Addressing the long-term impacts of aphasia: how far does the Conversation Partner Programme go?

McMenamin, Ruth; Tierney, Edel; Farlane, Anne Mac

doi:10.1080/02687038.2015.1004155

Cited by 40 publications

(43 citation statements)

References 45 publications

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“…There is limited knowledge about suitable methods for involving stakeholders in a meaningful (rather than tokenistic) way in health research partnerships . There is evidence that participatory learning and action research approaches and methods seem promising . In line with this, our findings show that the application of specific PLA techniques in RESTORE proved fit for purpose.…”

Section: Discussionsupporting

confidence: 71%

“…There are some recent positive examples of PLA applied to primary care health research. These studies describe meaningful involvement of migrants and other stakeholders in the development of a guideline to improve communication in cross‐cultural consultations; involvement of people with aphasia, speech and language therapy educators and students in the evaluation of community services for people with aphasia; and involvement of a variety of marginalized groups (sex workers, homeless people, Irish Travellers, migrants and drug users) in the identification of priorities for primary care team activities . However, there has been no detailed analysis of stakeholders’ or researchers’ experiences of PLA techniques for data generation and co‐analysis used within a PLA‐brokered dialogue.…”

Section: Introductionmentioning

confidence: 99%

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Material practices for meaningful engagement: An analysis of participatory learning and action research techniques for data generation and analysis in a health research partnership

Brún

O’Donnell

et al. 2017

Health Expectations

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BackgroundThe material practices which researchers use in research partnerships may enable or constrain the nature of engagement with stakeholder groups. Participatory learning and action (PLA) research approaches show promise, but there has been no detailed analysis of stakeholders’ and researchers’ experiences of PLA techniques for data generation and co‐analysis.ObjectivesTo explore stakeholders’ and researchers’ experiences of PLA techniques for data generation and co‐analysis.DesignThe EU RESTORE implementation science project employed a participatory approach to investigate and support the implementation of guidelines and training initiatives (GTIs) to enhance communication in cross‐cultural primary care consultations. We developed a purposeful sample of 78 stakeholders (migrants, general practice staff, community interpreters, service providers, service planners) from primary care settings in Austria, England, Greece, Ireland and The Netherlands. We used speed evaluations and participatory evaluations to explore their experiences of two PLA techniques—Commentary Charts and Direct Ranking—which were intended to generate data for co‐analysis by stakeholders about the GTIs under analysis. We evaluated 16 RESTORE researchers’ experiences using interviews. We conducted thematic and content analysis of all evaluation data.Results PLA Commentary Charts and Direct Ranking techniques, with their visual, verbal and tangible nature and inherent analytical capabilities, were found to be powerful tools for involving stakeholders in a collaborative analysis of GTIs. Stakeholders had few negative experiences and numerous multifaceted positive experiences of meaningful engagement, which resonated with researchers’ accounts.Conclusion PLA techniques and approaches are valuable as material practices in health research partnerships.

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Section: Discussionsupporting

confidence: 71%

Section: Introductionmentioning

confidence: 99%

Material practices for meaningful engagement: An analysis of participatory learning and action research techniques for data generation and analysis in a health research partnership

Brún

O’Donnell

et al. 2017

Health Expectations

Self Cite

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“…These PLA principles allow groups of participants with varying literacy levels to work together to record and discuss issues relevant to the research question posed [60]. They recognise that participants are experts on their own life experience and they are particularly useful for groups that are typically disenfranchised from involvement in research; for example, migrants and people with aphasia [61, 62]. The participants adopt the role of co-researchers contributing to data generation and analysis.…”

Section: Methodsmentioning

confidence: 99%

“…A detailed summary of the methods used to facilitate this approach is given elsewhere [62, 67]; Table 3 provides a summary of each technique as it was used in this study.…”

Section: Methodsmentioning

confidence: 99%

Exploring levers and barriers to accessing primary care for marginalised groups and identifying their priorities for primary care provision: a participatory learning and action research study

