Self-reported Goal Pursuit and Purpose in Life Among People With Dementia

Mak, W

doi:10.1093/geronb/gbq092

Cited by 42 publications

(49 citation statements)

References 17 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Researchers are currently debating the domains of well-being and the best application of methodologies to raise its profile (Ferring & Boll, 2011;George, 2010;Langlois & Anderson, 2002;Mak, 2011;Trigg, Watts, Jones, & Todd, 2011). Well-being is increasingly important indicators for the present study.…”

Section: Introductionmentioning

confidence: 99%

“…Obtaining reliable self-reports from individuals with dementia is challenging due to impaired memory, attention, insight and communication skills (Ettema et al, 2007;Trigg et al, 2011). However, the subjective nature of well-being means that the value of proxy and observational assessments is limited (Ferring & Boll, 2011;Mak, 2011;Roick, Hintz, & Gertz, 2007;Trigg et al, 2011).…”

Section: Introductionmentioning

confidence: 99%

“…Currently, there is no consensus on the reliability of self-report in dementia (Ferring & Boll, 2011;Mak, 2011). Apparently, specific skills like language capacity, concentration or self-reflection are more important than the severity of dementia, e.g.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Dementia and well-being: A conceptual framework based on Tom Kitwood’s model of needs

Kaufmann¹,

Engel

2014

Dementia

View full text Add to dashboard Cite

The topic of well-being is becoming increasingly significant as a key outcome measure in dementia care. Previous work on personhood of individuals with dementia suggests that their subjective well-being can be described in terms of comfort, inclusion, identity, occupation and attachment. The study aimed to examine Tom Kitwood's model of psychological needs and well-being in dementia based on the self-report of individuals with moderate or severe dementia and to differentiate and elaborate this model in the light of the empirical qualitative data. Nineteen inhabitants of a special long-term care unit were interviewed using a semi-structured interview. Data were analysed using content analysis. Thirty components within Kitwood's model have been identified. A conceptual framework of subjective well-being in dementia was developed based on a theoretical background. The study was able to find indications that Kitwood's model has empirical relevance. Nevertheless, it requires to be extended by the domain agency. Furthermore, the study suggests that individuals with dementia are important informants of their subjective well-being.

show abstract

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Dementia and well-being: A conceptual framework based on Tom Kitwood’s model of needs

Kaufmann¹,

Engel

2014

Dementia

View full text Add to dashboard Cite

show abstract

“…One study utilized the measure in its entirety (Gonzalez, Mayordomo, Torres, Sales, & Meléndez, 2015), one used the environmental mastery subscale (Wettstein, Wahl, Shoval, Auslander, Oswald, & Heinik, 2014) and one used the purpose in life subscale (Mak, 2011). Gonzalez, Mayordomo, Torres, Sales and Meléndez (2015) examined the effect of reminiscence therapy within two retirement homes.…”

Section: Wellbeingmentioning

confidence: 99%

“…The second study utilised the environmental mastery subscale of the PWB in an observational study and provided further evidence for the measures construct validity noting that higher walking distances and walking speed were significantly related to higher environmental mastery (r=.40 and r=.45, p<.05) (Wettstein, Wahl, Shoval, Auslander, Oswald, & Heinik, 2014). Mak (2011) Whilst the development information was lacking for the SID, it has been used in a number of studies successfully and suggests the measure is an appropriate tool for assessing identity for people with dementia. Despite the AHS scoring slightly higher than the HHI at the quality assessment stage, it is possible that the HHI may be more applicable as hope for people with dementia appears to be more generalised in nature (Wolverson, Clarke, & Moniz-Cook, 2010), rather than goal oriented (Snyder, et al, 1991).…”

