Needs, barriers and facilitators experienced by spouses of people with aphasia

Dorze, Guylaine Le; Signori, France-Hélène

doi:10.3109/09638280903374121

Cited by 79 publications

(77 citation statements)

References 46 publications

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“…The median age of participants was 78. This study sample showed a spread of deprivation (deciles ranged [3][4][5][6][7][8][9] but was skewed toward people from the least deprived areas (median decile 7.5). Initial questioning about problems revealed that the meaning of a 'problem' varied between individuals and issues, and some rejected the word 'problem', therefore, these have been termed 'issues'.…”

Section: Resultsmentioning

confidence: 99%

“…A wide range of unmet needs are reported by stroke survivors in the longer term, including those which persist from six months to fifteen years [4][5][6][7]. Mapping to frameworks such as the Disability Creation Process [5], and the International Classification of Functioning, Disability and Health [7] demonstrates that stroke survivor needs can relate to a range of factors.…”

Section: Introductionmentioning

confidence: 99%

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A qualitative exploration of self-reported unmet need one year after stroke

Shannon

Forster

Hawkins

2016

Disability and Rehabilitation

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This is the pre-peer reviewed version of the following article: Shannon R, Forster A, Hawkins R. "A qualitative exploration of self-reported unmet need one year after stroke" Disability and Rehabilitation. In press. which has been published in final form at: http://dx.doi.org/10.3109/09638288.2015.1107784 TITLE PAGEA qualitative exploration of self-reported unmet need one year after stroke. Authors:Rosie L Shannon, MSc ABSTRACT PurposeStroke survivors consistently report longer-term problems after stroke, suggesting their needs are not being met. We developed a questionnaire to identify stroke survivor unmet needs. Preliminary questionnaire testing showed that despite residual impairment, nearly one third of respondents reported no/low unmet need. This qualitative study aims to gain insight into why stroke survivors report low/no unmet needs. MethodPeople who self-reported zero or one unmet need were purposively sampled, and semistructured interviews conducted with ten participants. Identification and management of current problems wasdiscussed,and thematic analysis undertaken. ResultsParticipants did not report having unmet need. Despite this, all participants identified current issues or problems. Living with problems while reporting no/low unmet need is explained through: acceptance of changed circumstances; making comparisons with other people and circumstances; valuing pride, determination or independence; viewing issues in the context of their expectations and experiences of services. Additionally, all participants were receiving some support. ConclusionsSelf-identification of unmet needs is complex. Further investigation could explore the factors which enable stroke survivors to appropriately identify and experience no unmet needs, and whether these could be applied to reduce unmet needs of others. IMPLICATIONS FOR REHABILITATION Despite self-reporting no/low unmet need, survivors of stroke may still be experiencing difficulties in their daily lives. Stroke-survivor-identified low unmet need is influenced by complex factors including: acceptance; expectations of services; and comparisons with other people, which health and social care professionals have a role in understanding. Health professionals could assess unmet need by using tools as a guide, supported by individual conversation. Factors which enable some stroke survivors to appropriately identify and experience no/low unmet need could be further explored, and considered as strategies to reduce unmet needs of others. MAIN TEXT

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Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

A qualitative exploration of self-reported unmet need one year after stroke

Shannon

Forster

Hawkins

2016

Disability and Rehabilitation

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“…The number of 41 inclusions from 263 eligible clients (16%) was lower than expected, based on perceived needs previously outlined by partners [47] [48]. This may be due to several factors including attitudinal factors from both service providers and service users as well as 25 organisational factors such as SLT staffing.…”

mentioning

confidence: 75%

ImPACT: a multifaceted implementation for conversation partner training in aphasia in Dutch rehabilitation settings

