Reports of recovery in chronic fatigue syndrome may present less than meets the eye

Friedberg, Fred; Adamowicz, Jenna L.

doi:10.1136/eb-2013-101652

Cited by 4 publications

(2 citation statements)

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“…Friedberg and Adamowicz1 make several interesting observations in their review of recovery rates reported in White et al 2. However, we disagree with them that a previous trial of an active behavioural intervention, Deale et al , which reported very similar recovery rates to White et al , ‘used similar recovery criteria’ 1–3…”

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confidence: 82%

Response to: reports of recovery in chronic fatigue syndrome may present less than meets the eye

Kindlon¹,

Baldwin

2014

Evid Based Mental Health

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Friedberg and Adamowicz 1 make several interesting observations in their review of recovery rates reported in White et al. 2 However, we disagree with them that a previous trial of an active behavioural intervention, Deale et al, which reported very similar recovery rates to White et al, 'used similar recovery criteria'. [1][2][3] The White et al 2 recovery criteria were: Chalder Fatigue Questionnaire (CFQ; Likert scoring) and Short Form (SF)-36 physical functioning (PF) scores in normal range (ie, ≤18 and ≥60, respectively); Oxford CFS criteria not met; and clinical global impression (CGI) score of 1 or 2. The Oxford criteria required CFQ (bimodal scoring) ≥6 and SF-36 PF ≤65.By contrast, Deale et al 3 used more stringent criteria for 'complete recovery': SF-36 PF >83, CFQ (bimodal) <4, were employed full-time, and Oxford criteria not met. Only two outcomes reported by Deale et al and White et al are directly comparable. In White et al, 40% obtained CGI scores of 1 or 2, significantly lower than 68% in Deale et al (Fisher's exact test, p<0.05). Fifty-two per cent had SF-36 PF scores ≥60, not much more than 48% in Deale et al, who had SF-36 PF scores >83, a much more stringent threshold.Friedberg and Adamowicz state the operationalised criteria for recovery in White et al were "informed by population data." However, when White et al said they changed their original protocol's threshold score of SF-36 ≥85 to a lower score "as that [original] threshold would mean that approximately half the general working age population would fall outside the normal range," referencing Bowling et al and a mean of 84, they made an important error. 2 Part of their mistake was to use the mean and SD when the scores are not normally distributed. 4

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confidence: 82%

Response to: reports of recovery in chronic fatigue syndrome may present less than meets the eye

Kindlon¹,

Baldwin

2014

Evid Based Mental Health

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“…'Remission,' which refers to current status, rather than a state of sustained recovery is a more accurate termwhich the PACE authors appear to agree with. [12] This term is less prone to misinterpretation and exaggeration.…”

Section: Cbt Outcomes: the Issue Of Recoverymentioning

confidence: 99%

Cognitive-behavior therapy: why is it so vilified in the chronic fatigue syndrome community?

Friedberg

2016

Fatigue: Biomedicine, Health & Behavior

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Acceptance, fatigue severity and self-reported physical activity in individuals with chronic fatigue syndrome/myalgic encephalomyelitis

Chapman

Broadbent

Coutts

2019

Fatigue: Biomedicine, Health & Behavior

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Reports of recovery in chronic fatigue syndrome may present less than meets the eye

Cited by 4 publications

References 2 publications

Response to: reports of recovery in chronic fatigue syndrome may present less than meets the eye

Response to: reports of recovery in chronic fatigue syndrome may present less than meets the eye

Cognitive-behavior therapy: why is it so vilified in the chronic fatigue syndrome community?

Acceptance, fatigue severity and self-reported physical activity in individuals with chronic fatigue syndrome/myalgic encephalomyelitis

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