Dementia and well-being: A conceptual framework based on Tom Kitwood’s model of needs

Kaufmann, Elke G; Engel, Susanne

doi:10.1177/1471301214539690

Cited by 53 publications

(58 citation statements)

References 29 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Participants described feeling of 'little value' (Moyle et al, 2011), and many still had a desire to contribute to the home or society (Godwin & Poland, 2015;Jonas-Simpson & Mitchell, 2005). This could be achieved through engagement in domestic tasks such as tidying their rooms (Kaufmann & Engel, 2016). However, some participants were happy to be relieved of the responsibility of domestic tasks (Godwin & Poland, 2015;Van Zadelhoff, Verbeek, Widdershoven, Van Rossum, & Abma, 2011).…”

Section: Maintaining Previous Rolesmentioning

confidence: 99%

“…Altruism was also important for some residents, providing occupation, as well as comfort (Doyle, Rubinstein, & de Medeiros, 2015;Kaufmann & Engel, 2016). This may take place within the home, as explained by one participant, who said the best thing about her day was 'chatting with other people, hearing their complaints and their worries and trying to give them a little advice' (Moyle et al, 2015).…”

Section: Maintaining Previous Rolesmentioning

confidence: 99%

See 1 more Smart Citation

Self-reported needs and experiences of people with dementia living in nursing homes: a scoping review

Shiells

Pivodic

Holmerová

et al. 2019

Aging & Mental Health

View full text Add to dashboard Cite

Objectives: With rates of dementia continuing to rise, the impetus on improving care for people with dementia is growing. Unmet needs of people with dementia living in nursing homes have been linked with worsening neuropsychiatric symptoms, higher levels of depression, and reduced quality of life. Furthermore, proxy accounts exploring the needs of people with dementia have frequently been shown to be unreliable. Therefore, this literature review aims to explore the selfreported needs and experiences of people with dementia in nursing homes. Method: A scoping review of the literature was carried out using the databases PubMed and PsycINFO to search for relevant articles according to PRISMA guidelines. Search terms were designed to include both quantitative and qualitative study designs. Thematic synthesis was used to categorise findings into themes related to self-reported needs and experiences. Results: A total of 41 articles met the eligibility criteria. An analysis of study characteristics revealed more than half of studies used a qualitative design. Thematic synthesis resulted in eight themes: activities, maintaining previous roles, reminiscence, freedom and choice, appropriate environment, meaningful relationships, support with grief and loss, end-of-life care. Conclusion: Whilst the voice of people with dementia has previously been neglected in research, this review has shown that people with dementia in nursing homes are able to describe their experiences and communicate their needs. The findings in this review have provided a contribution towards guiding evidence-based practice that is tailored to the needs of nursing home residents with dementia.

show abstract

Section: Maintaining Previous Rolesmentioning

confidence: 99%

Section: Maintaining Previous Rolesmentioning

confidence: 99%

Self-reported needs and experiences of people with dementia living in nursing homes: a scoping review

Shiells

Pivodic

Holmerová

et al. 2019

Aging & Mental Health

View full text Add to dashboard Cite

show abstract

“…Theoretical evaluations of Tom Kitwood's framework were conducted in studies by Hunter et al. and Kaufmann and Engel . In both studies, the theories and concepts of Tom Kitwood provided empirical evidence and relevance, although the study by Kaufmann and Engel called for a change.…”

Section: Resultsmentioning

confidence: 99%

“…The questionnaire was considered a useful tool for measuring person-centred attitudes towards people with advanced dementia (18). Kaufmann and Engel (19) stated that Kitwood's model of psychological needs and well-being in dementia had empirical relevance but needed extension. Specifically, several differences were The training also appeared to break down the wider socioenvironmental barriers that had restricted meaningful occupation in the day service…”

Section: Theoretical Evaluation Of Tom Kitwood's Theoretical Frameworkmentioning

confidence: 99%

Mapping empirical experiences of Tom Kitwood's framework of person‐centred care for persons with dementia in institutional settings. A scoping review

