Stroke survivors with aphasia: personal experiences of coming home

Pringle, Jan; Hendry, Charles; McLafferty, Ella; Drummond, John

doi:10.12968/bjcn.2010.15.5.47950

Cited by 21 publications

(15 citation statements)

References 24 publications

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“…Of the few positive outcomes for family members reported in previous studies, those also described in this study included hopefulness and appreciation (Pringle, Hendry, McLafferty, & Drummond, 2010), improved relationship with their spouse (Williams, 1993), improved relationships other family members (King & Shade-Zeldow, 1995), and meeting new people (Nätterlund, 2010). Family members also discussed personal growth associated with their experience of aphasia (Nätterlund, 2010) and more instances of physical affection between the family member and the person with aphasia, although, in the cases of spouses of people with aphasia, sexual contact was often diminished (Lemieux, Cohen-Schneider, & Holzapfel, 2001;Michallet et al, 2003).…”

Section: Discussionsupporting

confidence: 54%

A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia

et al. 2013

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the term "third-party disability" and identifies the need for further investigation into family members' Functioning and Disability in relation to a significant other's health condition. Aims: This qualitative investigation represents the first phase of a mixed methods study to develop a tool for measuring third-party functioning and third-party disability in aphasia. The aims of this phase of the study were to explore: (1) the positive aphasia-related changes associated with third-party functioning, and; (2) the negative aphasia-related changes associated with third-party disability, as experienced by family members of adults with aphasia post-stroke. Methods & Procedures:This study used an inductive design with a qualitative descriptive research strategy to explore the lived experience of having a relative with aphasia. Twenty family members (e.g., spouses, parents, children, siblings, etc.) of individuals with aphasia participated in individual in-depth semi-structured interviews. The interviews were analysed using qualitative content analysis. Outcomes & Results: Analysis revealed five categories of positive aphasia-related changes associated with third-party functioning: (1) emotions; (2) communication; (3) relationships; (4) recreational activities and social life; and (5) paid/volunteer work or education. In addition, seven categories of negative aphasia-related changes associated with thirdparty disability were revealed: (1) physical, mental, and emotional health; (2) communication; (3) relationships; (4) recreational activities and social life; (5) paid/volunteer work or education; (6) domestic and caregiving responsibilities; and (7) finances. Conclusions: Interpreted within the framework of the ICF, this study showed how the pervasive effects of aphasia are associated with changes in Functioning and Disability in family members, providing a holistic description of family members' experience using

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Section: Discussionsupporting

confidence: 54%

A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia

et al. 2013

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“…(, ) explored the meaning of living successfully with aphasia in the first year post‐stroke; Pringle et al . () studied the experience of coming home from hospital for stroke survivors with aphasia; and Brady et al . () explored the impact of post‐stroke dysarthria upon social participation.…”

Section: Introductionmentioning

confidence: 99%

How do stroke survivors with communication difficulties manage life after stroke in the first year? A qualitative study

Wray

Clarke

Forster

2019

Intl J Lang & Comm Disor

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Background: Interest in how stroke survivors might be better supported to manage life after stroke has grown rapidly in recent years, with a particular emphasis on enabling 'self-management'. Post-stroke communication difficulties may pose a unique barrier to longer term adaptation and adjustment. It is important to understand how stroke survivors with communication difficulties manage life after stroke and what support may be needed to facilitate this process. Aims: To explore how stroke survivors with communication difficulties manage life after stroke in the first year. Methods & Procedures:A cross-sectional qualitative study involving in-depth semi-structured interviews with stroke survivors with communication difficulties (aphasia, dysarthria or apraxia of speech) and/or their family members at single time points during the first year post-stroke. A total of 21 participants (14 stroke survivors and seven family members) took part in interviews for the study. Interview data were analysed using thematic analysis. Outcome & Results: A total of six themes were identified: (1) strategies to manage changes to communication; (2) testing communication outside of the home; (3) balancing support and independence; (4) hope for recovery; (5) obtaining support from healthcare professionals; and (6) adapting activities and keeping busy. Stroke survivors with communication difficulties and their family members undertook significant work (practical, relational, emotional) to manage their condition. Adaptation and adjustment was often facilitated by 'doing'; testing out which activities could be managed independently and which required additional support. Some stroke survivors and their family members demonstrated considerable resourcefulness and creativity in developing strategies to manage their communication difficulties. Despite the work undertaken, many expressed a lack of confidence in their ability and feelings of powerlessness and abandonment at the point of discharge from community services. Conclusions & Implications: Stroke survivors and their family members develop personally meaningful and contextspecific strategies to adjust to and manage life after stroke. Future interventions should recognize, support and build upon the active work already undertaken by stroke survivors with communication difficulties and their families. Further support before and around the point of discharge from community services may be needed to help build confidence and skills to manage in the longer term. The benefit of a supported self-management approach for stroke survivors with communication difficulties should be further investigated. What this paper addsWhat is already known on the subject Few qualitative studies have explored how stroke survivors with communication difficulties and their family members manage life after stroke in the first year. Considering the poor longer term outcomes experienced by this population, it is important to understand how stroke survivors with communication difficulties manage during this time and w...

