The Economic Impact on Families When a Child Is Diagnosed with Cancer

Miedema, Baukje; Easley, Julie; Fortin, Pierrette; Hamilton, Ryan; Mathews, Maria

doi:10.3747/co.v15i4.260

Cited by 97 publications

(96 citation statements)

References 13 publications

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“…The non-significant gender differences in this study are of interest since previous studies with shorter follow-up periods have reported differences between mothers and fathers [6][7][8]. With a long-term perspective applied, no such differences were observed.…”

Section: Interpretation Of Resultsmentioning

confidence: 50%

“…A substantial number of parents of children diagnosed with cancer experience significant occupational and financial consequences including employment and income loss, affected work ability, reduced work hours, and sick leave, both during and after treatment completion [3,4]. The impact on parental income, employment and sick leave is greatest during treatment and the effect on employment and earnings is greater among mothers than fathers [3,[5][6][7][8]. There is a lack of longitudinal studies with long-term follow-up on the impact of childhood cancer on parents' work situation.…”

Section: Original Articlementioning

confidence: 99%

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Parents of children diagnosed with cancer: work situation and sick leave, a five-year post end-of-treatment or a child’s death follow-up study

et al. 2016

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Background: Cancer in a child is associated with a significant impact on parental employment. We assessed the proportions of parents of survivors and bereaved parents working and reporting sick leave five years after end of successful treatment (ST)/child's death (T7) compared with one year after end of ST/child's death (T6) and the association between partial post-traumatic stress disorder (PTSD) and work situation and sick leave at T7. Participants and procedure: The sample included 152 parents of survivors (77 mothers, 75 fathers) and 42 bereaved parents (22 mothers, 20 fathers) of children diagnosed with cancer in Sweden. Results: The proportions of parents working or reporting sick leave did not differ among mothers and fathers of survivors (92% vs. 96% working, 20% vs. 18% on sick leave) or among bereaved mothers and fathers (91% vs. 90% working, 14% vs. 20% on sick leave) at T7. There was no change from T6 to T7 in the proportion of fathers working (fathers of survivors 91% vs. 96%, bereaved fathers 95% vs. 90%). Although more mothers of survivors (92% vs. 82%) and bereaved mothers (91% vs. 77%) worked at T7 than at T6, this increase was not significant. Fewer bereaved mothers reported sick leave at T7 than at T6 (14% vs. 59%, p < 0.05). Although more fathers reported sick leave at T7 than at T6 (fathers of survivors 18% vs. 8%, bereaved fathers 20% vs. 15%), this was not significant. Partial PTSD was not associated with parents' work situation or sick leave at T7. Conclusion: Results suggest little adverse effect on work situation and sick leave among parents of survivors and bereaved parents five years after end of ST/child's death from cancer. However, the pattern of change observed differed between parents, which could potentially indicate possible delayed consequences for fathers not captured in the present paper.

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Section: Interpretation Of Resultsmentioning

confidence: 50%

Section: Original Articlementioning

confidence: 99%

Parents of children diagnosed with cancer: work situation and sick leave, a five-year post end-of-treatment or a child’s death follow-up study

et al. 2016

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“…Long treatment and care of cancer in child result in family economic factors [4], other impacts felt by child and parents that depression and anxiety [5,6]. Mothers reported significantly higher levels of stress than fathers (p <0.001) [7].…”

Section: Introductionmentioning

confidence: 99%

Relationship between social supports and Anxiety of mothers treating child with cancer

Fetriyah¹,

Mulatsih²,

Pangastuti³

2017

Proceedings of the 2nd Sari Mulia International Conference on Health and Sciences 2017 (SMICHS 2017)

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Objective: To analyze the association between social support and mother's anxiety, the category of social support received, needed by mother treating the child with cancer. Method: This study non-experimental approach sequential explanatory mixed method strategy. Analytical correlation cross-sectional study 49 mothers treating the child with cancer in Installing Child Health Hospital Dr. Sardjito selected by consecutive sampling, qualitative exploration 9 informants selected by purposive sampling. The research instrument using Social Support Questionnaire, Pediatric Inventory for Parents, in-depth interview guide. Analysis using Pearson and content analysis. Results: Mother's worried long-term effects of cancer (55, 10%). The correlation number of support persons with mother's anxiety (r = 0.166; p = 0.253), correlation between satisfaction received support with mother's anxiety (r = -0.330; p = 0.021). Findings are mothers who less social support are the risk of severe anxiety, mothers get meaningful support and needed such as information and emotional support from family, neighbors, fellow who had the child with cancer, health workers. Instrumental and appraisal support from families, neighbors, friend, health workers. The mother states information support is important from the health worker, the fellow who had the child with cancer it makes to adapt, accept child's condition, emotional support from family make mother felt more confident treating child's. Conclusion: There is no correlation number of support persons and mother's anxiety. There is a significant negative correlation satisfaction received support and mother's anxiety. Category of support received, needed by mother especially information, emotional support.

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“…can have their access to this tertiary health service facilitated whereas those coming from intermediate and far cities face difficulty accessing care and not return to the service with the ideal frequency due to the distance (6) and financial difficulties (19) , which may interfere on the …”

Section: Discussionmentioning

confidence: 99%

“…Because of this hospital's high technology resources, it attracts patients from surrounding cities and different regions of Brazil, not always within its scope area. This characteristic can hinder the follow-up of children and adolescents of families living outside the city (5) of Ribeirão Preto and also limit the supply of other types of important care procedures, such as home visits to monitor the child and family financial aid for the family to commute to the treatment center (6) , cooperation with the family support network, and proximity to the child's school (7) , among others. …”

Section: Introductionmentioning

confidence: 99%

Characterization of the hospitalization of children and adolescents with cancer

Pan

Marques

Júnior

et al. 2011

Rev. Latino-Am. Enfermagem

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This study characterizes hospitalizations of children and adolescents with cancer, from 1998 to 2008, to describe the clientele in follow-up in the Regional Health Area of Ribeirão Preto, SP, Brazil. Morbidity was surveyed in Ribeirão Preto, SP, Brazil, using hospitalization data from the Unified Health System. The studied variables included: origin, residence, year when care was provided, deaths, age and gender of patients diagnosed with child and adolescent cancer according to the International Classification of Disease 10th edition, Chapter II. The results indicated 7,234 hospitalizations of individuals younger than 18 years old diagnosed with neoplasm, 95% of which were from Ribeirão Preto, SP, Brazil, and the remainder from cities located in all five of the Brazilian regions. Identifying the characteristics of patients contributes to the identification of information to broaden the sensitization of health professionals concerning the need for secondary preventive actions, such as early diagnosis.

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The Economic Impact on Families When a Child Is Diagnosed with Cancer

Cited by 97 publications

References 13 publications

Parents of children diagnosed with cancer: work situation and sick leave, a five-year post end-of-treatment or a child’s death follow-up study

Parents of children diagnosed with cancer: work situation and sick leave, a five-year post end-of-treatment or a child’s death follow-up study

Relationship between social supports and Anxiety of mothers treating child with cancer

Characterization of the hospitalization of children and adolescents with cancer

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