Terkelsen

Petersen

Kristensen

2019

Scandinavian Caring Sciences

View full text Add to dashboard Cite

Introduction Tom Kitwood's theoretical framework of person‐centred care is extensively and internationally referred to in healthcare services. However, despite the broad use of Kitwood's approach in clinical practice, the research examining experiences with the approach has not been mapped. Aim To map the available literature on current empirical experiences in clinical practice of Kitwood's approach to person‐centred care for people with dementia, living in institutional settings in primary health care. Methods A total of 154 studies concerning the experiences of people with dementia and their formal caregivers’ use of Kitwood's framework of person‐centred care for residents living in institutional settings in primary health care were compiled from scientific databases. All three authors engaged in a systematic selection process, leading to nineteen articles being included in the review. Results The results showed an overall tendency towards positive experiences gained from applying person‐centred approaches in clinical practice influenced by Kitwood's theoretical framework. Through the synthesis of data from the selected studies, six categories related to our research aim were identified ‘Theoretical evaluation of Tom Kitwood's model of care’, ‘Models and frameworks’, ‘Interventions’, ‘Communication’, ‘Dementia Care Mapping’ and ‘Environment’. Conclusion The present review included nineteen studies published from 1998 to 2016 and consisted mainly of peer‐reviewed scientific articles, followed by dissertations, conference posters and nonpeer‐reviewed articles. All studies were undertaken in Western countries. The vast majority of the studies considered Kitwood's theoretical framework to be beneficial and useful in practice.

show abstract

“…Individuals with dementia are important informants about their own subjective well-being and should be included in related research (Kaufmann and Engel, 2014).…”

Section: Mood and Subjective Well-beingmentioning

confidence: 99%

‘Awakened Art Stories’—Rediscovering pictures by persons living with dementia utilising TimeSlips: A Pilot Study

Loizeau

Kündig

Oppikofer

2015

Geriatric Mental Health Care

View full text Add to dashboard Cite

Introduction: 'Awakened Art Stories' is the first creative expression intervention study for persons with dementia (PWD) and their caregivers. The study was conducted at the Kunsthaus Museum in Switzerland. The intervention utilised TimeSlips to encourage persons living with dementia to create stories about artwork in response to open-ended questions. The aim of this pilot study was to assess the efficacy and feasibility of an intervention through storytelling and a social gathering. Materials and method: A mixed-method pre-post design using semi-structured interviews, written questionnaires, validated and adapted scales, and a self-generated observations' sheet as well as a visual analogue scale assessed the efficacy as well as the feasibility of the intervention. Participants were four PWDs and their caregivers as well as four volunteers, who supported the PWDs during the sessions. Qualitative data were analysed using thematic analyses and descriptive observations, as well as further feedback from participants, while a Wilcoxon signed-rank test was used to analyse quantitative data. Results: The quantitative findings revealed a statistically significant, positive effect on PWDs' and caregivers' mood on the Smiley-Face Assessment Scale directly after the museum session (all participants: Z=−4.84, p<0.001; PWDs: Z=−3.57, p<0.001; Caregivers: Z=−3.34, p<0.001). On the Dementia Attitudes Scale, no significant differences in the caregivers' and volunteers' attitudes towards dementia were found. No significant differences were found on the Caregiver Burden Inventory either. Although the qualitative findings revealed via thematic analyses that while PWDs attributed their mood to the atmosphere, caregivers attributed it rather to social contacts. All caregivers and most of the volunteers reported a positive change in their attitude towards dementia. In addition, PWDs' reported that they welcomed the opportunity to contribute and express their thoughts. All participants were highly satisfied with their experience. Conclusion: Despite the small sample size, the many benefits of making art accessible to PWDs and their caregivers, as well as the feasibility of an innovative intervention based on TimeSlips resulted in both quantitative and qualitative evidence. AbstractIntroduction: 'Awakened Art Stories' is the first creative expression intervention study for persons with dementia (PWD) and their caregivers. The study was conducted at the Kunsthaus Museum in Switzerland. The intervention utilized TimeSlips to encourage persons living with dementia to create stories about artwork in response to open-ended questions. The aim of this pilot study was to assess the efficacy and feasibility of an intervention through storytelling and a social gathering.

show abstract

Dementia and well-being: A conceptual framework based on Tom Kitwood’s model of needs

Cited by 53 publications

References 29 publications

Self-reported needs and experiences of people with dementia living in nursing homes: a scoping review

Self-reported needs and experiences of people with dementia living in nursing homes: a scoping review

Mapping empirical experiences of Tom Kitwood's framework of person‐centred care for persons with dementia in institutional settings. A scoping review

‘Awakened Art Stories’—Rediscovering pictures by persons living with dementia utilising TimeSlips: A Pilot Study

Contact Info

Product

Resources

About