Acceptance, fatigue severity and self-reported physical activity in individuals with chronic fatigue syndrome/myalgic encephalomyelitis

Chapman, Neil; Broadbent, Suzanne; Coutts, Rosanne

doi:10.1080/21641846.2019.1629760

Cited by 1 publication

(2 citation statements)

References 49 publications

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“…We present two further important findings regarding coping strategy development in pwME/CFS. Firstly, acceptance, which is commonly regarded as slow and inconsistent to develop in pwME/CFS (Chapman et al, 2019;Jason et al, 1999), emerged as a coping theme, despite the considerable variation in illness duration within the sample. Secondly, our participants emphasised the identification and pursuance of small pleasures, which may reflect the process of benefit-finding; a positive marker indicative of resilience and posttraumatic growth (Taylor et al, 2000).…”

Section: Limitations and Future Directionsmentioning

confidence: 99%

“…pwME/CFS to develop and adapt to a flexible structure that accommodates their symptom fluctuations, whilst allowing crucial pursuit of identity-preserving value-driven activity (Åsbring, 2001;Dickson et al, 2008). Whether naturally-observed or intervention-led, preliminary evidence suggests that lifestyle adjustments congruent with this approach can be beneficial for quality of life and psychosocial outcomes and also support development of problem-and emotion-focused coping strategies (Chapman et al, 2019;Densham et al, 2016;Jonsjö et al, 2019). Crucially, this approach complements and encourages empiricallysupported pacing strategies for activity management (Brown et al, 2013;Jason et al, 2013).…”

Section: Introductionmentioning

confidence: 99%

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‘Welcome to my world’: a thematic analysis of the lived experiences of people with Myalgic Encephalomyelitis during the UK COVID-19 lockdown

Portch,

Moseley,

Wignall

et al. 2023

Psychology & Health

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Objectives:We explore the experiences of people with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (pwME/CFS) during the first UK COVID-19 lockdown period. We specifically probe perceived commonalities and departures in experience between government-and health-imposed lockdowns, application of coping strategies for social isolation, and predictions for inclusion of the chronically ill in post-pandemic society.Methods and Measures: Thirty semi-structured interviews were conducted in pwME/CFS between June -July, 2020. Responses were qualitatively analysed using an experiential, thematic framework.Results: While participants reported enhancements in digital accessibility during lockdown, they perceived this as an unintentional benefit from changes designed to cater universally.Similarly, their expectation was that the general population's limited experience of restriction would not engender greater understanding for those who would continue to experience health-imposed lockdowns, post-pandemic. Participants described numerous strategies for coping with restriction and isolation, developed during prior health-imposed lockdowns and applied to this novel circumstance, highlighting the presence of acceptance and resilience in the sample. Conclusions:Our findings suggest that future work may fruitfully examine whether our participant's predictions for post-pandemic societal inclusion have been met, and how resilience and acceptance might be developed and nurtured in chronically ill populations through times of adversity.

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Section: Limitations and Future Directionsmentioning

confidence: 99%