The Effect of the Family-Centered Empowerment Model (FCEM) on the Care Burden of the Parents of Children Diagnosed with Cancer

Shoghi, Mahnaz; Shahbazi, Bahareh; Seyedfatemi, Naimeh

doi:10.31557/apjcp.2019.20.6.1757

Cited by 33 publications

(53 citation statements)

References 34 publications

(21 reference statements)

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“…Another study on the effect of education of mothers of children with cancer undergoing chemotherapy on prevention of the gastrointestinal side effects of chemotherapy showed that educational intervention had a signi cant impact on reducing the effects of chemotherapy [6,32]. An investigation on the effect of educational intervention on the home care behavior of parents having children with cancer undergoing chemotherapy, indicated that the intervention was effective in reducing the effects of chemotherapy [33]. In the present study, the parents received educations about caring behaviors on how to reduce the side effects of chemotherapy at home.…”

Section: Discussionmentioning

confidence: 99%

Effect of Educational Intervention Based on Self-Efficacy Theory on The Caring Behavior of Mothers Having Children with Cancer

Barani

Hassani

Ghanbarnejad

et al. 2021

Preprint

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Background Self-efficacy, as one of the concepts of empowerment model, plays a role in increasing the caring behavior. Accordingly, the present study aimed to evaluate the effect of educational intervention based on self-efficacy theory on the caring behavior of mothers having children with cancer. Methods This before-after clinical trial study was conducted on all mothers (N = 86) of children with cancer undergoing chemotherapy who referred to Bandar Abbas Children's Hospital. All mothers participate in four educational intervention sessions. The Shearer's self-efficacy questionnaire and "mothers caring behavior scale" were completed at the 1rst and 3rd and 6th months after intervention. Descriptive statistics, paired t-test, analysis of variance (ANOVA) with repeated measures and a linear mixed model were used to assess the effect of time and self-efficacy on the caring behavior adjusting for family size, mother’s age, mother’s job, mother’s education, and chemo-therapy session. Results The results indicated a significant difference in the mean score of mothers' self-efficacy after intervention (P < 0.001). Besides, the two-way self-efficacy score of the first and second follow-ups was p = 0.096. Furthermore, the mean score of caring behavior before and after the intervention indicated a significant difference (P < 0.001). Conclusion The results of the present study indicated that an educational program for mothers increased their caring behavior and self-efficacy with the increase of self-efficacy, mothers' caring behavior was promoted. Authorities and practitioners are suggested to pay more attention to designing educational programs based on health models and theories.

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Section: Discussionmentioning

confidence: 99%

Effect of Educational Intervention Based on Self-Efficacy Theory on The Caring Behavior of Mothers Having Children with Cancer

Barani

Hassani

Ghanbarnejad

et al. 2021

Preprint

View full text Add to dashboard Cite

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“…To date, there are no studies examining the effect of the FCEM and CCM methods and comparing them to standard pulmonary rehabilitation on ARDS survivors. However, few studies have been performed on the effects of these methods on patients with other chronic illness [15][16][17][18][19] . The results of these studies about the use of a FCEM on caregivers and family members of patients with chronic illness, have been shown some improvement in the quality of life and mental health, which was consist with our ndings and reported the implementation of a FCEM intervention can reduce the burden of disease, and improve the mental and physical health of patients [27][28][29] .…”

Section: Discussionmentioning

confidence: 99%

“…The FCEM was developed to improve the care and outcomes of patients with chronic diseases and has previously been evaluated and validated in several chronic disease states 14 . Family engagement in the rehabilitation process may potentially have bene cial effects including improvements in mental and physical function, and reduced burden of disease 18,19 . The primary aim of the model is to empower the patient/family unit to promote health quality.…”

Section: Introductionmentioning

confidence: 99%

Assessment of 5-Year Outcomes of Life Satisfaction in Acute Respiratory Distress Syndrome Survivors After Rehabilitation Programs: A Prospective, Multicenter, Randomized Controlled Trial

