Research Priorities in Geriatric Palliative Care: Informal Caregiving

Abstract

Inasmuch as most caregivers must deal with chronic, debilitating, and often life-threatening conditions, it is essential that we advance a research agenda that addresses the interplay between informal care and formal palliative care.

Nursing research priorities based on CINAHL database: A scoping review

“…Regarding the first phenomenon, long‐term care (Brazil, Maitland, Ploeg, & Denton, ; Deschodt, Zunica, & Wellens, ; Keller, Beck, & Namasivayam, ; McGilton et al, ; Walsh & Yon, ), nursing home settings (Morley et al, ; Simmons et al, ; Walsh & Yon, ), palliative care (Combs, Kluger, & Kutner, ; Hanson & Winzelberg, ; Henoch et al, ; Lunney, ; O'Quinn & Giambra, ; Ritchie & Zulman, ; Schulz, ) and basic/fundamental care (Walsh & Yon, ) are important phenomena that should be studied more closely. With respect to fundamental care, the practical and emancipatory interests are important to direct nursing research and practice (Granero‐Molina et al, ).…”

“…Regarding the first phenomenon, long-term care (Brazil, Maitland, Ploeg, & Denton, 2012;Deschodt, Zunica, & Wellens, 2017;Keller, Beck, & Namasivayam, 2015;McGilton et al, 2016;Walsh & Yon, 2012), nursing home settings (Morley et al, 2014;Simmons et al, 2016;Walsh & Yon, 2012), palliative care (Combs, Kluger, & Kutner, 2013;Hanson & Winzelberg, 2013;Henoch et al, 2016;Lunney, 2015;O'Quinn & Giambra, 2014;Ritchie & Zulman, 2013;Schulz, 2013) and basic/fundamental care (Walsh & Yon, 2012) Improving the quality of life of individuals with chronic conditions (Grady & Gullatte, 2014), patient-level outcome measures (Davis, Morgans, & Stewart, 2016), patient self-management (Grady, 2017), personalized health strategies, health promotion and patient education are topics that need further research (Foster et al, 2018;Grady & Gough, 2015). Grady and Gullatte (2014;also Grady, 2017) state that increasing numbers of people are currently living with chronic conditions and managing long-term illnesses is shifting from health professionals to individuals and their families; consequently, these nursing phenomena ought to be investigated in greater depth.…”

Inter-relações no processo de morrer no hospital: olhar do familiar cuidador

“…Os familiares cuidadores sofrem ao vivenciar a angústia e sofrimento do indivíduo enfermo; essa circularidade retroativa pode ocasionar efeitos sobre sua saúde emocional e física (13). Frequentemente reafirmam sua necessidade de paciência enquanto cuidam, durante a internação hospitalar, pontuando a dificuldade de se manterem estáveis, cuidando também de si mesmos durante esse processo (14).…”

Caregivers burden in people in palliative care: an integrative literature review

“…Uma investigação sobre esse tema trará benefícios importantes para os enfermos, cuidadores familiares e ao sistema de saúde. 7 O objetivo desta revisão é sintetizar os principais resultados de pesquisas e analisar criticamente as melhores evidências científicas relativas à sobrecarga de cuidadores de pessoas em Cuidados Paliativos, o que poderá nortear melhores práticas de saúde junto a essa população.…”