This study characterizes hospitalizations of children and adolescents with cancer, from 1998 to 2008, to describe the clientele in follow-up in the Regional Health Area of Ribeirão Preto, SP, Brazil. Morbidity was surveyed in Ribeirão Preto, SP, Brazil, using hospitalization data from the Unified Health System. The studied variables included: origin, residence, year when care was provided, deaths, age and gender of patients diagnosed with child and adolescent cancer according to the International Classification of Disease 10th edition, Chapter II. The results indicated 7,234 hospitalizations of individuals younger than 18 years old diagnosed with neoplasm, 95% of which were from Ribeirão Preto, SP, Brazil, and the remainder from cities located in all five of the Brazilian regions. Identifying the characteristics of patients contributes to the identification of information to broaden the sensitization of health professionals concerning the need for secondary preventive actions, such as early diagnosis.
OBJECTIVE: to present the cultural adaptation of the questionnaire Costs of caring for
children with cancer, offering a valid and reliable tool to assess the economic
repercussions of childhood cancer for Brazilian families. METHOD: it is a methodological research with a cross-sectional design. The methodological
framework to validate the questionnaire was a combined process that included seven
steps: translation to Portuguese; first translated consensus version; evaluation
by Expert Committee; consensus on the Expert Committee version; back-translation;
consensus of back-translated versions; semantic validation. The study was
conducted in two phases: phase one was the translation and back-translations
process, with five expert committee members. Phase two was the semantic
validation, with 24 participants, who answered an instrument about their
impressions of the questionnaire and suggested modifications. RESULTS: in phase one, items were included, excluded, and replaced to make the content
equivalent and valid for use with Brazilian context. In phase two, the majority of
the participants were mothers, who made suggestions about the relevance and
clarity of the items in the questionnaire. CONCLUSIONS: the authors discussed these recommendations and made adaptations, turning the
questionnaire into a valid and reliable tool for application.
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