mHealth applications to support caregiver needs and engagement during stroke recovery: A content review

Lobo, Elton H; Frølich, Anne; Kensing, Finn; Rasmussen, Lene Juel; Livingston, Patricia M.; Grundy, John; Abdelrazek, Mohamed

doi:10.1002/nur.22096

Cited by 18 publications

(21 citation statements)

References 79 publications

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“…Currently, several caregivers in stroke have employed technology connected to the internet to ensure better care for their loved ones [9, 19, 21, 36]. However, the reliability of these technologies to support the constantly changing needs of stroke caregivers during recovery has not been fully explored [43]. Hence there is a need to develop a tool that addresses all the aspects mentioned above.…”

Section: Discussionmentioning

confidence: 99%

Information, Involvement, Self-care and Support - The Needs of Caregivers of People with Stroke: A Grounded Theory Approach

Lobo

Froelich

Abdelrazek

et al. 2021

Preprint

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Background: Globally, stroke is a leading cause of death and disability, with most care undertaken by caregivers who are generally family and friends without prior experience of care. The lack of experience or unpreparedness results in feelings of uncertainty, burnout, anxiety, burden, etc. Hence, it is necessary to identify the needs of caregivers to support them in their caregiving journey better and improve the quality of care delivered. Methods: The study employed a grounded theory methodology that utilizes information gathered from literature reviews and social media to represent the needs and create a storyline visually. The storyline is further refined and evaluated using an online survey of 72 participants recruited through online stroke caregiving communities. Results: The study identified four core categories of needs, i.e., information, involvement, self-care and support that need to be delivered at appropriate times to ensure the caregivers feel prepared to assume their role of care and are supported throughout the care trajectory. Conclusions: There is a need to create a caregiver-centered approach in stroke recovery to ensure limited obstruction to care and reduced uncertainty in recovery. Moreover, through the inclusion of caregivers in the recovery process, it may be possible to reduce the burden of care to the caregiver and ensure the satisfaction of the healthcare system throughout recovery.

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Section: Discussionmentioning

confidence: 99%

Information, Involvement, Self-care and Support - The Needs of Caregivers of People with Stroke: A Grounded Theory Approach

Lobo

Froelich

Abdelrazek

et al. 2021

Preprint

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“…Furthermore, there are numerous concerns regarding the level of use by stroke caregivers. As a result, several research-based stroke caregiving technologies are not yet fully realized in commercial markets for use by caregivers of those with stroke (28).…”

Section: Methodological Issues In Stroke Caregiving Technologymentioning

confidence: 99%

Understanding the Methodological Issues and Solutions in the Research Design of Stroke Caregiving Technology

Lobo

Frølich

Rasmussen

et al. 2021

Front. Public Health

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The rise in the number of cases of stroke has resulted in a significant burden on the healthcare system. As a result, the majority of care for the person living with stroke occurs within the community, resulting in caregivers being a central and challenged agent in care. To better support caregivers during the recovery trajectory poststroke, we investigated the role of health technologies to promote education and offer various kinds of support. However, the introduction of any new technology comes with challenges due to the growing need for more user-centric systems. The integration of user-centric systems in stroke caregiving has the potential to ensure long-term acceptance, success, and engagement with the technology, thereby ensuring better care for the person living with stroke. We first briefly characterize the affordances of available technologies for stroke caregiving. We then discuss key methodological issues related to the acceptance to such technologies. Finally, we suggest user-centered design strategies for mitigating such challenges.

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“…Then the eligibility of the app was determined after installing the app on compatible devices. A detailed description of the app filtration and identification process is described in a previous study [25].…”

Section: App Identificationmentioning

confidence: 99%

“…As a consequence, usability and user experience techniques are considered to be a recognized standard [22] for technological improvement [23] that focuses on achieving user satisfaction by concentrating on hedonic and pragmatic goals [24]. This study, therefore, aims towards analysing and evaluating the user reviews of apps that support stroke caregivers healthcare needs [25] based on usability and user experience dimensions [26]. The results of this analysis can potentially help mobile app developer's researchers to understand the factors that affect long-term adherence and usage in stroke caregiving technology.…”

Section: Introductionmentioning

confidence: 99%

Detecting Usability and User Experience Issues in Stroke Caregiving Apps: An Analysis of User Reviews

Lobo¹,

Abdelrazek²,

Frølich³

et al. 2022

Preprint

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(1) Background: Existing research has demonstrated the potential of mHealth apps in improving the caregiving outcomes of stroke. Since several apps were published in commercially available app stores without explaining their design and evaluation processes, it is necessary to identify the usability and user experience issues to promote long-term adherence and usage; (2) Methods: User reviews were extracted from the 47 previously identified apps that support stroke caregiving needs using a python-scraper. The reviews were pre-processed and filtered using python scripts. The final corpus was classified based on usability and user experience dimensions to highlight issues within the app; (3) Results: A total of 162,095 were extracted from the two app stores. After filtration, 15,818 reviews were included and classified based on the usability and user experience dimensions. Findings highlight critical issues related to the errors/effectiveness, efficiency and support that contribute to decreased satisfaction, emotion and frustration in using the app; (4) Conclusion: The study identified several usability and user experience issues due to the inability of the app developers to understand the needs of the user. Further, the study describes the inclusion of a participatory design approach to promote an improved understanding of user needs; therefore, limiting any issues and ensuring continued use.

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mHealth applications to support caregiver needs and engagement during stroke recovery: A content review

Cited by 18 publications

References 79 publications

Information, Involvement, Self-care and Support - The Needs of Caregivers of People with Stroke: A Grounded Theory Approach

Information, Involvement, Self-care and Support - The Needs of Caregivers of People with Stroke: A Grounded Theory Approach

Understanding the Methodological Issues and Solutions in the Research Design of Stroke Caregiving Technology

Detecting Usability and User Experience Issues in Stroke Caregiving Apps: An Analysis of User Reviews

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