Rahimi–Bashar¹,

Salesi²,

Gohari-Moghadam³

et al. 2021

Preprint

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The use of rehabilitation program for survivors of Acute Respiratory Distress Syndrome (ARDS) could be one of the important and fundamental steps to improve the pulmonary function and health related quality of life (HRQoL) of patients. This study was carried out to evaluate the effect of two rehabilitation techniques (Family-Based Empowerment Model (FECM)/Continuing Care Model (CCM), or both of them) on pulmonary function and HRQoL in ARDS survivor. From December 2009 to October 2014, ARDS survivors from mixed medical-surgical ICUs at four academic teaching hospitals in Tehran, Iran, randomly assigned to one of three intervention groups (A, B or C) or a control group (D). Pre- and post-interventions, pulmonary functions and HRQoL status of patients in all groups were collected 48 times through clinical measurements and various questionnaires during 5 years of follow-up. Significantly improvement was seen in the intervention groups compared to the control group, and the greatest benefit was observed in patients that received mixed of FCEM and CCM rehabilitation techniques. Co-administration of FCEM and CCM can improve pulmonary function as well as the life satisfaction of ARDS survivors. As a result, the execution of the empowerment model by nurses is recommended for ARDS survivors and the participation of their families at the same time. Trial registration: NCT02787720 (ClinicalTrial.gov, 01/06/2016).

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“…In the context of this study, the term health care professionals describes health care personnel, including doctors, nurses, and all other formal caregivers, whereas informal cancer caregivers, cancer caregivers, and caregivers are used interchangeably, referring to informal cancer caregivers such as family and friends, who often regularly provide a wide range of assistance to a patient with cancer. Although, overall, a variety of interventions hold promise to alleviate caregiver burden, ranging from print materials and face-to-face consultations to telephone-based assistance [11][12][13][14][15][16][17][18][19][20], technology-based interventions are considered the most practical and promising solution available to caregivers.…”

Section: Introductionmentioning

confidence: 99%

Technology-Based Interventions for Cancer Caregivers: Concept Analysis

Su¹,

Li²,

McDonnell³

et al. 2021

JMIR Cancer

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Background Cancer is a taxing chronic disease that demands substantial care, most of which is shouldered by informal caregivers. As a result, cancer caregivers often have to manage considerable challenges that could result in severe physical and psychological health consequences. Technology-based interventions have the potential to address many, if not all, of the obstacles caregivers encounter while caring for patients with cancer. However, although the application of technology-based interventions is on the rise, the term is seldom defined in research or practice. Considering that the lack of conceptual clarity of the term could compromise the effectiveness of technology-based interventions for cancer caregivers, timely research is needed to bridge this gap. Objective This study aims to clarify the meaning of technology-based interventions in the context of cancer caregiving and provide a definition that can be used by cancer caregivers, patients, clinicians, and researchers to facilitate evidence-based research and practice. Methods The 8-step concept analysis method by Walker and Avant was used to analyze the concept of technology-based interventions in the context of cancer caregiving. PubMed, PsycINFO, CINAHL, and Scopus were searched for studies that examined technology-based interventions for cancer caregivers. Results The defining attributes of technology-based interventions were recognized as being accessible, affordable, convenient, and user-friendly. On the basis of insights gained on the defining attributes, antecedents to, and consequences of technology-based interventions through the concept analysis process, technology-based interventions were defined as the use of technology to design, develop, and deliver health promotion contents and strategies aimed at inducing or improving positive physical or psychological health outcomes in cancer caregivers. Conclusions This study clarified the meaning of technology-based interventions in the context of cancer caregiving and provided a clear definition that can be used by caregivers, patients, clinicians, and researchers to facilitate evidence-based oncology practice. A clear conceptualization of technology-based interventions lays foundations for better intervention design and research outcomes, which in turn have the potential to help health care professionals address the needs and preferences of cancer caregivers more cost-effectively.

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The Effect of the Family-Centered Empowerment Model (FCEM) on the Care Burden of the Parents of Children Diagnosed with Cancer

Cited by 33 publications

References 34 publications

Effect of Educational Intervention Based on Self-Efficacy Theory on The Caring Behavior of Mothers Having Children with Cancer

Effect of Educational Intervention Based on Self-Efficacy Theory on The Caring Behavior of Mothers Having Children with Cancer

Assessment of 5-Year Outcomes of Life Satisfaction in Acute Respiratory Distress Syndrome Survivors After Rehabilitation Programs: A Prospective, Multicenter, Randomized Controlled Trial

Technology-Based Interventions for Cancer Caregivers: Concept Analysis

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