Spouses' perceptions of persons with aphasia

Croteau, Claire; Dorze, Guylaine Le

doi:10.1080/02687040143000221

Cited by 19 publications

(14 citation statements)

References 26 publications

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“…We can also hypothesise that spouses gave a higher priority to the needs of the person with aphasia rather than their own, because he/she had been suddenly and sometimes dramatically ill. Spouses also have been reported as perceiving their aphasic partners as soliciting sympathy and support [43]. Consequently, they may have felt obligated to be the caring one within the couple, another factor contributing to their sense of burden and their need for respite and support.…”

Section: Discussionmentioning

confidence: 97%

Needs, barriers and facilitators experienced by spouses of people with aphasia

Dorze

Signori

2009

Disability and Rehabilitation

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Results confirm the long-term needs of spouses in adjusting to the aphasia of their partner, as well as the limited services available to them. Many of the needs reflected spouses' concerns about their partner, while others were a consequence of their caregiving role as well as the unavailability of support. Spouses of people with aphasia should have access to support during and after rehabilitation.

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Section: Discussionmentioning

confidence: 97%

Needs, barriers and facilitators experienced by spouses of people with aphasia

Dorze

Signori

2009

Disability and Rehabilitation

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“…Consequently they may need different kinds of support during the rehabilitation process (Avent et al, 2005;Cameron & Gignac, 2007;Michallet et al, 2001). In addition, SOs of different sex (Croteau & Le Dorze, 2001;Santos, Farrajota, Castro-Caldas, & De Sousa, 1999) and age (Greenwood, Mackenzie, Cloud, & Wilson, 2008;Le Dorze & Brassard, 1995) may have different experiences and thereby different needs. For example, SOs who are still of working age (in Sweden below the age of 65 years) may need different support from those who are retired when their relative is afflicted by a stroke and aphasia.…”

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confidence: 97%

Communication changes and SLP services according to significant others of persons with aphasia

et al. 2012

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Background: Significant others are important to persons with aphasia. For several reasons they should be involved in speech-language pathology (SLP) services, including acquiring facilitating communicative strategies and receiving support. In order to further adapt SLP services there is a need to know the perceptions and views of the significant others. Little is known about how they perceive changes in communication as well as received SLP services and in what way they want to be involved in these services. Aims: The study aimed to investigate which communicative changes significant others of persons with aphasia had experienced after a stroke event and to what extent these changes were experienced. A further aim was to describe the significant others' experiences of SLP services and their motivation to participate in these services. Finally, the significant others' experiences were compared in terms of sex, age, type of relationship, time since stroke onset, and type and severity of aphasia. Methods & Procedures:An 80-item study-specific questionnaire was answered by 173 significant others of persons with aphasia living throughout Sweden (response rate 69%). Of these, 33% were male and 67% female. Mean age was 64.2 years (range 33-87 years) and 85.5% of the participants were a cohabiting partner to a person with aphasia. Outcomes & Results: A total of 64% of participants perceived their conversations as being less stimulating and enjoyable compared with conversations before stroke onset. Aphasia was considered a substantial or very substantial problem by 64%. The participants took on an increased communicative responsibility, and 70% had changed their communicative behaviour in order to facilitate conversations. A total of 75% (n = 130) had met with the SLP of the person with aphasia. Of those, 63% perceived their own support from SLP services to be adequate; 87% considered language ability training as the most important

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“…We know from previous research that family and friends can become anxious about communication, and attempts at normal conversation may result in feelings of fatigue, discouragement, and sadness (Le Dorze & Signori, 2010;Michallet, Tétreault, & Le Dorze, 2003). Others may perceive the person with aphasia differently, for example more difficult to talk to, less likable, less interested in achievement, less capable of endurance with less capacity to care for others (Croteau & Le Dorze, 2001). Partners often become the primary carers with additional responsibilities (Hammell, 2001) and new behaviours such as overprotectiveness and assuming the speaker role in conversation may develop thereby excluding the person with aphasia (Croteau, Vychytil, Larfeuil, & Le Dorze, 2004;Halle, Duhamel, & Le Dorze, 2011;Purves, 2009).…”

Section: Introductionmentioning

confidence: 99%