The everyday occupations of East Asian mothers who have children with disabilities: A scoping review

Sim, So Sin; Bourke-Taylor, Helen; Fossey, Ellie; Yu, Mong-Lin

doi:10.1016/j.ridd.2020.103849

Cited by 9 publications

(7 citation statements)

References 62 publications

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“…In a scoping review, Sim et al (2021) found that mothers sought jobs that were flexible, allowing them to continue taking care of children with a disability and/or neurodevelopmental disorder. Research carried out by Polezi (2021) reports that work was one of the most impacted occupations, with mothers having to stop working and/or reduce their workload.…”

Section: Discussionmentioning

confidence: 99%

Adaptation process and occupational performance of mothers of children with autism spectrum disorders

Roiz

Figueiredo

2023

Cad. Bras. Ter. Ocup.

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Introduction Adapting to a child with Autism Spectrum Disorder (ASD) can impact the occupational performance of mothers because of the care they demand, which can lead to difficulties in carrying out their occupations. Objective To investigate the occupational performance and adaptation of mothers to their children with ASD. Method Cross-sectional, descriptive, quantitative and qualitative study conducted with 11 mothers of children with ASD aged 2-9 years. Data were collected using the Parental Disability Adaptation Scale (EPAD) and the Canadian Occupational Performance Measure (COPM). EPAD data were analyzed by adding the scores of each participant and calculating the general average, whereas COPM data were analyzed from the values assigned to performance and satisfaction. Results The mothers were well adapted to their children; however, they evaluated the presence of functional problems for occupational performance after their birth. Functional problems in the productivity category, specifically in work performance due to the demands of caring for the children, were mentioned by most mothers. In the self-care category, some mothers reported problems related to going to the salon and taking a shower. In the leisure category, some mothers indicated problems with reading, physical activity, traveling and/or visiting friends. Conclusion The mothers in this study reported that adapting to their children with ASD involves factors such as transmission of the diagnosis, information, children characteristics, socioeconomic conditions, resilience, and personal beliefs and expectations. In conclusion, the mothers of children with ASD investigated presented functional problems regarding their occupational performance after the birth of these children.

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Section: Discussionmentioning

confidence: 99%

Adaptation process and occupational performance of mothers of children with autism spectrum disorders

Roiz

Figueiredo

2023

Cad. Bras. Ter. Ocup.

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“…Em revisão de escopo, Sim et al (2021) verificaram que as mães buscavam por trabalhos que fossem flexíveis, possibilitando que elas continuassem cuidando dos filhos com alguma deficiência e/ou transtorno do neurodesenvolvimento. A pesquisa realizada por Polezi (2021) informa que o trabalho foi uma das ocupações mais impactadas, sendo que as mães precisaram parar de trabalhar e/ou reduziram sua carga de trabalho.…”

Section: Discussionunclassified

O processo de adaptação e desempenho ocupacional de mães de crianças no transtorno do espectro autista

Roiz

Figueiredo

2023

Cad. Bras. Ter. Ocup.

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Resumo Introdução A adaptação a um filho no Transtorno do Espectro do Autismo (TEA) pode impactar o desempenho ocupacional das mães em razão dos cuidados demandados, que podem dificultar a realização das suas ocupações. Objetivo Investigar a adaptação e o desempenho ocupacional das mães de filhos com TEA. Método Estudo descritivo transversal de abordagem quantiqualitativa com 11 mães de filhos no TEA com idade entre 2 e 9 anos. Os dados foram coletados por meio da Escala Parental de Adaptação à Deficiência (EPAD) e da Medida Canadense de Desempenho Ocupacional (COPM). Os dados da EPAD foram analisados pela soma dos escores de cada participante e cálculo da média geral e os da COPM a partir dos valores atribuídos para o desempenho e satisfação. Resultados As mães estavam em adaptadas a seus filhos; entretanto, avaliaram a presença de problemas funcionais para o desempenho ocupacional após o nascimento deles. Problemas na categoria produtividade, especificamente para trabalhar, por conta das demandas de cuidados com o filho, foram referidos pela maioria das mães. Na categoria autocuidado, algumas mães referiram problemas para ir ao salão de beleza e tomar banho. Na categoria lazer, algumas mães indicaram problemas para realizar leitura, atividade física, viajar e/ou visitar amigos. Conclusão As mães deste estudo demostraram que a adaptação a seus filhos envolve fatores como transmissão do diagnóstico, informação, características dos filhos, condições socioeconômicas, resiliência, crenças e expectativas pessoais. Conclui-se que as mães de filhos no TEA investigadas apresentaram problemas funcionais para o desempenho ocupacional após o nascimento desses filhos.

