Siblings of Children With a Chronic Illness: A Meta-Analysis

Sharpe, Donald; Rossiter, Lucille

doi:10.1093/jpepsy/27.8.699

Cited by 355 publications

(306 citation statements)

References 63 publications

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“…Their emotional abnormalities may result from increased family stress with a partial neglect of their needs by the parents who direct most of their parental engagement on the more difficult child with ADHD. Similar observations have been made in the families of chronically ill and handicapped children [28]. However, given the high familial aggregation of affective disorders in children with ADHD [10], genetic segregation of emotional problems may also play a role.…”

Section: Discussionsupporting

confidence: 71%

The behavioural profile of children with attention-deficit/hyperactivity disorder and of their siblings

Steinhausen

Zülli-Weilenmann

Brandeis

et al. 2012

Eur Child Adolesc Psychiatry

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The behavioural profiles in N = 69 index children with attention-deficit/hyperactivity disorder (ADHD), N = 32 siblings with ADHD, N = 35 siblings without ADHD, and N = 36 normal controls were compared by the use of standardized parent and teacher rating scales. The four groups were matched by age and IQ. The behavioural profiles of the two ADHD groups were very similar not only in the behavioural domains of ADHD, but also in scales measuring emotional and conduct problems. Siblings without ADHD shared more similarities with normal controls except for more emotional problems. These general trends were stronger in the parent compared to the teacher ratings. These findings indicate that not only ADHD-related but also other behaviours show a strong family aggregation. The informant differences may reflect context dependent differences in child behaviour and contrast effects particularly in parental ratings. AbstractThe behavioural profiles in N=69 index children with attention-deficit/hyperactivity disorder (ADHD), N=32 siblings with ADHD, N=35 siblings without ADHD, and N=36 normal controls were compared by use of standardized parent and teacher rating scales in order to clarify what determines behavioural heterogeneity in siblings. The four groups were matched by age and IQ. The behavioural profiles of the two ADHD groups were very similar, not only in the behavioural domains of ADHD but also in scales measuring emotional and conduct problems. Siblings without ADHD shared more similarities with normal controls except for more emotional problems. These general trends were stronger in the parent compared to the teacher ratings. The findings indicate that not only ADHD-related but also other behaviours show a strong family aggregation The informant differences may both reflect context dependent differences in child behaviour and contrast effects particularly in parental ratings.

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Section: Discussionsupporting

confidence: 71%

The behavioural profile of children with attention-deficit/hyperactivity disorder and of their siblings

Steinhausen

Zülli-Weilenmann

Brandeis

et al. 2012

Eur Child Adolesc Psychiatry

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“…The study by Stewart in 1991 describes the need of siblings to be able to talk with doctors (and other health professionals) about the illness of their sibling [14]. Inconsistent results are present in the literature regarding the well sibling and impact of chronic health disease with medical diagnosis predominantly outside of CHD and in small convenient sample sizes [15][16][17].…”

Section: Michelle Steltzermentioning

confidence: 99%

Lifetime Impact of Congenital Heart Disease on a Family from the Perspective of a Third in Birth Order Sibling

2016

J Paediatr Child Care

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Background: Congenital heart disease (CHD) is the number one birth defect reported by the Centers for Disease Control and Prevention [1]. Patients are surviving and thriving into teen and adult years. The evolution of care since the late 1960's for patients and families include routine and unexpected clinic visits, hospitalizations, and procedures. Transitions into acute care systems and subsequent return to chronic care systems are part of the process. This care is required in addition to normal routine health surveillance and illnesses impacting patients, families, resources, and support systems.Recognition of the healthy sibling impact and relationship with chronic health disease is present in the literature with inconsistent results across many diseases. The quality of life literature in CHD is progressing through the years, particularly for patients; however, lifetime healthy sibling impact of CHD continues to be void in the literature. Sibling relationships span the longest time period in a lifetime, typically longer than parents and spouses [2]. Focus on sibling impact of chronic illness is essential to understanding the family dynamics, sibling relationships, roles, and family coping mechanisms when faced with a life-threatening illness like CHD.Method: A Midwestern nuclear intact family is the focus in this case study. In 1968, an infant, second in birth order of 4 siblings, was postnatally diagnosed with complex univentricular CHD requiring repeat surgical and medical follow up throughout his lifetime. This single family review retrospectively spans over four and a half decades from the perspective of third in birth order sibling. Utilizing interviews and personal accounts, a developmental perspective of the impact growing up with an ill sibling throughout childhood and adulthood is reported.Results: Normal developmental milestones of adulthood were achieved by all four siblings including: graduating high school, moving out of the home, marrying, childrearing, and pursuing productive careers. Divorce was not present in the nuclear family and respective adult families. Three of the four siblings graduated with a college degree and a first for our generation.Conclusion: CHD and the acute life threatening issues associated with surgical and medical follow up impacts the family system. Compassion and empathy evolved throughout the lifespan for one sibling. Exposure to emotional, mental, and physical stressors while providing quality health care can be significant. The development of professional compassion fatigue [3] and nursing burnout in the third in birth order sibling was identified.Family resilience was critical to positively moving forward. Eight positive resilience factors were identified as key to maintain a positive focus and live life to the fullest capacity. These included: consistent positive family support, spiritual support, family financial stability, quality health care, strong work ethic, presence of humor, focus on quality of life and normalcy, and drive for adventure and new exp...

