Cognitive-behavior therapy: why is it so vilified in the chronic fatigue syndrome community?

Friedberg, Fred

doi:10.1080/21641846.2016.1200884

Cited by 7 publications

(7 citation statements)

References 17 publications

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“…The Functional Assessment of Cancer Therapy Scale [41] might also be adapted for ME and CFS, as the scale targets psychosocial functioning. Research should use longitudinal designs with these measures [4,5,42].…”

Section: Discussionmentioning

confidence: 99%

Defining and measuring recovery from myalgic encephalomyelitis and chronic fatigue syndrome: the physician perspective

Devendorf

Jackson

Sunnquist

et al. 2017

Disability and Rehabilitation

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Our findings provide recommendations and approaches for measuring: daily functioning, symptomatology, quality of life, and physical functioning. Implications for rehabilitation Physicians viewed recovery as complete symptom remission and a return to premorbid functioning (adjusted for with age). Recovery from myalgic encephalomyelitis and chronic fatigue syndrome should be viewed as multidimensional, considering patients' daily life, psychosocial functioning, and overall physical functioning. These findings can improve practitioner-client interactions, as they provide recommendations for measuring recovery in research and practice.

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Section: Discussionmentioning

confidence: 99%

Defining and measuring recovery from myalgic encephalomyelitis and chronic fatigue syndrome: the physician perspective

Devendorf

Jackson

Sunnquist

et al. 2017

Disability and Rehabilitation

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“…Characterization of ME/CFS as a psychosomatic illness has led to the belief that cognitive behavioral therapy (CBT) and graded exercise therapy (GET) are therapeutic if not curative (6). The publications demonstrating the therapeutic and potentially curative values of CBT and GET have now been challenged (18). Attempts to correct the literature are currently underway (29).…”

Section: The Pastmentioning

confidence: 99%

“…The availability of treatment and therapeutic approach varies among countries. Some countries lack awareness of ME/CFS (16), others subscribe to ME/CFS as treatable by changing the way the patient thinks and behaves through a CBT approach (17, 18), while some have embraced ME/CFS being an organic disease in practice (19) but fail to reach all patients and caregivers in need (20). Recently, O'Leary (21) has put forward the argument that despite a previous, long-term, professional consensus that CFS be classified as a psychosomatic illness, the insistence of globally respected health authorities that ME/CFS be treated as a serious, biological disease (1) raises ethical concerns as to whether efforts to continue treating ME/CFS as a mental disorder (in the U.K.) should continue.…”

Section: Introductionmentioning

confidence: 99%

Advances in ME/CFS: Past, Present, and Future

Friedman

2019

Front. Pediatr.

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The forerunner of what is today termed myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) was described by the U.S. Public Health Service in 1934. At the present time, we still do not know its cause and/or how to detect it by routine clinical laboratory tests. In consequence, the pathological nature of ME/CFS has been overlooked and the disease has been stigmatized by being mislabeled as psychosomatic or somatoform illness. Such misperceptions of the disease have led to insufficient research exploration of the disease and minimal to absent patient care. A 2015 Institute of Medicine report on the illness declared ME/CFS a disease affecting up to 2.5 million Americans and chastised the U.S. government for doing little to research the disease and to support its patients. Clinicians who currently treat this disease declare it to be more devastating than HIV/AIDS. A comparison of the histories of the two diseases, an examination of the current status of the two diseases, and a listing of the accomplishments that would be needed for ME/CFS to achieve the same level of treatment and care as currently experienced by patients with HIV/AIDS is provided.

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“…Patients who have ME and CFS, but are misdiagnosed with depression, may feel stigmatized, delegitimized, and may be prescribed potentially harmful treatments (Twisk and Maes, 2009). Particularly with recovery, patients with ME and CFS may experience disappointment, frustration, and hopelessness when they do not improve after receiving treatments designed for depression (Friedberg, 2016). Some research has demonstrated psychological treatments, like CBT, to be harmful for patients with ME and CFS (Twisk and Maes, 2009), but helpful for patients with depression (Friedberg and Krupp, 1994).…”

Section: Discussionmentioning

confidence: 99%

Approaching recovery from myalgic encephalomyelitis and chronic fatigue syndrome: Challenges to consider in research and practice

et al. 2017

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There are unique methodological challenges to studying and assessing recovery in myalgic encephalomyelitis and chronic fatigue syndrome. This study explored these challenges through interviewing 13 physicians who treat myalgic encephalomyelitis and chronic fatigue syndrome. Our deductive thematic analysis produced four themes to consider when approaching recovery: lifespan differences in the illness experience; the heterogeneity of myalgic encephalomyelitis and chronic fatigue syndrome-case definitions, etiological stance, and misdiagnosis; patient follow-up and selection bias; and assessment logistics. We discuss how researchers and clinicians can use these considerations when working with patients, drafting recovery criteria, and interpreting treatment outcomes.

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Cognitive-behavior therapy: why is it so vilified in the chronic fatigue syndrome community?

Cited by 7 publications

References 17 publications

Defining and measuring recovery from myalgic encephalomyelitis and chronic fatigue syndrome: the physician perspective

Defining and measuring recovery from myalgic encephalomyelitis and chronic fatigue syndrome: the physician perspective

Advances in ME/CFS: Past, Present, and Future

Approaching recovery from myalgic encephalomyelitis and chronic fatigue syndrome: Challenges to consider in research and practice

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