A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia

Grawburg, Meghann; Howe, Tami; Worrall, Linda; Scarinci, Nerina

doi:10.1080/02687038.2013.768330

Cited by 50 publications

(40 citation statements)

References 51 publications

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“…Like other carers, they have to take on more household chores, make legal decisions, deal with finances, oversee medical and personal care as well as being supportive in therapy (Grawburg, Howe, & Worrall, 2013).…”

Section: Introductionmentioning

confidence: 99%

“…Carers' levels of activity and participation can be affected in many different ways; the most directly affected area may be communication with the person with aphasia (Threats, 2010). Lack of conversation or having different ways of communicating can impact on the carers' recreational activities and their social life, for example loss of shared activities due to communication difficulties or having less time and energy for independent activities (Grawburg et al, 2013;Howe et al, 2012). Loss of language function can also cause significant changes to the relationship with the person with aphasia, and changes in wider family dynamics and roles, which negatively impact on carers' mental well-being (Cumming et al, 2008).…”

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confidence: 99%

“…To date aphasia studies have explored the above topics through qualitative interviews (Grawburg et al, 2013;LeDorze & Signori, 2010) or questionnaires (Bakas et al, 2006;McGurk et al, 2011). This study will take a novel approach by investigating the impact of stroke and aphasia on carers, as it emerges from carers' own accounts in their blogs.…”

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confidence: 99%

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Aphasia blog talk: How does stroke and aphasia affect the carer and their relationship with the person with aphasia?

et al. 2014

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Citation: Winkler, M., Bedford, V., Northcott, S. and Hilari, K. (2014). Aphasia blog talk:How does stroke and aphasia affect the carer and their relationship with the person with aphasia?. Aphasiology, doi: 10.1080Aphasiology, doi: 10. /02687038.2014 This is the unspecified version of the paper.This version of the publication may differ from the final published version. Permanent AbstractBackground: Carers of stroke survivors with aphasia are at risk of experiencing negative bio-

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Section: Introductionmentioning

confidence: 99%

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confidence: 99%

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Aphasia blog talk: How does stroke and aphasia affect the carer and their relationship with the person with aphasia?

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“…Given that family members are considered to have third-party disability, addressing their needs may also promote change that would positively impact on person with aphasia. 157,158,195 …”

Section: Limitationsmentioning

confidence: 99%

“…They noted that the lasting effects of aphasia contributed to third-party disability for the family members. 157,158 These effects on family caregivers can be seen in direct out-of-pocket costs, lost wages and productivity, and can impact physical and emotional health. 159,160 Interviews revealed changed interpersonal relationships, loss of autonomy, a need for respite and support, and a need to process their own grief.…”

Section: Introductionmentioning

confidence: 99%

Outcomes of an Intensive Comprehensive Aphasia Program

Babbitt¹

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Intensive comprehensive aphasia programs (ICAP) have increased over the last decade in the US and abroad. The increase in the number of clinical programs has outpaced the research that is necessary to establish the efficacy and effectiveness of these specialized treatment programs. The ICAP model incorporates principles from neuroplasticity, that is, intensive treatment provides a platform for the massed practice and repetition required to change the brain. It also incorporates comprehensive treatment that addresses not only impairment-based language deficits but also personal goals related to participation.Programs which offer intensive comprehensive treatment can provide up to 120 hours of treatment over several weeks (e.g., six hours a day, five days a week for four weeks). ICAPs are different from other types of aphasia services which generally provide two to three hours of therapy a week. This thesis examined one ICAP in depth to describe the structure, process, and outcomes using Donabedian's model of health care evaluation. This thesis also described the experiences of the ICAP from the perspectives of the primary stakeholders.Study One (Chapter Two) was a retrospective quantitative study using behavioral measures from an existing database that documented the outcomes of participants with aphasia. It found that first-time participants improved significantly in impairment-and participationbased measures, demonstrating moderate to large effect sizes. Participant characteristics were examined to determine if improvements were related to age, time post-onset, or type and severity of aphasia. None of these factors had an impact on the amount of change measured. Given that some participants did not make significant gains on a primary outcome measure, the Western Aphasia Battery -Revised Aphasia Quotient (WAB-R AQ), Study Two (Chapter Three) examined whether participant characteristics at baseline could predict who would make significant gains on the WAB-R AQ. Age and months post-onset were significantly different between the responder and the non-responder groups. Those who showed most gains on average were younger and a longer time post-onset. A logistic regression was performed and results indicated that only age (younger participants) predicted who would respond to treatment. Time post-onset, type and severity of aphasia, naming, non-verbal cognition, and communication confidence did not show significance in a predictive model. Studies Three and Four were qualitative studies involving interviews with therapists (Chapter Four) and people with aphasia and their families (Chapter Five). Both studies were 3 conducted using a phenomenological approach which allowed for the interviewees to describe their experiences in a semi-structured interview. The clinicians described the intensity of the therapy, the rewards, and challenges of the program. Therapists also considered that the ICAP model of service delivery had several positive benefits for them, but acknowledged that the intensity of therapy was challe...

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The World Health Organization Model of Health: What Evidence Is Needed?

Peterson

Threats

2016

Handbooks in Health, Work, and Disability

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A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia

Cited by 50 publications

References 51 publications

Aphasia blog talk: How does stroke and aphasia affect the carer and their relationship with the person with aphasia?

Aphasia blog talk: How does stroke and aphasia affect the carer and their relationship with the person with aphasia?

Outcomes of an Intensive Comprehensive Aphasia Program

The World Health Organization Model of Health: What Evidence Is Needed?

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