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“…A resposta refere-se a alguns fatores que infl uenciam o ajustamento de irmãos e o relacionamento entre eles. Entre esses fatores estão a natureza, a gravidade e a demanda da defi ciência, isto é, maior gravidade gera maiores demandas na família e maiores exigências do irmão, com conseqüente diminuição da atenção dos pais e maior ocorrência de comportamentos internalizantes (ansiedade, depressão, por exemplo), em relação aos comportamentos externalizantes, como agressividade (Sharpe & Rossiter, 2002).…”

Section: Efeitos Da Presença De Um Irmão Defi Cienteunclassified

“…Ademais, os relatos dos pais são mais negativos que o auto-relato, pois as crianças podem não perceber efeitos negativos sobre o ajustamento ou relacionamento, podem negar tais efeitos até a idade adulta ou os pais podem ser superprotetores ou supersensíveis às conseqüências negativas (Sharpe & Rossiter, 2002 Faz-se necessário uma breve refl exão referente à intervenção com irmãos. Sessões de informação e grupos de apoio têm se mostrado úteis em assegurar melhorias no estado psicológico das crianças, seus conhecimentos acerca da defi ciência, e seu entendimento da situação da família (Burke & Montgomery, 2000).…”

Section: Questões Metodológico-científi Cas E Considerações Acerca Daunclassified

As contribuições do papel do pai e do irmão do indivíduo com necessidades especiais na visão sistêmica da família

Nunes

Silva

Aiello

2008

Psic.: Teor. e Pesq.

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RESUMO -O presente artigo revê a literatura sobre as principais contribuições do pai e do irmão do indivíduo com necessidades especiais tendo como base a visão sistêmica da família. O objetivo é aprofundar o tema famílias de indivíduos defi cientes, focalizando aqueles elementos que têm sido deixados em segundo plano nos estudos da área, pai e irmão, mostrando sua importância no desenvolvimento desses indivíduos. Assim, são discutidos aspectos da relação pai-indivíduo com necessidades especiais e irmão-indivíduo com necessidades especiais existentes na literatura, elucidando os desafi os práticos e metodológicos de estudos investigando tais relações. Espera-se contribuir, nesta análise, para o aumento de interesse na referida área.Palavras-chave: relacionamento pai-fi lhos; relacionamento entre irmãos; indivíduos com necessidades especiais; teoria sistêmica. The Contributions of Father's Role and Siblings' Role to Disabled People in the Family Systems PerspectiveABSTRACT -The present article reviews the literature about the main contributions of fathers and siblings to the disabled individual development based on the family systems perspective. The purpose is to deepen the subject families of disabled people, focusing those elements that have been left in a second plan in studies of this area, father and siblings, showing their importance in the development of these individuals. Thus, aspects of the relation father-individual with special needs and siblings-individual with special needs in literature are argued, elucidating the practical and methodological challenges of these studies that investigate such relations. One expects to contribute, in this analysis, for the interest increase in the related area.Key words: father-child relationship; siblings' relationship; disabled people; systems approach. De acordo com Pell e Cohen (1995), a família é o primeiro contexto no qual a criança é inserida, e é nela que aprenderá as primeiras noções de relações sociais, sendo tal ambiente capaz de contribuir para o crescimento e desenvolvimento infantil, sobretudo no que se refere às crianças com necessidades especiais, já que estas requerem determinados cuidados. Além disso, os autores ressaltam que a família é também o primeiro sistema de apoio no universo de serviços e suportes para crianças defi cientes.Sabe-se atualmente que o universo familiar das crianças vai muito além da interação mãe-criança, dado que envolve os pais, irmãos, avós e outros agentes sociais (Nunes & Aiello, 2004). Analisando a família dessa perspectiva, conclui-se que se trata de um sistema constituído de vários níveis de relações, configurando-a, portanto, como um sistema interacional (Turnbull & Turnbull, 2001), complexo e composto por subsistemas (como marido-esposa, genitores-fi lhos, irmãos-irmãos, avós-netos) integrados e interdependentes que estabelecem uma relação bidirecional e de mútua infl uência com o contexto sócio-histórico no qual estão inseridos, caracterizando uma rede cíclica de interações (Minuchin, Colapinto & Minuchin, 1999;Minu...

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Siblings of Children With a Chronic Illness: A Meta-Analysis

Cited by 355 publications

References 63 publications

The behavioural profile of children with attention-deficit/hyperactivity disorder and of their siblings

The behavioural profile of children with attention-deficit/hyperactivity disorder and of their siblings

Lifetime Impact of Congenital Heart Disease on a Family from the Perspective of a Third in Birth Order Sibling

As contribuições do papel do pai e do irmão do indivíduo com necessidades especiais na visão sistêmica da família

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