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“…In Brazil, 68,000 stroke-related deaths (1) are reported every year. Up to 70% of the stroke patients who are discharged from hospital struggle with issues related to oral communication and residual functional disability, which impacts their independence regarding activities of daily living (2,3) . The loss of oral communication in stroke results from aphasia and dysarthria (4) , loss of communication capabilities that may create social isolation and subsequent depressive conditions (5) .…”

Section: Introductionmentioning

confidence: 99%

Caracterização de acidente vascular cerebral com enfoque em distúrbios da comunicação oral em pacientes de um hospital regional

Goulart

Almeida

Silva³

et al. 2016

Audiol., Commun. Res.

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Purpose: To characterize patients with stroke and to establish the prevalence of oral communication disorders (CD) related by cerebrovascular accident (CVA) and the frequency of indication or request of speech therapy. Methods: A retrospective cross-sectional study from the medical report forms of 95 patients hospitalized for stroke between June 2007 and June 2008 in a regional public hospital. Results: Out of the 95 patients, 51 (53.7%) were male (mean age was 59.8 years old), 48 (59.3%) had a history of hypertension, 82 (86.3%) had ischaemic stroke and CD were present in 53 (55.8%) of patients. The mean hospital stay was 5 days. There was no significant relationship between the type of stroke and CD, or between the site of neurological damage due to stroke and the occurrence of CD. None of the subjects received an evaluation or speech-language therapy during hospitalization, and there were no referrals to healthcare after discharge. Conclusion: More than 50% of individuals affected by stroke had oral communication disorders during the hospitalization. There was no any indication or request for speech therapy in this period, even after discharge. These findings indicate a probable failure to integrate with the speech therapy staff for the treatment of patients with neurological diseases. It is necessary to further evaluate whether this is due absence of speech therapists in the team or just healthcare professionals lacking knowledge about the possibilities of speech therapy along with disturbances in oral communication due to stroke. isquêmico e 53 (55,8%), distúrbios de comunicação oral. O tempo médio de internação foi de cinco dias. Não houve relação significativa entre o tipo de AVC e distúrbio de comunicação oral, tampouco entre o local da lesão neurológica decorrente do AVC e a ocorrência de distúrbio de comunicação oral. Nenhum dos sujeitos recebeu indicação de avaliação ou tratamento fonoaudiológico durante a internação ou na alta. Conclusão: Mais de 50% dos indivíduos acometidos por AVC apresentam distúrbios de comunicação oral durante o período de internação hospitalar. Não houve nenhuma indicação ou solicitação de atendimento fonoaudiológico neste período, tampouco em encaminhamento para atendimento após a alta hospitalar. Estes achados indicam provável falha da inserção fonoaudiológica em equipes que atendem pacientes acometidos por doenças neurológicas, sendo necessário avaliar mais profundamente se isto ocorre devido à ausência do fonoaudiólogo na equipe, ou ao pouco conhecimento dos profissionais sobre a atuação fonoaudiológica junto aos distúrbios de comunicação oral decorrentes de AVC. Keywords

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Stroke survivors with aphasia: personal experiences of coming home

Cited by 21 publications

References 24 publications

A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia

A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia

How do stroke survivors with communication difficulties manage life after stroke in the first year? A qualitative study

Caracterização de acidente vascular cerebral com enfoque em distúrbios da comunicação oral em pacientes de um hospital regional

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