Section: Wellbeingmentioning

confidence: 99%

The development of positive psychology outcome measures and their uses in dementia research: A systematic review

et al. 2017

View full text Add to dashboard Cite

Positive psychology is gaining credence within dementia research but currently there is a lack of outcome measures within this area developed specifically for people with dementia. Authors have begun adopting positive psychology measures developed with other populations but there is no consensus around which are more appropriate or psychometrically robust. A systematic search identified measures used between 1998-2017 and an appraisal of the development procedure was undertaken using standardised criteria enabling the awarding of scores based on reporting of psychometric information. Twelve measures within the constructs of identity, hope, religiosity/ spirituality, life valuation, self-efficacy, community and wellbeing were identified as being used within 17 dementia studies. Development procedures were variable and scores on development criterion reflected this variability. Of the measures included, the Herth Hope Index, Systems of Belief Inventory and Psychological Well-being Scale appeared to be the most robustly developed and appropriate for people with dementia.

show abstract

Change in Purpose in Life Before and After Onset of Cognitive Impairment

Sutin,

Luchetti,

Stephan

et al. 2023

JAMA Netw Open

View full text Add to dashboard Cite

ImportancePurpose in life is a critical aspect of psychological well-being that is associated with better cognitive outcomes across the continuum of dementia. To our knowledge, the natural history of purpose with onset of cognitive impairment has yet to be evaluated.ObjectiveTo evaluate changes in purpose in life prior to and after onset of cognitive impairment.Design, Setting, and ParticipantsThis cohort study used assessments of purpose in life and cognitive status from March 2006 to May 2021 in the Health and Retirement Study (HRS) and from May 2011 to November 2021 in the National Health and Aging Trends Study (NHATS).ExposureCognitive impairment at each wave based on established thresholds in HRS and NHATS.Main Outcomes and MeasuresThe main outcome was purpose in life, measured with the Ryff Measures of Psychological Well-Being in HRS and a validated item in NHATS.ResultsIn HRS, 22 668 participants provided 50 985 assessments of purpose across all waves. In NHATS, 10 786 participants provided 53 880 assessments of purpose across all waves. In HRS, 58.3% of participants were female, with mean (SD) age of 64.76 (10.41) years at baseline; in NHATS, 57.4% were female, with mean (SD) age of 76.82 (7.71) years at baseline. Across waves, 6794 HRS participants (30%) and 4446 NHATS participants (41.2%) were in the cognitive impairment range. Accounting for demographic covariates and normative change in purpose, multilevel modeling indicated that standardized purpose in life declined significantly prior to onset of cognitive impairment (estimate for 10 years) in both HRS (b = −0.12; 95% CI, −0.17 to −0.07; P &lt; .001) and NHATS (b = −0.10; 95% CI, −0.20 to −0.01; P = .03). Purpose declined significantly more rapidly following onset of cognitive impairment, with a standardized decline nearly 3 times larger compared with prior to impairment in HRS (b = −0.35; 95% CI, −0.41 to −0.29; P &lt; .001) and 4 times larger in NHATS (b = −0.44; 95% CI, −0.53 to −0.34; P &lt; .001).Conclusions and RelevanceIn this cohort study, purpose in life declined with emergence of cognitive impairment. The decline before onset was too small to be useful to detect impending impairment in clinical settings. The steeper decline following impairment suggests that individuals are aware that their purpose is declining. Purpose may be an intervention target following cognitive impairment to maintain well-being and to reduce or slow emergence of behavioral symptoms associated with low purpose.

show abstract

Self-reported Goal Pursuit and Purpose in Life Among People With Dementia

Abstract: People with dementia who engage in goal-directed activity may experience a greater sense of purpose. Results from this study illuminate the experience of psychological well-being in dementia and may inform activity programming for this population.

Cited by 42 publications

References 17 publications

Dementia and well-being: A conceptual framework based on Tom Kitwood’s model of needs

Dementia and well-being: A conceptual framework based on Tom Kitwood’s model of needs

The development of positive psychology outcome measures and their uses in dementia research: A systematic review

Change in Purpose in Life Before and After Onset of Cognitive Impairment

Contact Info

Product

Resources

About