Wielaert

Sandt-Koenderman

Dammers

et al. 2016

Disability and Rehabilitation

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ImPACT: a multifaceted implementation for conversation partner training in aphasia inDutch rehabilitation settings. AbstractPurpose: Exploration of the clinical uptake of a novel conversation partner training (CPT) programme in aphasia in ten Dutch rehabilitation facilities and identification of its perceived facilitators and barriers in service providers, and the evaluation of the implementation methods used. Method:Ten rehabilitation centres took part in a multifaceted implementation of conversation partner training over thirteen months. Each centre selected two speech and language therapists to act as knowledge brokers whose role it was to raise awareness of CPT in the team and to facilitate getting partners of people with aphasia into the programme. The implementation was evaluated using analysis of recruitment data and questionnaires, supplemented by consensus data and scrutiny of implementation plans.Results: Successful implementation was described as 1) four dyads included during the intervention period, 2) two more dyads included after the intervention period, before the end of the study and 3) inclusion of Partners of Aphasic Clients Conversation Training (PACT) in a description of the logistics of local stroke care (stroke care pathway). Seven centres were successful in reaching the target inclusion of 6 dyads in total. Only one centre had care pathways in place. From a recruitment pool of 504 dyads, 41 dyads were recruited and 34 partners completed the implementation of PACT study (ImPACT). Observed facilitators included the motivation to engage partners in the rehabilitation process and the perceived added value of PACT. The perceived barriers focused on time limitations within current systems to discuss the consequences of PACT with relevant professionals and to establish allocated time for PACT within existing care routines. Conclusions:The motivation of professionals to involve partners in the rehabilitation process assisted with the introduction of PACT in practice. The main barrier was time, linked to the requirement to think through integration of this innovation within existing care. Longer term evaluation would ascertain how centres sustain uptake without support.

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“…The older family members wanted to keep external framework of the family in good condition and they were extremely happy to the care of the stoke patient. This helped them to cope during the difficult times [36,44,45] . The very exact information distributed in a website (StrokEngine, Caretalk, Caring -Web) developed in Canada and the USA which dealt with stroke and rehabilitation, and the possibility to be in contact with the healthcare professionals and peers, received positive feedback from family members.…”

Section: Rebuilding Of Lifementioning

confidence: 99%

“…Recognizing the needs of the family members from the first moments are important [36][37][38] . The family members whose sick relative was in the hospital longer had a better opportunity to plan for the patient's discharge with the healthcare staff.…”

Section: Rebuilding Of Lifementioning

confidence: 99%

The everyday life of adult family members of working aged survivors of stroke during the first year after the stroke – an integrative review

Lehto¹,

Kylmä²,

Åstedt‐Kurki³

2013

Clinical Nursing Studies

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The purpose of this integrative review was to describe the everyday life of adult family members of working aged survivors of stroke during the first year after the occurrence of the stroke. The studies were researched from Medline, Cinahl, PsycINFO, Medic and Linda databases. The data consisted of 40 articles which were published in scientific journals during [2007][2008][2009][2010][2011][2012]. The quality of the articles were assessed with the critical appraisal tools JBI QARI and JBI MAStARI [1] . The articles were analyzed with thematic analysis. The everyday life of adult family members included initially becoming the family member of a survivor of stroke, living as their family member, and eventually coming to terms with life with the survivor of a stroke. Becoming the family member meant living in a focused state of chaos, trying to be strong for the loved one, and going forward in life. It also emphasized the need to rebuild and find a balance in the shadow of the illness and the needs of this complex situation. Coming to terms with the changed life situation of the family member consisted of trying to stabilize emotional wellbeing amid bouts of anxiety and depression. The results of this research should help nurses to better meet the needs of family members at the right time in order to help them deal with expected problems. There is much evidence about older caregivers' needs, but only scant evidence about younger caregivers and their working aged relatives, especially just after the stroke. This integrative literature review gives important information about the everyday life of family members of working aged survivors of stroke and helps nurses to better understand them and their needs.

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Needs, barriers and facilitators experienced by spouses of people with aphasia

Cited by 79 publications

References 46 publications

A qualitative exploration of self-reported unmet need one year after stroke

A qualitative exploration of self-reported unmet need one year after stroke

ImPACT: a multifaceted implementation for conversation partner training in aphasia in Dutch rehabilitation settings

The everyday life of adult family members of working aged survivors of stroke during the first year after the stroke – an integrative review

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