The core of social function after solid organ transplantation

Forsberg, Anna; Cavallini, Josefine; Fridh, Isabell; Lennerling, Annette

doi:10.1111/scs.12264

Cited by 17 publications

(19 citation statements)

References 28 publications

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“…For all recipients fitness was an issue: either they wanted to regain their previous levels of fitness or be sufficiently fit so that they could move up and down stairs comfortably and resume some roles in the home that they deemed important. Research has identified the importance of social support during the recovery journey and adaptation to restore normal everyday living (Forsberg, Cavallini, Fridh, & Lennerling, 2016). Recipients in the current study tended to use positive refocusing strategies and reappraisal to adapt to changed circumstances, similar to Grady et al's (2013) study of people who had received an organ transplant.…”

Section: Original Articlesupporting

confidence: 52%

Quality of life of living with a transplanted liver :The issue of returning to normalcy

Wainwright

Waring

Jülich

et al. 2018

ANZSWJ

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INTRODUCTION: Advanced technology in medical and pharmacology has increased surgical survival rates for transplant recipients. Therefore, post-transplant care is critical and tightly connected with key focuses on the recipient’s quality of life (QOL). Post-transplant QOL is multifaceted, encompassing morbidity and personal, social, familial and environmental support for recipients. Post-liver transplantation recovery extends well beyond returning home.METHOD: Building on Wainwright’s research (Wainwright, 2011a, 2011b; Wainwright, Jülich, Waring, Yeung, Green, 2016), herself a liver transplant recipient, this article reports transplant recipients’ perceptions and experiences after the first three years and discusses how they re-established function in everyday life as they adapted to their new normal to achieve QOL. The research employed interpretive description to interview transcripts and field-notes of 17 liver transplant recipients. Data were evaluated according to inductive thematic analysis. Eschewing the health-related QOL measure for its rigidity and lack of qualitative data, this research captured the lived experiences of liver transplant recipients unlike clinically focused studies.FINDINGS: The results showed that, although transplantation can make positive changes in their lives, recipients continued to be influenced subtly by illness which can alter their re-conceptualisation and re-definition of QOL and normalcy. The success of a liver transplant does not depend only on the physical care given; to the recipients as the spectre of future ill health and transplant failure continue to be perceived as a constant risks. Ongoing support from family, friends, and healthcare professionals are none-the-less fundamental in the post-transplantation journey.

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Section: Original Articlesupporting

confidence: 52%

Quality of life of living with a transplanted liver :The issue of returning to normalcy

Wainwright

Waring

Jülich

et al. 2018

ANZSWJ

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“…Social adaptation is described as the main concern after solid organ transplantation (Forsberg et al . ). Social support affects depression and anxiety levels (McCathie et al .…”

Section: Discussionmentioning

confidence: 97%

Self‐efficacy in the context of heart transplantation – a new perspective

MSc

Lennerling

MSc

et al. 2017

Journal of Clinical Nursing

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“…Participants placed a high priority on getting back to ‘normal life’ despite reconciling their reality that interacting with health services and self‐monitoring will be a life‐long burden that others do not bear. The importance of regaining independence, such as being able to drive and travel, and returning to work, are common themes post‐organ transplant . The experience of this cohort was that re‐entering the workforce was a high priority, contributed to financial recovery, social functioning and establishing a work‐life balance that reflects emerging wellness.…”

Section: Discussionmentioning

confidence: 97%

“…The importance of regaining independence, such as being able to drive and travel, and returning to work, are common themes postorgan transplant. 29 The experience of this cohort was that re-entering the workforce was a high priority, contributed to financial recovery, social functioning and establishing a work-life balance that reflects emerging wellness. These results can inform the structure of program delivery whereby the need for recipients to prioritise and balance work commitments with recommended health behaviours are acknowledged and accommodated.…”

Section: Discussionmentioning

confidence: 99%

‘Back to Life’—Using knowledge exchange processes to enhance lifestyle interventions for liver transplant recipients: A qualitative study

Hickman

Coran

Wallen

et al. 2019

Nutrition & Dietetics

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Aim Interventions to prevent excessive weight gain after liver transplant are needed. The purpose of the present study was to enhance a specialist post‐transplant well‐being program through knowledge exchange with end‐users. Methods The study used an interactive process of knowledge exchange between researchers, clinicians and health system users. Data were collected as focus groups or telephone interviews and underwent applied thematic analysis. Results There were 28 participants (age 24–68 years; 64% male). The results identified experiences that may influence decisions around health behaviours during the course of transplant recovery. Three over‐arching themes were identified that impact on liver transplant recipients post‐transplant health behaviours. These include (i) Finding a coping mechanism which highlighted the need to acknowledge the significant emotional burden of transplant prior to addressing long‐term physical wellness; (ii) Back to Life encompassing the desire to return to employment and prioritise family, while co‐ordinating the burden of ongoing medical monitoring and self‐management and (iii) Tailored, Personalised Care with a preference for health care delivery by transplant specialists via a range of flexible eHealth modalities. Conclusions This person‐centred process of knowledge exchange incorporated experiences of recipients into service design and identified life priorities most likely to influence health behaviours post‐transplant. Patient co‐creation of services has the potential to improve the integration of knowledge into health systems and future directions will require evaluation of effectiveness and sustainability of patient‐centred multidisciplinary service development.

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The core of social function after solid organ transplantation

Cited by 17 publications

References 28 publications

Quality of life of living with a transplanted liver :The issue of returning to normalcy

Quality of life of living with a transplanted liver :The issue of returning to normalcy

Self‐efficacy in the context of heart transplantation – a new perspective

‘Back to Life’—Using knowledge exchange processes to enhance lifestyle interventions for liver transplant recipients: A qualitative study

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