Stroke survivorsâ€™, caregiversâ€™, and health care professionalsâ€™ perspectives on the weekend pass to facilitate transition home

Cameron, Jill I.; Bastawrous, Marina; Marsella, Amanda; Forde, Samantha; Smale, Leslie; Friedland, Judith; Richardson, Denyse; Naglie, Gary

doi:10.2340/16501977-1854

Cited by 15 publications

(38 citation statements)

References 22 publications

(16 reference statements)

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“…Ten qualitative studies [3,9,[26][27][28][29][30][31][32][33] with a total of 245 participants (range: n = 4 [31] to n = 60 [26]) were included. All the studies used interview techniques, and one additionally used participant observation [32].…”

Section: Study Characteristicsmentioning

confidence: 99%

“…Participants in RCTs were recruited in acute care settings [2,4,21,22,24,25] and rehabilitation units [7,23], and for qualitative studies in the community [9,26], in rehabilitation [30], in acute care [3,27] and in intermediate care [31].…”

Section: Setting and Participantsmentioning

confidence: 99%

“…Qualitative studies reported on participants' views [3,26,[30][31][32] and on views of OTs [3,27,28,30,32,33], families [26,30], and older community-dwelling people [9].…”

Section: Setting and Participantsmentioning

confidence: 99%

“…Barriers and facilitators in PDHA process, analytical themes Safety at home For decisions on home modi cations, safety was the most important factor for OTs [26] and patients [26,30]. OTs are appreciated as experts for safety by the participants.…”

Section: Qualitative Synthesismentioning

confidence: 99%

“…The patients felt restrained by the time limitation during the self-assessment at home [27,31]. Whereas some therapists expressed to take su cient time for a functional assessment [29], others emphasized that "The clients need to spend some time at home and feel what it really is like before they can recognize what they need" [32], just as the patients emphasized the need to try out their functional abilities in individual meaningful activities at home [30].…”

Section: Qualitative Synthesismentioning

confidence: 99%

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Effects, Barriers and Facilitators in Predischarge Home Assessments to Improve the Transition of Care from the Inpatient Care to Home in Adult Patients: An Integrative Review

Kirchner-Heklau

Krause

Saal

2020

Preprint

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Background: Predischarge home assessments (PDHA) aim to ensure safe discharge from hospital or rehabilitation. There is insufficient evidence on the effectiveness of PDHA. For adults with any diagnosis, we aimed to determine (1) the effects of PDHA on outcomes associated with the successful return to community living (e.g., Activities of Daily Living falls) and (2) the associated barriers and facilitators to derive recommendations for clinical practice.Methods: We searched Medline, EMBASE, CINAHL, five additional databases and other sources. We included individual and cluster randomized (RCT/cRCT) and controlled clinical trials comparing PDHA versus usual care/other intervention, as well as qualitative/mixed methods studies dealing with PDHA. Critical appraisal was performed according to the Cochrane risk-of-bias tool in quantitative studies and the Critical Appraisal Skills Programme (CASP) for qualitative studies and data extraction. Meta-analysis, thematic synthesis and integrative synthesis were performed.Results: Seven RCTs (n = 1072) and ten qualitative studies (n = 245) met the inclusion criteria. RCTs reported a variety of outcomes (n = 17). There is moderate to very low evidence for missing effects on (instrumental) Activities of Daily Living, quality of life, risk of falling and risk of readmission, mobility and fear of falling. The qualitative studies revealed the following topics related to patient education, patient information, patients’ acceptance of modifications and aids, involvement of patient goals and meaningful activities in functional assessment, as well as relevant social- and diagnosis-related patient conditions in PDHA. Seven implications for interventions were derived from these topics. Six of the included RCTs each addressed at least one and at most three of the seven identified meaningful implications for implementation.Conclusion: There is no evidence from the meta-analysis for the effectiveness of PDHA. Further robust studies are needed to adapt and evaluate PDHA interventions, taking the identified implications from stakeholders’ views into account, and should follow the current recommendations for the development and evaluation of complex interventions.Trial registration: The review was registered and methods were reported on PROSPERO on 18th July 2018 (https://www.crd.york.ac.uk/PROSPERO. CRD42018100636).

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Section: Study Characteristicsmentioning

confidence: 99%

Section: Setting and Participantsmentioning

confidence: 99%

“…Qualitative studies reported on participants' views [3,26,[30][31][32] and on views of OTs [3,27,28,30,32,33], families [26,30], and older community-dwelling people [9].…”

Section: Setting and Participantsmentioning

confidence: 99%

Section: Qualitative Synthesismentioning

confidence: 99%

Section: Qualitative Synthesismentioning

confidence: 99%

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Effects, Barriers and Facilitators in Predischarge Home Assessments to Improve the Transition of Care from the Inpatient Care to Home in Adult Patients: An Integrative Review

Kirchner-Heklau

Krause

Saal

2020

Preprint

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mHealth applications to support caregiver needs and engagement during stroke recovery: A content review

Lobo

Frølich

Kensing

et al. 2020

Research in Nursing & Health

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Caregiving in stroke results in severe physical, psychological, and social impacts on the caregiver. Over the past few years, researchers have explored the use of mHealth technologies to support healthcare-related activities due to their ability to provide real-time care at any given place or time. The purpose of this content review is to investigate mHealth apps in supporting stroke caregiving engagement based on three aspects: motivation, value, and satisfaction. We searched app stores and repositories for apps related to stroke caregiving published up to September 2020. Extracted apps were reviewed and filtered using inclusion criteria, and then downloaded onto compatible devices to determine eligibility. Results were compared with evidence-based frameworks to identify the ability of these apps in engaging and supporting the caregiver. Forty-seven apps were included in this review that enabled caregivers to support their needs, such as adjustment to new roles and relationships, involvement in care and caring for oneself using several different functionalities. These functionalities include information resources, risk assessment, remote monitoring, data sharing, reminders and so on. However, no single app was identified that focuses on all aspects of stroke caregiving. We also identified several challenges faced by users through their reviews and the factors associated with value and satisfaction. Our findings can add to the knowledge of existing mHealth technologies and their functionalities to support stroke caregiving needs, and the importance of considering user engagement in the design. They can be used by developers and researchers looking to design better mHealth apps for stroke caregiving.

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Carers' Experiences, Needs, and Preferences During Inpatient Stroke Rehabilitation: A Systematic Review of Qualitative Studies

Luker

Murray

Lynch

et al. 2017

Archives of Physical Medicine and Rehabilitation

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This systematic review provides new insights into the experiences, needs, and preferences of carers of stroke survivors undergoing inpatient rehabilitation. Carers experienced distress as they navigated a foreign culture and environment without adequate communication and processes in place for their inclusion. We recommend deliberate efforts to provide a more inclusive environment that better supports and prepares carers for their new role.

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Stroke survivorsâ€™, caregiversâ€™, and health care professionalsâ€™ perspectives on the weekend pass to facilitate transition home

Cited by 15 publications

References 22 publications

Effects, Barriers and Facilitators in Predischarge Home Assessments to Improve the Transition of Care from the Inpatient Care to Home in Adult Patients: An Integrative Review

Effects, Barriers and Facilitators in Predischarge Home Assessments to Improve the Transition of Care from the Inpatient Care to Home in Adult Patients: An Integrative Review

mHealth applications to support caregiver needs and engagement during stroke recovery: A content review

Carers' Experiences, Needs, and Preferences During Inpatient Stroke Rehabilitation: A Systematic Review of Qualitative Studies

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