Background: A core outcome set (COS; an agreed, minimum set of outcomes) was needed to address the heterogeneous measurement of outcomes in aphasia treatment research and to facilitate the production of transparent, meaningful and efficient outcome data. Objective: The Research Outcome Measurement in Aphasia (ROMA) consensus statement provides evidence-based recommendations for the measurement of outcomes for adults with post-stroke aphasia within phase I-IV aphasia treatment studies. Methods: This statement was informed by a four-year program of research which comprised investigation of stakeholder-important outcomes using consensus processes, a scoping review of aphasia outcome measurement instruments, and an international consensus meeting. This paper provides an overview of this process and presents the results and recommendations arising from the international consensus meeting. Results: Five essential outcome constructs were identified: Language, communication, patient-reported satisfaction with treatment and impact of treatment, emotional wellbeing, and quality of life. Consensus was reached for the following measurement instruments: Language: The Western Aphasia Battery Revised (WAB-R) (74% consensus); emotional well-being: General Health Questionnaire (GHQ)-12 (83% consensus); quality of life: Stroke and Aphasia Quality of Life Scale (SAQOL-39) (96% consensus). Consensus was unable to be reached for measures of communication (where multiple measures exist) or patientreported satisfaction with treatment or impact of treatment (where no measures exist). Discussion: Harmonisation of the ROMA COS with other core outcome initiatives in stroke rehabilitation is discussed. Ongoing research and consensus processes are outlined. Conclusion: The WAB-R, GHQ-12, and SAQOL-39 are recommended to be routinely included within phase I-IV aphasia treatment studies. This consensus statement has been endorsed by the Collaboration of Aphasia Trialists, the British Aphasiology Society, the ROMA consensus panel
ICAPs can have a significant effect on the language impairment and participation of people with aphasia, but further research is required to determine if the effect is comparable to other types of service delivery.
Background Given the impetus from national and international organizations, clinicians need to have access to tools to fully assess how well the person is living with aphasia (Kagan & Simmon-Mackie, 2007). Communication confidence is one construct that may be related to quality of life, but has not been explored in aphasia research until recently (reference removed for anonymity). The construct of communication confidence was introduced by participants and family members during qualitative post-treatment interviews as part of a research study using a computer program to deliver language therapy (reference removed for anonymity). However, communication confidence was not assessed fully in the standardized evaluation protocol. Only one test, the ASHA-QCL, touched on communication confidence by asking the person to rate a single item "I am confident I can communicate." Therefore, a comprehensive scale asking persons to self-rate communication confidence was needed. This poster presents data from the second phase of a project in which a self rating scale of communication confidence has been developed and tested. In phase 1, an 8-item CCRSA, based on items from the ASHA-QCL, was developed and administered 42 times (reference removed for anonymity). Although Rasch analysis indicated good person and item reliability, recommendations for improvement were made to modify the questionnaire. In Phase 2, a revised 10-item CCRSA has been evaluated psychometrically.
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