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“…Furthermore, we aimed to identify associations between Chinese mothers' caregiving occupations with the six maternal variables. The caregiving occupations in this study are categorised into direct, indirect, perceived roles and availability of other caregivers as these were found to have influenced the occupations of Chinese mothers in earlier studies (Sim et al, 2021a(Sim et al, , 2021b. Our research questions were:…”

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confidence: 99%

“…Occupational therapy is based on the fundamental premise that occupations are central to the health and well-being of individuals and that human beings experience occupational adaptation when presented with challenges in their environment (de las Heras de Pablo et al, 2017). Mothers are occupational beings with multiple interconnected roles, such as a caregiver, nurturer, educator, protector and many more, whose everyday activities and roles also impact their children and families (Sim et al, 2021b). Hence, a better understanding of maternal occupations and their relationship to the mothers' health and well-being may be beneficial to both mothers and their families.…”

mentioning

confidence: 99%

“…The current study is part of a mixed methods study investigating the occupations of Chinese mothers. An initial scoping review identified that Chinese culture shaped maternal occupations of mothers who have children with disabilities and that Chinese mothers' activity choices were commonly organised around mothers' culturally perceived roles as carers, teachers, disciplinarians, therapists, coaches, liaisons, advocates and encouragers (Sim et al, 2021b). This signifies a strong cultural influence on the caregiving occupations of Chinese mothers.…”

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confidence: 99%

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Caregiving occupations, health and well-being of Chinese mothers of children with disabilities living in Australia, Singapore and Taiwan

Sim,

Bourke-Taylor,

et al. 2023

British Journal of Occupational Therapy

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Introduction: Mothers of children with disabilities report increased maternal stress, compromised mental health and reduced leisure and social participation compared with other mothers. The aim of the study was to explore the similarities and differences between three groups of Chinese mothers of children with disabilities in their caregiving occupations and selected maternal variables. Methods: An online survey collected mothers’ demography, caregiving occupations and six maternal measures: frequency in participation in health promoting activities, mental well-being, personal well-being, psychological distress, perceived support and perceived stigma. Descriptive and inferential statistics were used to investigate group similarities and differences, and detect associations between variables. Results: The survey responses of Chinese mothers ( N = 261) from Australia ( n = 80), Singapore ( n = 95) and Taiwan ( n = 86) were analysed. Similarities and differences in caregiving occupations were found between groups. The Kruskal–Wallis test showed no differences in maternal variables between groups. There were associations found between some caregiving occupations and maternal variables when mothers were analysed as a single group. Conclusion: The health and well-being of mothers of children with disabilities may be influenced more by their cultural similarities than differences in their socio-political environments. Recognising cultural influences on caregiving occupations is crucial in the delivery of culturally competent and culturally intelligent practice.

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The everyday occupations of East Asian mothers who have children with disabilities: A scoping review

Cited by 9 publications

References 62 publications

Adaptation process and occupational performance of mothers of children with autism spectrum disorders

Adaptation process and occupational performance of mothers of children with autism spectrum disorders

O processo de adaptação e desempenho ocupacional de mães de crianças no transtorno do espectro autista

Caregiving occupations, health and well-being of Chinese mothers of children with disabilities living in Australia, Singapore and Taiwan

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