The Effect of Family-Centered Empowerment Model on the Quality of Life of Patients with Leukemia

Abstract

Background: Leukemia is a common cancer among adults with growing prevalence in Iran. This disease affects different aspects of the patient, especially their quality of life. One of the methods to promote hygiene and health and, consequently, quality of life is to empower the family of the patient. Objectives: The effect of family-based empowerment on quality of life in patients with leukemia was studied in this research. Methods: This study was a clinical trial conducted on 46 adult patients with leukemia together with 46 of their family members in 2015. Eligible patients were selected by the available method and randomly placed in two groups of test and control. Tools for gathering data included a demographic questionnaire about the patient and their family member and a specified questionnaire about the quality of life of patients with cancer. Family-based empowerment intervention was held for research samples in the test group based on its quadruple steps (perceived threat, self-efficiency promotion, increase of self-esteem through educational participation, and assessment) in six 90-minute sessions and a second test was conducted a month and half after the intervention. Data were analyzed using the SPSS 20 statistical software. Results: Results of chi-square test reflected that both groups of test and control were similar in terms of demographic information (P > 0.5). Moreover, statistical independent T-test did not show a significant difference in aspects of quality of life in test and control groups before the intervention (P = 0.98) while this test showed a significant difference in both groups after the intervention (P = 0.00), except for the spiritual aspect (p=0.2). Paired T-test indicated a significant increase in aspects of quality of life in the test group after the intervention (p=0.00) while this test reflected a reverse significant difference in general aspect of quality of life in the control group (P = 0.006). Conclusions:In general, results of this research showed that implementing family-based empowerment pattern has been effective for increasing quality of life in patients with leukemia.

Effect of Educational Intervention Based on Self-Efficacy Theory on The Caring Behavior of Mothers Having Children with Cancer

“…The difference between the mean scores of caring behavior before and after the intervention in the two stages shows the effect of educational intervention to improve mother ' caring behavior, which is consistent with the results of other studies [29][30][31]. Another study on the effect of education of mothers of children with cancer undergoing chemotherapy on prevention of the gastrointestinal side effects of chemotherapy showed that educational intervention had a signi cant impact on reducing the effects of chemotherapy [6,32]. An investigation on the effect of educational intervention on the home care behavior of parents having children with cancer undergoing chemotherapy, indicated that the intervention was effective in reducing the effects of chemotherapy [33].…”

The Effect of the Family-Centered Empowerment Model (FCEM) on the Care Burden of the Parents of Children Diagnosed with Cancer

“…Empowerment is a process, which will enable perceived self-efficacy; through this process, the person will be able to analyze the real cause of the problem, they get ready to solve problems by wisdom, sharing knowledge and skills together between health personnel and that person. The process of sharing the knowledge and skills will enhance the person to the perceived self-efficacy, so he/she is able to perform the desired behavior (Borhani et al, 2011;Cortez et al, 2017;Davarpanah et al, 2017).…”

Expert perspectives on the active role of patients in their safety: Toward a framework using Delphi methodology

“…The second core components underlined in the proposed framework is patient empowerment. A family‐centered empowerment model, which has a positive effect on chronic pain, 42 can be used as empowerment guidance to improve patient safety. Establishing effective communication between staff and patients is the third core components highlighted in the present framework.…”