured the physical and psychological impact of pasung for the PWMD, their family or the community, for instance, in the long or short term. Asher et al [7] reported that two PWMD had physical injuries resulting from restraint, including bruising, contracture, and deformity of the leg.…”

Section: Narrative Synthesis Using the Socio-ecological Model Individmentioning

confidence: 99%

“…The person's condition was reported to worsen due to increased feelings of guilt about not being able to fulfil their commitments and role within the family with consequent loss of dignity [4]. As a result, many PWMD lived alone or were left by their partner [49].…”

Section: Interpersonal Relationshipsmentioning

confidence: 99%

“…Several studies reported that myths and beliefs in the general population about mental disorders are associated with the increased use of pasung [6,7,33,35,36,42,49,51,57,58]. PWMD are often considered dangerous and/ or possessed by demons.…”

Section: Communitymentioning

confidence: 99%

See 3 more Smart Citations

The use of pasung for people with mental illness: a systematic review and narrative synthesis

Hidayat

Lawn

Muir‐Cochrane

et al. 2020

Int J Ment Health Syst

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Background Pasung is the term used in Indonesia and a number of other countries for seclusion and restraint of people with mental illness in the community, usually at home by their family. While pasung has been banned because it is contrary to human rights, its practice continues to exist within the community, particularly where community mental health services are limited, and in the absence of adequate social support, and pervasive negatives beliefs about mental illness. It is essential to understand the reasons for the ongoing use of pasung and to examine potential solutions. Methods A systematic review and narrative synthesis of peer-reviewed international literature was conducted to identify the socio-cultural contexts for pasung use, and interventions to address it. The analysis draws on the socio-ecological framework, which focused on relationships between the individual and their environment. Result Fifty published articles were included in the review; all studies were conducted in Asia and Africa, with 32 undertaken in Indonesia. Most studies were qualitative (n = 21). Others included one case–control study, one cross-sectional study, and seven surveys; only four studies examined the application of an intervention, and each used a pre and post methodology. Of these, two studies tested psychoeducational interventions which aimed to overcome family burden due to pasung, and each suggested a community mental health approach. The remaining two studies evaluated the intervention of ‘unlocking’; one study used a community-based culturally sensitive approach, and the other used a community-based rehabilitation program. Reasons for pasung given by family appear to be as a last resort and in the absence of other supports to help them care for the person with severe mental illness. Conclusion The findings highlight that a mixture of individual, interpersonal, community and policy interventions are needed to reduce the use of pasung. While consumer and carer involvement as part of a socio-ecological approach is understood to be effective in reducing pasung, an understanding of how to elaborate this in the management of pasung remains elusive. Review Registration CRD42020157543: CRD

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Section: Narrative Synthesis Using the Socio-ecological Model Individmentioning

confidence: 88%

Section: Narrative Synthesis Using the Socio-ecological Model Individmentioning

confidence: 99%

Section: Interpersonal Relationshipsmentioning

confidence: 99%

Section: Communitymentioning

confidence: 99%

See 2 more Smart Citations

The use of pasung for people with mental illness: a systematic review and narrative synthesis

Hidayat

Lawn

Muir‐Cochrane

et al. 2020

Int J Ment Health Syst

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show abstract

“…Participants felt that involving patients, family and communities in mental health care could increase societal awareness of mental health and break the cycle of stigma and discrimination. In particular, human rights violations such as the confinement and detainment of people with psychosis in institutions or family homes against their will, ('pasung' in Bahasa Indonesian), could be reduced or even eliminated through increased use of civic engagement [10,48].…”

Section: Id203mentioning

confidence: 99%

Civic engagement and mental health system strengthening in Indonesia: a qualitative examination of the views of health professionals and national key stakeholders

Susanti

James²,

Lovell

et al. 2020

BMC Psychiatry

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Background: Mental health services in Indonesia are developing rapidly in response to national and global health policy to support people living with psychosis. This presents a unique opportunity for civic engagement, the active involvement of patients, carers and communities in mental health care, to shape emergent services. In-depth explorations of the views of professionals and other key stakeholders in mental health care on the use of civic engagement in Indonesia are lacking which contributes to a limited understanding of its potential in this regard. The study aimed to explore contemporary professionals' and other key stakeholders' perspectives on the current use of and potential for civic engagement to strengthen mental health systems in Indonesia. Methods: Qualitative interviews were undertaken and analysed using thematic analysis underpinned by a critical realist approach. Eighteen multidisciplinary professionals and lay health workers involved in mental health care in Jakarta and Bogor and 10 national key stakeholders were recruited. Results: Despite high levels of awareness of and support for civic engagement amongst mental health professionals and policy makers combined with a nascent grass roots movement, analysis revealed unstructured and insufficient mechanisms for civic engagement which resulted in ad-hoc and mostly superficial levels of involvement activity. Civic engagement was thought to require a marked shift in existing practices as well as organisational and societal cultures. Challenging stigma is a key feature of civic engagement and our analysis highlights the relevance of social contact methods which are locally and culturally contextualised in this regard. Our findings point to a need to expand current definitions of civic engagement which focus on indivdiual enablement to ones that also encompass environmental and organisational enablement to optimise the future use of civic engagement in mental health settings.

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Family support for persons with schizophrenia after physical restraint and confinement

et al. 2020

View full text Add to dashboard Cite

The experience of people with mental disorders in social function adaptation after suffering from pasung

Cited by 9 publications

References 12 publications

The use of pasung for people with mental illness: a systematic review and narrative synthesis

The use of pasung for people with mental illness: a systematic review and narrative synthesis

Civic engagement and mental health system strengthening in Indonesia: a qualitative examination of the views of health professionals and national key stakeholders

Family support for persons with schizophrenia after physical restraint and confinement

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