Social life aspects of young adults with cleft lip and palate: Grounded theory approach

Abstract

Young adults with either cleft lip and palate or isolated cleft palate who received recognition from significant others reported increased self-esteem and greater ability to cope with their social lives.

Coping with Congenital Hand Differences

“…Receiving recognition from significant others can help these patients cope with stress and combat the resulting low self-esteem. 9,11 Certain coping mechanisms and resources, such as social support from parents or peers, can mediate consequences of stress and improve children’s psychosocial adjustment and self-concept. 3,12,13 Despite indications from related disciplines that visible differences resulting from congenital anomalies can cause social and emotional problems that are best managed with particular methods of coping, these aspects of congenital hand patient outcomes have not been systematically explored.…”

Impacto das disfunções orofaciais na qualidade de vida de pacientes com e sem fissuras labiopalatinas

“…O impacto que as alterações estéticas e funcionais, independente da etiologia, podem acarretar no estado de saúde e na qualidade de vida, tem sido tema de pesquisa em estudos clínicos e longitudinais nos indivíduos em geral (COLLINS, 2013;ENOKI et al, 2013) e nos pacientes com fissura labiopalatina (OOSTERKAMP et al, 2007;CHETPAKDEECHIT et al, 2009;KRAMER et al, 2009). Porém em pacientes com fissura completa de lábio e palato há falta de estudos que relatem se a qualidade de vida desses indivíduos é afetada pela disfunção orofacial, dificultando a discussão dos resultados obtidos com a literatura atual disponível.…”

Children with orofacial clefts : dental caries and health-related quality of life

“…Hearing impairment (Skuladottir, Sivertsen et al 2015), high frequency of middle ear effusions (Sheahan, Miller et al 2003), speech impairment (Flynn and Lohmander 2014) together with the burden of comprehensive medical and dental treatment may have consequences for the children's daily life and their perception of HRQoL. During early childhood, children with CL/P are not usually aware that they are unlike other children (Chetpakdeechit, Hallberg et al 2009). Later in childhood they become aware of the cleft and feel dissimilar due to their appearance, speech difficulties, and their need for multiple and sometimes extensive medical and dental treatments.…”

“…This can be interpreted as children with a CL/P feel less acceptance and support by peers, have less ability to form and maintain relationships, are less respected by peers and friends, have less experiences of positive group feeling, and feel less a part of a group than non-cleft controls (Ravens-Sieberer, Gosch et al 2006). Facial appearance, acceptance by peers, and the desire to be like everyone else are important to preadolescents (Damiano, Tyler et al 2007, Chetpakdeechit, Hallberg et al 2009, Havstam, Laakso et al 2011). Questions and negative comments from other children may have the result in that children with CL/P are feeling different (Havstam, Laakso et al 2011).…”

“…During early childhood children with CL/P are not aware that they are unlike other children, having a congenital malformation causing aberrations in facial appearance and /or speech deviations (Chetpakdeechit, Hallberg et al 2009). Later in childhood they become aware of the cleft and feel dissimilar due to their appearance, speech impairment, and that they are different because they need multiple and sometimes extensive medical and dental treatments (Chetpakdeechit, Hallberg et al 2009). This is in agreement with the results of this study.…”