BackgroundYoung people with type 1 diabetes often struggle to self-manage their disease. Mobile health (mHealth) apps show promise in supporting self-management of chronic conditions such as type 1 diabetes. Many health care providers become involved in app development. Unfortunately, limited information is available to guide their selection of appropriate methods, techniques, and tools for a participatory design (PD) project in health care.ObjectiveThe aim of our study was to develop an mHealth app to support young people in self-managing type 1 diabetes. This paper presents our methodological recommendations based on experiences and reflections from a 2-year research study.MethodsA mixed methods design was used to identify user needs before designing the app and testing it in a randomized controlled trial. App design was based on qualitative, explorative, interventional, and experimental activities within an overall iterative PD approach. Several techniques and tools were used, including workshops, a mail panel, think-aloud tests, and a feasibility study.ResultsThe final mHealth solution was “Young with Diabetes” (YWD). The iterative PD approach supported researchers and designers in understanding the needs of end users (ie, young people, parents, and health care providers) and their assessment of YWD, as well as how to improve app usability and feasibility. It is critical to include all end user groups during all phases of a PD project and to establish a multidisciplinary team to provide the wide range of expertise required to build a usable and useful mHealth app.ConclusionsFuture research is needed to develop and evaluate more efficient PD techniques. Health care providers need guidance on what tools and techniques to choose for which subgroups of users and guidance on how to introduce an app to colleagues to successfully implement an mHealth app in health care organizations. These steps are important for anyone who wants to design an mHealth app for any illness.
The article presents a conceptual framework and a coherent method for design in an organizational context within the participatory design tradition. The MUST method has been developed throughout 10 projects in Danish and American organizations, and it has recently been evaluated and adopted by 3 Danish organizations. The method is based on thorough participation with users and managers, and it combines the use of ethnographic techniques and intervention. The article describes the application area and perspective of the method, presents 6 general principles on which the method is based, and describes 5 main activities providing a stepwise decision-making process in the overall design process. Each of the main activities are illustrated by an example taken from our last project. The article concludes by summing up the main points.
In Scandinavia user participation arose In the context of action-oriented researcii with trade unions in the iate 1970s. Both authors participated in such projects (aiso see the articie by Clement et ai. in this issue). The approach was oriented toward increasing the infiuence of woricers and their unions over the deveiopment and use of technoiogy at their woricpiaces.
Healthcare providers should address the parties' challenges and concerns living with type 1 diabetes to diminish worries about future including fear of hypoglycaemia, the burden of type 1 diabetes and the feeling of being incompetent in diabetes self-management. It is important to focus on supporting both adolescents and their parents, and to provide a shared platform for communication.
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