O’Donnell

Tierney

O'Carroll³

et al. 2016

Int J Equity Health

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BackgroundThe involvement of patients and the public in healthcare has grown significantly in recent decades and is documented in health policy documents internationally. Many benefits of involving these groups in primary care planning have been reported. However, these benefits are rarely felt by those considered marginalised in society and they are often excluded from participating in the process of planning primary care. It has been recommended to employ suitable approaches, such as co-operative and participatory initiatives, to enable marginalised groups to highlight their priorities for care.MethodsThis Participatory Learning and Action (PLA) research study involved 21 members of various marginalised groups who contributed their views about access to primary care. Using a series of PLA techniques for data generation and co-analysis, we explored barriers and facilitators to primary healthcare access from the perspective of migrants, Irish Travellers, homeless people, drug users, sex workers and people living in deprivation, and identified their priorities for action with regard to primary care provision.ResultsFour overarching themes were identified: the home environment, the effects of the ‘two-tier’ healthcare system on engagement, healthcare encounters, and the complex health needs of many in those groups. The study demonstrates that there are many complicated personal and structural barriers to accessing primary healthcare for marginalised groups. There were shared and differential experiences across the groups. Participants also expressed shared priorities for action in the planning and running of primary care services.ConclusionsMembers of marginalised groups have shared priorities for action to improve their access to primary care. If steps are taken to address these, there is scope to impact on more than one marginalised group and to address the existing health inequities.Electronic supplementary materialThe online version of this article (doi:10.1186/s12939-016-0487-5) contains supplementary material, which is available to authorized users.

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“…Walking debates, a tool to encourage discussion and the formation of views, were conducted to enable reflection on the role of gender and setting in cyberbullying, to identify the characteristics of those impacted by victimization and perpetration and to explore current prevention and intervention efforts. “Flexible Brainstorming” and “Sorting and Ranking” facilitated discussion about the media through which cyberbullying takes place, and the carousel technique was used to enable the Advisory Group to consider motivations for cyberbullying and the impact on those involved (see for detailed description). At the end of the second session, the Advisory Group wrote their thoughts about the day on sticky notes as part of the on‐going evaluation.…”

Section: Methodsmentioning

confidence: 99%

Involving young people in cyberbullying research: The implementation and evaluation of a rights‐based approach

Dennehy

Cronin

Arensman

2018

Health Expectations

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BackgroundCyberbullying is an international Public Health concern. Efforts to understand and address it can be enhanced by involving young people. This paper describes a rights‐based collaboration with young people in a qualitative exploration of cyberbullying. It describes the establishment, implementation and evaluation of a Young Person's Advisory Group as well as identifying the impact on the research process and the young people involved.MethodsSixteen postprimary school students met with researchers on five occasions in a youth centre. Sessions focused on building the young people's capacity to engage with the research, designing the qualitative study, interpreting study findings and evaluating the collaboration process.ResultsThe Advisory Group highlighted a lack of understanding and appropriate action with regard to cyberbullying but believed that their involvement would ultimately help adults to understand their perspective. Evaluation findings indicate that members were supported to form as well as express their views on the design, conduct and interpretation of the research and that these views were acted upon by adult researchers. Their involvement helped to ensure that the research was relevant and reflective of the experiences, interests, values and norms of young people.ConclusionYoung people can contribute a unique perspective to the research process that is otherwise not accessible to adult researchers. The approach described in this study is a feasible and effective way of operationalizing young people's involvement in health research and could be adapted to explore other topics of relevance to young people.

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Addressing the long-term impacts of aphasia: how far does the Conversation Partner Programme go?

Abstract: Background

Cited by 40 publications

References 45 publications

Material practices for meaningful engagement: An analysis of participatory learning and action research techniques for data generation and analysis in a health research partnership

Material practices for meaningful engagement: An analysis of participatory learning and action research techniques for data generation and analysis in a health research partnership

Exploring levers and barriers to accessing primary care for marginalised groups and identifying their priorities for primary care provision: a participatory learning and action research study

Involving young people in cyberbullying research: The implementation and evaluation of a rights‐based approach

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