Quality of Life of Intermittent Urinary Catheterization Users and Their Caregivers: A Scoping Review

Abstract

The QoL of patient's who use intermittent urinary catheterization can be determined by improvement of urinary symptoms and self-confidence. Research related to QoL of patients who use urinary catheter indicates the importance of adequate professional support and appropriate health public policies.

Determinants and impact of the time to perform clean intermittent self‐catheterization on patient adherence and quality of life: A prospective observational study

“…But CISC allows an improvement in urinary symptoms, and in this case, allows an improvement in quality of life. 10 In fact, the benefit of CISC depends on the efficacy of the treatment of detrusor overactivity. The absence of correlation with the time could reflect this improvement of urinary symptoms and explain why time is not the main problem, the real objective in many cases is to allow anticholinergics prescription (or intradetrusor injection of botulinum toxin) to improve urinary incontinence.…”

“…The impact of CISC on quality of life is discordant in literature: some studies report a lower quality of life for patients with CISC compared with those with spontaneous voiding. But CISC allows an improvement in urinary symptoms, and in this case, allows an improvement in quality of life 10 . In fact, the benefit of CISC depends on the efficacy of the treatment of detrusor overactivity.…”

“…A few studies have assessed patient satisfaction and adherence to self-catheterization through quality of life questionnaires, but the results are divergent. 5,10 Acceptance of CISC is assessed by a specific questionnaire, 11 or visual analog scales describing the difficulty to perform the procedure as perceived by the patient, 12 or the discomfort when passing the catheter. 13 The Short Form Qualiveen (SF Qualiveen), which targets specifically patients with multiple sclerosis and spinal cord injuries, has been validated to evaluate the quality of life of patients with CISC.…”

“…The announcement of the indication of CISC is often difficult and the acceptance of this therapy remains complicated, due to its invasive aspect, the dependence on specific equipment and the time required to perform CISC. A few studies have assessed patient satisfaction and adherence to self‐catheterization through quality of life questionnaires, but the results are divergent 5,10 . Acceptance of CISC is assessed by a specific questionnaire, 11 or visual analog scales describing the difficulty to perform the procedure as perceived by the patient, 12 or the discomfort when passing the catheter 13 .…”

Factors affecting continuation of clean intermittent catheterisation in people with multiple sclerosis: Results of the COSMOS mixed-methods study

“…It was evident that for many making the decision to start CIC was a major step, and support for the individual with MS, both from the person teaching CIC and from their family members, was important to encourage them to overcome both the practical issues and feelings of negativity. A recently published review on the QoL of ISC users and their caregivers 26 concluded that the QoL of patient's who use ISC can be determined by improvement of urinary symptoms and self-confidence with emphasis on the importance of adequate professional support.…”